Gluten- and Casein-free Diet

Jessica - posted on 06/02/2009 ( 11 moms have responded )

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My son has AS and I have been cooking Gluten- and Casein-free. I have seen some improvement. Has anyone else gone this route?

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Tami - posted on 01/25/2010

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Yes we are dealing with the exact same thing! Sometimes she will take a taste, but she will not eat anything new. With her SPD the sight of new foods can make her feel pretty yucky as she might not like the look of it, the smell, the texture, etc.



Her weight is good thank God, and she didn't like any liquid nutrition supplements as she won't drink any kind of milk. It can be in cereal (but not a lot), or she will eat ice cream, and cheese, but that is about it. And vitamins, forget about it, she won't chew a gummie, or eat a tablet. Maybe the liquid baby ones we could sneak in somewhere.



She packs everyday for school, and pretty much the same thing. And here is a child who won't eat pizza, or mac and cheese! It can be very frustrating:O(



One thing that works for us is hiding nutritional things in bread, cakes, and muffins, but we all have to find the time to bake:O)

Sue - posted on 01/24/2010

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Tammi, My gosh,,I KNOW !! Like how do we deal with this? all he has to do is see something new in the grocery cart and he's like "I'm not eating that you know", or "you can eat that but I'm not touching it"! The lastest kick is vinager on everything he eats... yuck.. Tonight he actually ate salmon (of course I told him it was "pink" tuna) but who knows if he will eat it the next time we have it. Itsnt it exasperating!

Tami - posted on 01/24/2010

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"I find it impossible to get my Aspie gr.son to eat regular foods let alone this restrictive diet. He is all about the taste of something or the texture, he literally likes maybe a dozen things. I dont know how you guys can get your children to eat a specific diet when/if they are so fussy about texture and taste"



Sue, my daughter and I are dealing with the same exact thing so she won't try the diet with my Granddaughter. She thinks she'll starve I guess! She eats LESS then 6 things and they are all in the milk and carbohydrate group. And she won't try anything new:O(

Sue - posted on 01/20/2010

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I find it impossible to get my Aspie gr.son to eat regular foods let alone this restrictive diet. He is all about the taste of something or the texture, he literally likes maybe a dozen things. I dont know how you guys can get your children to eat a specific diet when/if they are so fussy about texture and taste?

I just cant sit thru another meal with a child screaming , getting angry and agressive and having a melt down because he doesnt like what was cooked... the whole meal is ruined and we end up with knots in our stomachs so we cant even eat! If I introduce a new food he says I'm trying to kill him...lol

If I take a strong role and tell him that's what there is to eat, eat it or go hungry he gets worse! How do you do it ?

Kristie - posted on 01/01/2010

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We dont do the gfcf diet b/c I didnt really notice much of a difference with my son....but I did want to mention that I see significant & immediate reactions with High Fructose Corn Syrup. The reactions are big enough and immediate enough that even my 7 year old will recognize the behavior changes in my 10 yr old aspie if he accidentally gets ahold of some. He will look at his brother and say "I think Braden ate some High Fructose Corn Syrup" and I will look at what he ate and sure enough, it has HFCS on the label. He gets extremely hyper, impulsive and loses all self control. I also keep him away from dyes, preservatives, MSG, etc...

Helga - posted on 09/15/2009

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Thanks for the recipie-links. love it :) Good luck to everyone trying this method. My 11 year old son started this spring, was off the diet for a while to make sure it was the diet making his behavior change and is now back on it. And it's saving his life he says

Fiona - posted on 09/04/2009

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Wow...so great to find this forum and families trying to help with diet rather than medication (I didn't even know that AS kids could be medicated!). My Paediatrician, bless him, put me onto the 'failsafe diet' track as a first resort. I am still in the interim between assessment and disgnosis for my two sons aged 5 1/2 and 4.



Going gluten and dairy free has been such a revelation, particularly for my youngest child...after Day 11 of the 3 week strict diet...his language improved dramatically.



We have also eliminated some other foods that brought back the biligerent or meltdown behaviours. Tomatoes and preserved meats are out...and any additives...whether colour or flavour....even if they are natural (salicylates, amines and glutamates). I think food intollerances and their link to ASD cannot be underestimated.



You can check out the literature and recipe books at Food Intollerance Network and www.fedupwithfoodadditives.info

or 'Fed Up' by Sue Dengate www.fedup.com.au

or 'Friendly Foods' http://www.cs.nsw.gov.au/rpa/allergy/res...

or 'The Elimination Diet' http://www.cs.nsw.gov.au/rpa/allergy/res...



I am interested to hear more from you ladies and how you are going.



We are 9 weeks into the diet along with the challenges. Lots of 'hits' and 'misses' but I feel certain we are onto something BIG.



Fiona

Sandra - posted on 08/06/2009

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We need a supportive group for parents like us that have their child on diets. I need more recipes, would like to share mine, etc..

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My son is 5 and has asperger's/adhd. we put him on the gfcf and also soy free and the feingold diet, last December.Not all at once, it was a gradual thing. We've gotten amazing results from it. He's also doing B12 shots and supplements. He's so much happier and the anger is gone. Very little stimming and obsessions. I wouldn't go back for anything.

Sandra - posted on 06/16/2009

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We went Organic last week, no more milk, dairy products, gluten, casein. How long have you been doing this? It is quite expensive, but the good part about this is that we are cooking more and we are loving it. I really want this to work, my son has also a history of ADHD besides his Asperger Syndrome. I do not want medications to be an easy way out. I also want to change everything else, cleaning products, etc...



Sandra

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