What behaviors does your Aspie child exhibit that you find to be peculiar?

Karen - posted on 02/15/2009 ( 62 moms have responded )

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Hello Moms,



I find myself asking the same question over and over again, is this a normal behavior for a child with Asperger's? My son exhibits behaviors that I find rather bizzare. Often times, when we hear that this is a common characteristic of Aspie chldren, then it's almost like we can breathe a sigh of relief. I'd like to hear from other mothers who have teenagers with AS to share what they have observed with their own child. For example, my son has a fascination with batteries and removes them from all remote controls in the house. He also hoards food in his bedroom, and I find it hidden in the strangest places. Is this normal for an Aspie?



I look forward to hearing if you, too, are experiencing the same with your teen.



Karen

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Tina - posted on 05/30/2010

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Hi, I have an 11yr almost 12 and he smells his hands often and he is so into video game to where when I take them away he gets mad. I also have to repeat myself several times to get him to do a simple chore. I have noticed recently that he does every thing literally what you say and not more. I just find myself laughing at the things he said that are odd sounding to me .

Tina

Valerie - posted on 08/19/2009

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Wow. I am so glad i found this (thanks to my mom)! I have a 15 year old and a 7 year old. Both boys. The eldest was diagnosed with ADHD and movement disorder (Tics), and OCD at around 7 yrs. His kindergarten teacher started the process. My family has a history of OCD and his dad's (although noone will admit it) has a history of ADD. My husband was diagnosed around the same time as my son in fact. Well, needless to say, it has been an uphill battle for years. He is going into 10th grade soon (but according to his report card, he is still in 9th, good luck getting good info from the school before it actually starts) so I am really nervous. He has been to a neurologist who only wanted meds, as well as a psychiatrist who wanted the same and we had him on meds for years (adderall, paxil, Strattera, ridallin, etc). We started seeing a counselour who suggested asperger's. Well, the school hadn't heard of it, or didn't have enough info, so in 8th grade, we took him off of his meds at his request because he said he couldn't function properly. Well, his social skills improved and he actually joined a group this summer that had an interest of his that could be considered an obsession. He went every week and was really good at it. He was in band (9th grade)and was good at that too. He didn't like the marching and the heat, but he went. Then the school dropped him out of band b/c of his grades. He tried really hard to bring them up, but like some others have said, he has this problem with actually turning things in and remembering that something was assigned. We even tried online summer school , to no avail. So, then we move on to the youngest. This summer we met and they have "labeled" him as ASD (Asperger Syndrome Disorder). They are supposed to be helping him, so i have a little better outlook. We shall see. He is such a sweet child, but when there is an "issue", OMG, just let him go to his room until he is ready to come out, b/c he "inverts" and can not even talk. It is very frustrating. He rocks on the couch or jumps up and down when he is excited. He has very few interests, but the ones he has are obsessive. Right now, Cars, carwashes, monster(and/or haunted) houses are on the list. Tonight, he found a bag of cell phones i had intended to recycle and he has spent the entire night playing with them and asking about them, taking them apart and trying to "talk" to people. It is quite amusing! Like some other people have said, i always say I am NEVER bored in my house! Aggravated, embarrased at times, annoyed at the constant repitition, but NEVER bored! The one thing i have an issue with is the physical reactions my older one has with my younger. He has a hard time controlling himself when he gets mad b/c of the "quirks" which by all right the older one has also, but at the time, he has a hard time understanding what the younger one is feeling. Has anyone had any other issues like this? I have heard that people with Asperger's have had a hard time with the law b/c they seem like they don't care. I know the oldest cares, but he has a hard time showing it. I don't know what else to do with them. Ignoring it doesn't work, threatening with calling the cops doesn't work ( at least not past the day it is threatened). Please if anyone has any ideas, i would appreciate it. Thanks!

Francie - posted on 07/28/2010

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My 14 year old AS son takes apart the remote to remove the batteries - he takes apart just about everything in the house. If I leave pens in my purse he takes them apart and keeps the little spring that makes the ballpoint work. He has also taken every screw off of every light switch plate and electrical outlet cover in the house. When he was in 4th grade he tinkered with the screws in the drinking fountain at his school and managed to disassemble it - flooding the hallway in the process. He is simply incapable of keeping himself from tinkering with mechanical objects.

Leah - posted on 07/29/2009

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i completely relate to you my son starts kindergarten in a few weeks and it scares me to death he doesnt understand that not everyone is friendly and wants to be his friends...... People often look and stare and give me dirty looks like ive done something wrong usually I look at them and say you deal with 2 autisic children and so how you handle things.....And the personal space OMG that is a major issue with him as well... I am so glad to so your post Shelly because there was bits and pieces the other parents said but yours hits home I feel like Im not alone with the craziness.....

