All Communities > Moms of Kiddos with Down Syndrome > Targeted Nutritional Intervention

Targeted Nutritional Intervention

Justina - posted on 05/22/2009 ( 7 moms have responded )

7

1

Hi all. I am the mommy of a 5 month old little DS boy, Seth. I just wanted to let you know what we are doing for him and let you investigate for yourself. My older son, Nathan (6) was diagnosed at 2.5 with autism. We took him to a DAN (defeat autism now) dr. who put him on a gluten/casein (dairy) free diet along with other supplements (magnesium, calcium, etc.). Just over three years later, we have an almost six year old boy who is finishing kindergarten top of his class, reading at a 3rd grade level, and completely undesignated. He has been "recovered" from autism. (I am sure many of you have heard Jenny McCarthy's story, well ours is similar.) What does this have to do with Seth you might wonder. Well, here is what that same DAN dr. has recommended for Seth. Seth will also be gluten/dairy free (I am gluten free and only drink organic milk - I breastfeed). He has also started taking the supplement NuTrivene which has been specifically formulated for DS kids. Oh, and he will receive minimal vaccinations. I have attached the link to NuTrivene. Our dr. said that our goal is to give Seth the highest IQ possible. Research has shown that DS is not only a genetic disorder but also a metabolic disorder that can be improved with the right diet and supplements. I wish that I could zoom ahead two years and tell what the improvements are, but I cannot. I just want to allow you to research on your own, potentially seek out the opinion of a DAN dr., etc.

LINK for NuTrivene:

http://www.nutrivene.com/view_item.php?P...

Blessings,
Justina

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms

7 Comments

View replies by

Silvana - posted on 02/21/2010

22

0

I would like to reply to the post that some parents get offended at the thought of doing something to improve our DS chidren's IQ. I have two daughters one with DS one typical. I have had my DS child on Nutrivene since she was 3 mo old and I will always do whatever I can to improve her skills whether it's motor function or brain function just as I would with my typical child. If my typical daughter were having a hard time in math or reading wouldn't I get a tutor to help her improve? Of coursr that's what parents do and that would, in turn, help her IQ wouldn't it? Of course. So why should we be so sensitive about this with our DS kids. Its crazy and it shows a lack of acceptance by these parents of their children.We are moms and dads and we help our kids in whatever way they need.

Chris - posted on 07/11/2009

3

7

I have twin boys with DS and both of them have been on Nutrivene since they were 6 months old. They are now two and doing great! You won't see immediate results, but in the long run it will pay off. I can't imagine anyone not wanting to give their child with DS the best opportunities available which include the Nutivene program.

Kristine - posted on 06/01/2009

46

3

Hi there. I've looked into NuTrivene several years ago and would like to try it, but my husband is quite opposed to it. I also thought it would have been difficult to make the appointments, since we live in Alaska and I think you have to travel to see a specific doctor, don't you? I've heard that the earlier you start the better though, so way to go! My daughter is on a wheat/diary free diet, but we haven't managed to be totally gluten free.

Elizabeth - posted on 05/25/2009

50

12

Quoting Justina:

Thanks. I adore my little guy. He is amazing. I would never mean to offend anyone. If I did offend, I am sorry.

Justina



I am sure you would never want to offend anyone. Like I said, I don't have a problem with Nutrivene, I mean I actually tried it!! :)   I just wanted you to be aware. But so far, no one else has posted, so I wouldn't worry!!  I really do commend you for being able to stick with the Gluten Free diet though, that is really quite a life style change!!!

Justina - posted on 05/23/2009

7

1

Thanks. I adore my little guy. He is amazing. I would never mean to offend anyone. If I did offend, I am sorry.

Justina

Elizabeth - posted on 05/23/2009

50

12

Congrats on being able to keep up with the Gluten Free diets, that is trully a life change. I myself do not have a problem with the Nutrivene, I have used it in the past, with no benefits for my son. I will however warn you that many mothers take offense to treating Ds with extremely high doses of anything, in order to help them with their IQ. I have been in several online groups where this topic comes up and several parents get irate about this topic. Just so ya know....

Elizabeth - posted on 05/23/2009

50

12

Congrats on being able to keep up with the Gluten Free diets, that is trully a life change. I myself do not have a problem with the Nutrivene, I have used it in the past, with no benefits for my son. I will however warn you that many mothers take offense to treating Ds with extremely high doses of anything, in order to help them with their IQ. I have been in several online groups where this topic comes up and several parents get irate about this topic. Just so ya know....

Powered by RESPECT not THUMPS

Want to find out the opinions of this community?

Add Poll