Donna - posted on 07/10/2009 ( 6 moms have responded )
Hello my name is Donna. I have a son Tyler who is age 12 well in one month he will be 13. He is a bright and very smart boy. I was very blessed to have known the right people when Tyler was born because finding out that he was downs was a shock to us. I wasn't scared or embarressed but shocked because we had all the test done before he was born and my pregnagcy was great. Nothing indicated that anything was different. Never the less he was born downs. From the beginning nothing has been normal to a downs point of view or what people have put in the text books of what to expect when having a downs child. We were told so many negitive things to expect that we really didn't know which way to turn. But as I stated before we were blessed to know the right people. So When we were told that they were no 100% sure he was Downs??? Then while that was pending we were sent to have some test run because He was not eating and was turning a blueish color, things were not right. Lucky for us we had a Dr. in the Family and he sent us to a specialist who withing 20 mins had us results that Tyler was downs, and that he had a heart defect which was slowly killing him. Needless to say we fired our other Dr.'s and stayed with this group. This Dr. hugged me and told me as long as I treated him as I would if he did not have Downs, and love him just as would have loved him in any other condition things would fall into place. And they have until now. Tyler has attended regular public schools and we have main streamed him in regular classes. He plays golf, baseball, and basketball on regular teams with typical children who treat him no different than anyone else. The only delay that we have with Tyler that really hinders him is his speech. So he has a device which assest him in talking when he is in the class room. Things have worked out great. But now we are going to middle school. I have one school who will modify the class for Tyler so he can keep up. He will go to regular classes and have regular work, homework as the other students but modified to him needs. The only thing is that he will not know one person at this school. He will not know any of the teachers, just the principle. The other school he will be with children he has been in school with for the past 7 years, some longer because of pre-school but he will not have the same education as the other. He will have more classes for mentally challenged . I feel he will get very bored and loose interest in shcool. But he will know all the children and the teachers. I really want him to learn all he can learn and he loves school. He is a social butterfly, he is not shy at all. But not knowing anyone I just don't know how that will affect him. I'm scared for him but at the same time I'm proud that he has this oppurtinity to move forward and at least try. I just don't know what to do. I'm torn. Any suggestions???