Julie - posted on 11/05/2010

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my kid isn't odd..she just has been hanging out with the wrong crowd..if we all lived on the same street no one would think twice about her wearing the same clothes on the same day of the week no matter what the weather is.
Or gathering "special" rocks. She also twists paper into lovely works of art and hoards it like Templeton the rat...She has no concept of modesty and will walk downstairs naked to get her beloved Alien-ware computer...she talks in strange dialects and often loads the pockets of her cargo shorts with tiny rubber animals...she only buys worn t shirts from goodwill or thrift stores ( they are soft) and sometimes will sit and watch all the James Bond Films in order but they must be in order and if she doesn't finish she has to start where she left off even if it a month later..she only eats ice cream with a special spoon..and if she doesn't know someones name she makes up a name for them. She will tell bizarre jokes that few people get...ex her teacher told her to quit being tardy she said " sorry I'll quit taking the Escher staircase" see if we were all neighbors we could sit on my back porch I'd pour us some wine pass some bruschetta and we would all laugh like crazy over our kidos

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Victoria - posted on 12/20/2012

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Iam so happy to see that im not alone I have 12yr old daughter with Aspergers and she does the samething i can clean her wall unit a nd within mins she has balled up papers old boxes not to mention she obsesses over teachers at her school it just goes on .I really need moms to chat with please fill me in on more info because the place i live is very limited

Michelle - posted on 08/30/2010

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sarah...maybe the food is a sensory thing...needing to feel full all the time? just a thought....these kids are awesome...lol!!

Celia - posted on 08/27/2010

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Hey Tami,
our wee men really do sound very very very similar. Your anecdotes are almost identical to mine.
The head hurts sometimes thinking about all this.

Kelly - posted on 08/26/2010

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@ Lisa, As for Captain Obvious I find my some does that quite often but you can see it in his eyes that he is processing what is going on around him.
My son always calls chicken, fish and fish, chicken. You have to shake your head in disbelief every so often and try not to laugh but they do say the funniest things.
I am lucky he has never horded food but will not give up his sisters old doll that he dressed as a boy when he was little. It still sits in his room like it is a long lost brother.
Playing battle games is the one thing that he wont stop doing. He wont kill anything anymore because he knows he isnt allowed to so he has lasers that can stun something or turn them into something else.
Enjoy them while you can. They give you great stories to tell in the future.

Tami - posted on 08/24/2010

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Celia, our lttle guy sounds pretty much like yours. Yes he is also fixated on trains, cars and trucks, and now Superheroes. He memorizes all his videos and CDs and he sings along with them and acts them out. He wants to hear the same ones over and over again and I can see what he's doing, he's memorizing them. Amazing to see.

He also lacks personal boundaries and he will get too close to family, friends, and even strangers. He can hurt you by accident if he is too close and he has done that to his cousin when he is for example swinging a toy in front of her.

He also wants to get too close to people at restaurants and he even wants to join them as if he is a part of their family! We try to sit away from other people when we are out to eat.

And he is also too trusting of people that he has just met. He gets attached way too fast so we have to be careful who we put around him because if that person for example no longer wants to be friends with us he would be heartbroken. And that has happened to us/him.

Put me in your circle of friends, maybe I can connect you to my daughter so you can both talk to each other.

Take care:O)

Michelle - posted on 08/23/2010

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lmao...have just been sitting here with my hubby reading some of these and man...how lucky are we...these kids are awesome...always look on the bright side....!!!

Celia - posted on 08/16/2010

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My wee man is 3.5 and has a total obsession with trains. TOTAL obsession. It's scary. Then there are the rocks. Oh and all the change from my wallet. But trains are the big ones. As long as he doesn't have to hear the darn thing toot it's horn. Then we have screaming. Oops.

He lacks personal space. He has no understanding whatsoever that people might NOT like to have things thrust up into their faces nor have him climb up on their knee without knowing him.

Yesterday he asked me if he could go and sit with some people a few tables away from us at a community 'do'. I said "No because we do not know them." His response... "but if I say hello to them then I will know them." Ahhhh geesh... nothing wrong with that logic there, yet still... so wrong.

One of the things I have done since he was very very very little is have very hard strict boundaries for him. Some people think I am a hard mummy or too strict on him, but it has just been so effective for us. We crack down on the unacceptable behaviour as soon as it happens (and yes that is thoroughly exhausting) and the routine for dealing with that behaviour is set in stone. Mummy is the boss. If he wants a positive response or (hmmm this is hard to explain) or wants to end the episode then he has to calm down. I will not tolerate him yelling or shouting at me, if he wants me to listen then he speaks politely and quietly. He is still allowed and encouraged to feel his feelings and to explain how he feels and if he wants to have a big discussion about it afterwards then we need to sit there and do that with him. But the BIGGEST thing that helps him is knowing that once the correction is over, he gets a hug and a kiss and it's over and done with. Anger or unhappiness towards him regarding his actions is let go as soon as we are finished. He still may have a consequence for his action, but all emotional reactions to it MUST cease once we have had that kiss and cuddle. He then feels secure and knows that he is loved and that everything is happy and alright now. We do this because otherwise he gets anxious. For years I got anxious after having an argument or fight with one of my parents, because I was so scared that the angry was going to continue on, that once I had fouled up it was going to snowball all day. I don't want that for my boy, not in the slightest, it's a horrible state of being.
I'm strict and hard, but oh so loving to that wee lad. His safety is of utmost priority to me, he thinks that everyone out there is a friend and I need to know that he will stop and listen to me at the drop of a hat just in case there is danger he is unaware of. Thankfully just little reminders every now and then help that along.
But it's hard. It's hard being so vigilant all the time and it's so exhausting. He would jump off a bridge if his mate told him too, he just trusts people so much.

I have to be so careful as to who I invite to visit at our house. He trusts my judgement totally and as far as he is concerned, anyone who I let into the house must be 100% safe. I took him with me to visit my friend at her house the other day. Now he is used to her coming to visit us at our place and is totally cool with her and adores her and her daughter. On Saturday at her house, he spent the first hour with a look of terror on his face. I had to be within sight at all times. Not sure what it was but suddenly it was all ok. Suddenly he felt totally at home and wandered around totally happy and at ease.

Excuse me whilst I just write a novel here. Sheesh. I think I might end my wee yarn here, after reading what everyone else wrote it's kinda just amazing not being the only one.

Thanks so much everyone, it's awesome seeing all your experiences.

Tami - posted on 08/14/2010

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Wendy, our little guy is obsessed with Walmart and Target. He wants to shop there all the time! Why I wonder?!

And he wants a new toy every day! It drives my poor daughter (his Mom) crazy!

And he has to watch the same DVD's over and over again. And he not only memorizes DVD's, CD's, and books, he can act them out!

For some books he lets me read his favorites, but then he stops me on certain pages and for example he asks to talk to Spiderman, or Batman, or The Joker, and he talks to them! Other times he has to be those characters and he adds his first name after their name!

I want to listen to some of my music in the car and he won't let me. I'm also not allowed to sing along with a song:O(

Tami - posted on 08/14/2010

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Our little guy sounds like yours too Shelly. I am so worried about preschool this Fall. He can go in to an agitated state so fast and it is hard to calm him back down. And when he is in that state he can say the most mean and awful things! And for 3 and a half his vocabulary is amazing so he can really think up some good things to say that are mean and awful. And when he is really in a major metldown he will try to physically hurt you, or he will smack himself in the head.

Why do some of the Aspies act like this? Does anyone know?

Tami - posted on 08/14/2010

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We have a little guy who sounds a lot like yours Leah. He's 3 and a half. He's my Grandson and I help my husband babysit him.

When he is frustrated look out! It is like an explosion, a volcanic eruption! It can be quite scary at times, especially for his 7 yr old cousin. And he can be sweet and loving to her and then something sets him off and he can then be so mean to her. And then he wants to hug, and kiss and make-up with her. And she is an Aspie too and by then she is also set off and she won't make up with him which then makes him feel worse. Geesh:O( Never a dull moment!

And he can't stand to have things scanned at stores, especially if he is holding it. He has screamed at cashiers and said some really awful things to some of them. And it's like how do we explain what's going on to them?

Thanks for all your posts, it's always good to know that other's know how we feel and what we're going through:O)

Julie - posted on 07/29/2010

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Lets see we too have had the hoarding,melt downs, the twisting of paper into tiny art projects, collections of clothing tags, chewing pens, etc... eating only one food for a week...needing her special stool in the bathroom...wearing the same clothes on the same day...oh and she is 12 and models for Justice Girls and Teen magazine and has performed standup comedy for her school talent show sooooo they can do amazing things

Tami - posted on 06/11/2010

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My Grandson is a lot like your 3 yr old Jackie. Anything with wheels, also now Super Heroes and yes he can also tell when something is out place.

Jackie - posted on 05/24/2010

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Aspies focus on one thing and thats what they go after. My son is anything with wheels. Hes only 3 but I noticed that yes he does it too. He has OCD tendencies too. He lines all his cars up in a straight line or front bumpers in a straight line. I've moved one when he wasnt looking and he noticed right away and moved them right back.

Sarah - posted on 04/17/2010

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I'm so glad I've found a place where I can be honest about my son behaves and people understand me! Gabe is 4 and was diagnosed about 6 months ago. He hoardes pennies. He'll stop in the middle of a parking lot to pick them up. He goes through my purse at the end of the night and empties my wallet of the change. He also has a problem with food. He says he's hungry all the time. He can eat a big meal and immediately turn around and say he's hungry. He wants food every time he sees someone else with food too. Can anyone give me some advice about this? He's not overweight and he's very active but he wants to eat all the time. He also lacks "social filter" as my husband says. He is very literal and says whatever is on his mind. Some people think he's rude but he's just honest and upfront about things. I love some his little AS quirks. He has the ability to see the beauty and wonder in everything. He asks questions about everything. We're learning to deal with his behaviors every day. I love being his mommy!

Elaine - posted on 04/08/2010

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My son loves science, the weather, space, he can rattle off facts like you wouldn't (or maybe would) beleive. He has an amazing memory, he can tell you what the weather was like on a day in the distant past and tell you the day of the week! I think he is a genius! I also encourage him to read about these topics, he has every book on the weather, volcanos, hurricanes, space, etc. He also loves maps and knows geography so well, just ask him where someplace is, and he'll show you. It has been difficult with his outburts and talking back or being rude, His 2 year old sister is learning from him that this behavior is okay. I'm trying to figure out how to handle this, I should try the role playing...He is going to be 11 and has learned so much more than I anticipated when first learning he had Autism/Asperger's, for the mom's going through the rough spots, it does get better :)

Lilla - posted on 04/08/2010

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I have 3 boys, all in the Aspergers/autism spectrum, 21,15, 8. They are all clearly very different, but one of the things that has helped with all three is role playing. I include their sisters and friends so they will have input from people their age. We come up with situation they do face or will face like in school, and act it out with someone else playing their part and maybe them acting out a different part. We go over it several times changing parts, trying to give them more than one solution. It helps them know what to expect. We also have told them their brain functions differently then most other people, never bad or something wrong with them, just different.
We also have an emoticon poster that we go and show them what their face is like and/or what our, or a friends face is like. It has helped them identify to a small degree how to read peoples emotions/reactions.
We also 'help' them with their collections. They have all horded a variety of things, we pick something in their collection that is fun or appropriate and help them get more on the same subject. For example: My oldest had a collection he had gotten from the bottom of moving boxes (car with no wheels, pile of lint, broken dinosaur, bits of wrapping paper, broken toys....) and lots of candy wrappers. We helped him get a car, every time we went to the store, for his 'collection'. I also sat down with him and we talked about how toys that are broken can hurt you and they are not as much fun to play with. Pretty soon most of the other stuff disappeared. He still has most of his car collection.
I hope this helps.

Elaine - posted on 04/05/2010

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My son is 11 and he has had his stuffed Eeyore since he was 2. He still has it, but it is slowly disinegrating. He too loves to rub it's the one ear that's left and he also loves to smell it. I figure the more I wash it in the laundy, the less of Eeyore that will survive. I was hoping he would grow out of it, but not as yet. It is a source of comfort for him, but he is not aloud to have it in public, only at home or in the car. I told he Eeyore is to special to be lost, so we should keep him home where he is safe. He'll probably still be caring around the shreds in his pocket when he is older.....I was going to try giving him a special rock to rub when he needs to, in place of Eeyore. We'll see how that goes!

Faith - posted on 03/28/2010

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my aspie son, brad, is 12... In my experiences I found it easier to cope with his "peculiarties" by encouraging them... when he went through the rock collecting phase I bought him a geology book and he would happily sit in the yard identifying all the rocks he brought home... he also is a "little professor" and has to know the scientific reason and name for everything... I make him google most of his questions and he will sit contently on the computer learning all he can about the questions of the day. It isn't uncommon for me to come home from work and find all the baking soda and vinegar bottles empty... batteries all over the house, screws that came from who-knows-what on the floor. His only food obsession is peanut butter... I swear the child would only eat that if I let him. I rarely can get him to read a novel but give him an auto manual or an instruction booklet and he's content for hours!! I've bought him chemistry sets, rock tumblers, crystal growing kits, car models .... encourage all that your little aspie shows an interest in! It may be a little quirk to us but it could be their outlet!!!

Tami - posted on 02/07/2010

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Oh for those of you who posted about Kindergarten we have gone through that. She was tested and she was found to have 3 disabilities, all right brain neurological ones.



They set up meetings before school started. She was allowed to meet the teacher in advance (and we asked for a teacher with a patient, kind demeanor and the teacher was brought in to the process before school started) and to get visually acquainted with what was in her classroom. They also gave her a tour of the school, and for 1st grade she practiced the lunchroom before school started.



Our meeting took place without her, and they were with her teacher, the principal, the school psychologist, and the guidance counselor. There was quite a full table of us!



We gave them copies of all of her paperwork, from the OT therapist, the Peds developmental specialist, her docotor's group, etc. We went over all of it together.

She now has an IEP, but we were turned down for an aide to go with her to the playground and to the lunchroom. They wanted to see how she would do without one and they watched her for 2 weeks and then reevaluated.



She has been doing better then we expected. Her Kindergarten teacher was wonderful and that was a big key to the success she had. She needed potty break reminders, she had accidents here and there more toward the end of the day so we changed her at home.



She didn't really need her noise cancelling headphones too much, and then we switched to custom fitted earplugs and she rarely needs them. She has comfort items with her at school to help regulate her if she has a meltdown, or needs to take a break. So there is a process to bring her back to focus in class, back on task.



She is half way through 1st grade now. She still needs potty reminders, and she still has some accidents if she doesn't go at least twice, AM and PM. She is making friends but she has not been invited to very many playdates, or birthday parties. We work hard at inviting her school friends on playdates, and to her bday party. She has a best friend since she was about 3.



My background is teachers aide and one of my old elem.school friends does IEP's as her careeer. If anyone needs our help, let me know.



Good luck:O)

Tami - posted on 02/07/2010

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Wow I see pretty many similarities in all of your posts. Our 7 yr Aspie is getting better with her meltdowns (the worse was 2-3 yrs old), when frustrated though she will shout out things that take the situation to the extreme, like well I guess I should just throw (fill in the blanks) it away, it is almost impossible to discipline her because if she thinks that any of us are even the slightest bit mad/upset with her she will, run and hide, throw things, think that we hate her, etc. Time outs will NOT work with these kids IMO.

She used to repeat things all the time, I used to say that "her record was skipping", it was like her brain was stuck so we would have to figure out how to get her "unstuck". She is doing better with that now that she is 7.

She doesn't hoard anything but definately leans towards BOOKS and reading. She is your typical Aspie professor and she is 7 and reading Harry Potter already, her reading level is way up there, and her memory (photographic memory?) is unbelievable, she retains everything.

I agree about the personal space thing. You can't invade hers too much, but she doesn't understand to not get too close to her peers. She takes words "literally" and she doesn't understand is it metaphors? Like you can say the cat is out of the bag, and she will say where's the cat, what bag? Hmm, I wish I could think of other examples.

When she experiences pain, discomfort, or an illness it is on such a higher level, but then she has SPD also. So even a slight sore throat feels to her like she can't swallow.
She had the H1N1 virus before Pa got the vaccine, wow was she scared!

When she is frustrated she can shout out the meanest things to her family and her best friends. Board games and video games trigger that a lot. She wants to "win" at everything so taking her for example bowling can lead to a major meltdown. It is sad to see her at times not being able to enjoy things that other kids do, like those examples.
Places that are too noisy, and crowded overwhelm her, but yet she wants to be at a places like Chuckie Cheese, McDonalds playland.

It was good to read all of what you said, it's nice to know that we aren't alone.

Terri - posted on 01/28/2010

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i am SO glad to have found this group! i've read many of y'alls posts and had to share most of them w/ my husband because so many sounded so familiar! my son is 7 yrs old and has not yet been diagnosed (we have an appt Feb 17th) but i've had several people, such as teachers, our pediatrician, and his recent psychologist, suggest that we have him tested because he exhibits so many of the symptoms. his current psychologist has already said he fully expects we will get the diagnosis. most people don't realize my son is any different unless they spend a bit of time w/ him. he has many lil quirks such only eating very specific foods, only wearing specific clothes, obsessions w/ specific toys, games, and tv shows. my son is very literal and does not understand sarcasm at all and often doesn't understand even simple jokes. doing knock knock jokes w/ him can be quite challenging! lol. Zavier thinks everyone is his friend and does not understand personal space or many social cues. he is very conscious of manners (at least in others) and will let you know real quick if he perceives your words or actions to be rude or mean.

VERY unfortunately, almost 3 yrs ago, my son came across an adult movie in a bag of VHS tapes that was given to us by a family member. he still mentions it often and has exhibited some sexual misconduct on several occasions since. we have explained to him several times that the behavior is inappropriate and unacceptable, but that hasn't deterred him and he in fact seems to have quite an obsession w/ certain body parts. he's also rather obsessed w/ his own bodily functions and usually announces when he passes gas or burps, no matter where we are. he will also make inappropriate comments about his or other people's body parts in public and does not understand that it's inappropriate.

about a yr and a half ago my son was diagnosed w/ ADHD and put on medication. just a couple months ago he was also diagnosed w/ Sensory Processing Disorder. even when he's on his meds he is still very tactile and sensory seeking. at school he will often make odd little noises to himself if the classroom is quiet and seems to need constant movement. when not on his meds he will turn in circles or make rhythmic motions w/ his hands when talking. about the only time he is still or quiet is when he's playing a video games, but i've noticed even then he prefers to chew gum or make constant little movements w/ his lips and tongue. i'm still learning about AS as well as the processing disorders so i'm not sure how much of this is a symptom of those disorders and how much is either a symptom of ADHD or simply normal behavior for a boy his age.

Za has been obsessed w/ superheroes pretty much since he was a toddler, and his current obsession is Ben 10 Aliens. he can recite absolutely everything about every single alien. i made the mistake once of agreeing to let him tell me about them all, not realizing that there are so many it was going to be a 3 HOUR recitation, which even his therapy and grocery shopping couldn't interrupt. once he has begun saying something, he has a compulsion to finish whatever he is saying, no matter what is going on around him.

unfortunately he also has a very hard time distinguishing between make believe and reality, so he thinks the superheroes he worships are real. he apparently saw a cartoon or tv show where a kid wished on a star to be a super hero and had his wish granted, so he is convinced that if he can ever manage to see and wish on a shooting star then he too can have super hero powers, and he refuses to be dissuaded from that notion.

i was fortunate enough to have met and married a wonderful man a couple years ago who loves my kids, and especially my son, like his own and who has been amazingly understanding of my son's issues. my husband's understanding is made more important to me by the fact that my son's bio dad does not agree w/ me that there is something wrong w/ our son. he seems to think if i had just disciplined our son more severely when he was younger or worked w/ him more on his speech problems then he wouldn't be having these issues. in fact, he so strongly disagrees w/ me, that he has chosen to relinquish his parental rights and allow my husband to adopt my son. i suppose i should be happy about that considering, and maybe if my son were younger i would be, but i'm actually very angry and hurt on my son's behalf because he has actually had a relationship w/ his father the last 7 years of his life and his father has provided quite a bit of financial support, which will also stop when he signs over his rights.

in spite of the many difficulties in raising my son, my husband and i, as well as the family members who know him best, all think he is an amazing kid! he is very loving and caring and never fails to make us laugh! we also have two teen daughters, both w/ ADHD, and a 9 month old baby who we're having tested for cystic fibrosis. our lives are amazingly busy and stressful...but certainly never boring and we seem to learn something new from our kids every day!

Sue - posted on 11/16/2009

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There is a saying, something to the effect "that one can take comfort in numbers". I feel like that right now. My grandson is 8 and has AS, I was told that its very common for AS ppl to have OCD andor ODD . So I'm not surprised by the amount of children listed here who have hording issues or compulsions.

My gr/son has a thing with paper, rips pages out of his notebooks and stuffs the papeer in his nite table drawers. He also likes containers,tin can, boxes and gets obsessive about certain toys. One yr it was weebles,the next yr dinosaurs,then trains, then pokemon,now its starwars lego.

He can tell you everything there is to know about all these toys and will only like one certain type of toy for the whole time, he wont play with anything else but that specific toy.

When he was two he could whistle tunes like nothing I had ever heard before and it shocked everyone we came across in stores. They would look at me and say "how old is he", when I told them they would just stare in wonder.

He doesnt like to give up anything so to keep the hoarding down I take pictures of an item, post it on a local "for sale" website and sell it. He likes the money he gets so he can go out and buy something new,,but then later gets upset that his old toy is gone, so I print out a picture of it and give it to him. It keeps him calm.

Discessions are very hard for him, in stores it may take us over an hour of picking one thing out, going back and trading it for another, get half way up the isle and he wants to go back again, so on and so forth.. now that he is older I set a time limit, when the alarm on my watch goes off he knows its time to leave and most of the time he adbides by it. I have found that not giving him options at home is the best thing for a smooth living arrangement.

He doesnt have an obsession about food, but he repeats things over and over like I cant hear him. Even if I repeat back to him what he has said. This can be a clue that a meltdown is about to happen so I distract him (when possible) to avoid the meltdown and the repeating stops. This all seems to be stress related for him.

I must say that life is never boaring with him and I learn something new every day...

Robin - posted on 11/03/2009

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I have been reading everyones posts, and my son is alot like all of your children! He hoards the strangest things, and he is obsessed with several different things, trains is his absolute favorite. He puts just about everything in his mouth, he licks his fingers and wipes them on his face, hands legs, or arms constantly... which grosses me out! He makes the most annoying, repetetive noises or sounds while he is playing with his toys. He is a sweet little boy, but some of his behaviours can be so embarassing. He is definately a quirky kid. My favorite thing he does is when he just starts dancing out in public whether there is music or not. He looks like Elaine from Seinfeld. It is hysterical. It brings a smile to everyones face, as well as laughter all around!

Wendy - posted on 08/15/2009

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My son (3 yrs) asks obvious questions ALL the time and needs to know where things are purchased from and if you dont tell him Walmart or Target he wants to know why it wasnt purchased from there and gets upset!!! He also has had the same DVD on constant repeat play for several months!! He is also obsessed with wanting to know scientific names for insects and dinosaurs!!

Monika - posted on 08/07/2009

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we have been finding poptart crumbs in Isaiah room and the paper when asked about them he has no idea who put them there. we also cought him sneeking other food to his room.as for rocks he has over two hundred different ones that he keeps in a jar at our up north home. we can NOT watch any tv show that have to do with medical issues cuz he (we) will have a hard time going to bed. he will think he is going to die or that is going to happen to him

Francie - posted on 08/03/2009

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It's comforting to know that other people have children as quirky as mine. My 13-year old with AS has done many of the things noted here - from taking batteries out of the remote to sneaking/hording food. He also has a habit of repeating factoids from Popular Science Magazine over and over. His specialty, however, is removing the screws from the covers of light switches, electrical outlets and air conditioning vents. We don't have an outlet in the house being held on with more than a single screw at this point! LOL

Monika - posted on 08/03/2009

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It's so nice to hear that my husband an I are not alone My question is is anyone child on meds? and if so do they help Isaiah doctor that found out he has AS says he does not qullify for it and that a syc doctor needs to see him Monika

Sheri - posted on 08/01/2009

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My son is 13. He constantly repeats things and unfortunately he is now in puberty and his new obsession is vulgar language and his changing body parts. He has no inhibitions and it drives me crazy. Any help?

Shelly - posted on 07/29/2009

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Leah-I am relieved to hear that someone knows what I am going through. I've never really cared what people think of me, but when it comes to parenting, that's hard. You have people looking at you and your child who should be old enough to behave, but mentally cannot do so. It's just scary to know that this is something that he won't grow out of. I can't help but want to just keep him home and home school him, but I know that is not the right decision. He has to learn to be around other children. I know what the future is holding in some aspects because at such a young age, he acts like his father (who is bipolar) and I am just hoping that raising him differently than his father was is going to help in the long run. Right now the only thing I can do is love him and talk to other people who are going through this and learn.

Shelly - posted on 07/28/2009

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wow. I always knew there was something wrong with my son. For almost two years I have been trying to get answers and last Friday I did. He is so much like what you all have described about your own children. He is only 5. He loves Mustangs, which I figured was because my brother has them. But Leah's posts are the most like my son. He is so sweet and loving but he just flips for no reason and it is scary. He will be in kindergarten next month and I am worried about how the other kids will treat him. I took him out of preschool because I couldn't handle that the other kids didn't really like him. He didn't notice though, he was completely naive. Personal space has no meaning to him. I'm just wondering what sort of things are coming.

Leah - posted on 07/28/2009

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Thats exactly what my son does.. He is a very affectionate kid but when he gets frustrated he basically goes insane almost... I worry about his wellbeing as well as his sisters who are afraid of him and are 3 and 4 yrs older than him....After its all over he tells us he's sorry and he just wants to be good and won't stop hugging us... He is like 2 different kids when its going on... Our problems are mainly when he doesnt feel like he has my attention when he wants it and when we are around alot of people.. So he and I stay home alot where his sister go do things with other family members because they dont know how to deal with him.....

Tracy - posted on 07/27/2009

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Leah, I have a son who gets very frustrated at situations and will just start to scream at those around him. Then, he is so embarrassed and exhausted after trying to calm down.

Tina - posted on 07/25/2009

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My child has a habits of sticking things in his mouth. He also sniffs his fingers regularly . He also will pick at anything to make it look worse and you never know he has done it until you start cleaning around it. I feel better after reading the comment everyone has made. I feel like I am not alone anymore trying to raise an AS child.

Leah - posted on 07/23/2009

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thats so funny.. my son will repeat stuff over and over again like i never heard him I just have to laugh and he is also obessed with food.. You would think I starved the kid..lol my question is though does any of your kids have scarey actions?

[deleted account]

My 5 year old is obsessed with vacuum cleaners, mops, and cleaning products. He will stand in Wal-mart for an hour and look at the Oxy-Clean and Lysol. He can quote every commercial on TV and he makes me record the 30 minute infomercials about steam vacuums and swivel sweepers. LOL

Laurie - posted on 06/20/2009

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Hi! I can so relate. My 16 yr old son has the hoarding down pat... we say he's never met a piece of garbage he didn't like ;) He also can't stop when it comes to his favorite junk foods, he needs to eat or drink it until it's gone - we have had to lock things up to stop him from doing this. As far as the school work goes... here we have a wonderful setup where parents can look online to see what work is turned in or not and have to stay on top of him. He figures when class stops, the work stops... no homework... or if he's done it, then he's done it - no need to turn it in. So many quirks, so many laughs - if you can't laugh you'll neve make it ;)

Maria - posted on 06/16/2009

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I reckon all three of my kids have Aspergers, it runs in the family, their Dad shows traits of it and their uncle has more serious traits of it.

My youngest has demonstrated severe meltdowns since being a toddler and it has taken me years to learn how to handle her, she also hoards everything possible in her room. I once found a 4 mth old birthday cake belonged to my son that she hid in a closet and like the lady below I discovered she had mice in her bedside locker that she was feeding.....arghhhh.......she rips up paper non stop and I find it in drawers and cupboards everywhere....



my other daughter can't stand people all talking loudly at once around her and gets distressed....can be a problem sometimes for her in school.



My son is totally addicted to electronic games of any kind and if he is asked to do something he will do what is asked literally of him without completing a task fully...He also needs to be spoken to many times before he starts to actually understand that he is being spoken to.....His conversations are mostly always about his games. He has very set ideas of how things are to be done and gets really upset emotionally if not done that way, even at 15.



The good news is that they are all high achievers academically and their social skills are not bad either.......I'd put them on the upper scale of Aspergers......

but now that they are all teens they are blooming challenging to raise....I have tried talking to others about this and I have found that I am dismissed and told to be stricter with my children.......now that frustrates me even more.....

Fay - posted on 05/11/2009

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my son is 10 in July he hoards food all the time and one of the strangest things he does is sniff his hands all the time to check they dont need washing (which he does frequently!!!) and collects stones which we normally discover AS there going round in the washing machine :-( !!!

Helen - posted on 05/01/2009

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My son is 12 and he still has to have this stuffed webkins cat that he has had forever and carries it everywhere with him in the house and sleeps with it. He is always putting it up to his nose and sniffing it!! When the school bus comes and I walk him to the door he gives his cat one last good sniff and then goes out to the bus LOL, it cracks me up!!!! He also sleeps on top of a sleeping bag in his bed. He useto sleep in the bag but now just sleeps on top of it, I thing he likes the texture of it.

[deleted account]

I have an 11-yr old son, and he does hoard and steal food. I find pieces of bread in his room all the time, as well as packages of string cheese that went thru the washing machine, because I neglected to check his pockets first, before doing laundry.

Another odd thing he does: He collects rocks and keeps them in egg cartons in his room. To me, these look like everyday common rocks, nothing special about them, not even pretty or unusual. The bottom of his closet floor has dozens and dozens of cartons!! And heaven help you, if you throw one away! One day I tossed one out in the flower bed because it was lying around, and I heard about it!! ("Mom, I would really appreciate it if you did not throw away my rocks anymore")

Also I do not clean his room without him helping, as he gets upset with me. He has things on his shelves "in the right order" (??whatever that is??) and he does not want them disturbed.
Cheryll

Sasha - posted on 04/19/2009

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Well, on that one, Jennifer, god must have had an off day when he kids all these little holes to shove things in. It was just asking for trouble!!!lol

Jennifer - posted on 04/18/2009

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Hi, My son is 5 and he has to put things in his ears and up his nose! The last time he did this we had to go to the ER and they took out of his ear poopoo potty paper ! I hope this will soon be over soon :) lol it is usualy some kind of food !

Sasha - posted on 04/14/2009

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i took my daughter to her school disco a few days ago. a load of mums were talking about how much harder girls were to raise to boys because they talk more etc, and i just stood there thinking about how relaxing it is to be with my chatterbox 8 yr old girl after having to explain to my son for the thirtyth time that he won't get a mark for his coursework if he doesn't hand it in even is he has done it. In 'alec world' once he's done it, it's all finished with and he gets full marks from the ether

Heather - posted on 04/14/2009

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My son is the opposite he will have dinner in front of him and he will be starring blankly at it the look up and ask what is for dinner and when we say what it is and that it is in front of he he looks at it like it just magically appeared. He will out of the blue name off the scientific name for various body parts when we are in public and well it should be a blushing moment we look at whoever he focused it at and say well I guess he decided to be a doctor this week and smile and walk away. We have gotten quite a few laughs over this one.* Cracks up remembering him stating that the grocery clerk had a vulva, and he didn't have one because he is the male of his species....Life is deff. more fun with an Aspy!

Lisa - posted on 03/31/2009

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Does anyone else's child constantly state the obvious....as a question...all the time?  Like he sits down at the table  "oh, we're having ham, I take it"  Or he'll come in and see someone on the computer.."are you working on the computer?"  Stuff like that.  Kids call him captain obvious.

Sasha - posted on 03/31/2009

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i think if the world needs you badly enough it will call you back. Untill then, might as well roll with it lol

Michelle - posted on 03/30/2009

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sanity is waaayyy over rated, you can live quite happily without it...!

Michelle - posted on 03/29/2009

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omg...no way are you alone in that one, sascha!!! do you remember when steve erwin the crocodile guy died? my son nate...every time he remembers that steve erwin died, its like he has just been told and he is devastated every time it happens....he just sits there saying its all my fault, its all my fault.....he is just beside himself! although, funnily enough when it was put on the news about him dying, nate was actually in and out of conciousness because he was really really sick in hospital with meningitis....he didn't find out about it till weeks later but was still super upset about it, still is years later...! he often does that though, if he remembers something that really upset him, he will start crying and its like whatever it was has just happened all over again....doesn't really seem to matter how much time has passed either! gotta laugh, hey.....?

Sasha - posted on 03/25/2009

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am I the only one who's child only remembers things when he is in the same state of mind he was in when it happened? I feel like a looped recording right now saying the same things over and over. Oh well, come WAY to far to give up now.

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