Just Checking In..

[deleted account] ( 11 moms have responded )

Hi Everyone! Good to see all of you and it is great that we are growing in numbers. It is so hard to talk to others that are not in our positions, because try as they might, they just don't understand what we go through. I myself am pretty sick of my daughter and her crappy attitude lately. I know part of it is just being a "typical teenager", but there is that other part that gets out of control that I can't handle some days. Today we go to her psychiatrist, I am a little anxious because the last time we were there he told us he could not treat my daughter due to her "major issues", one being taking medication, and he recommended intensive outpatient treatment. Due to my location, my son's school schedule, no babysitter and money issues, that is not an option for us at this time, so I called him back and explained the situation, and asked if he would consider either seeing her again, or referring us elsewhere. He agreed to see her today, but I don't know if it is a last visit, or what. On top of that, her eating is getting out of control again. She began compulsive eating after she started taking Risperadol several years ago, and she has never really stopped. It goes in periods where it is bad, then not so much. Right now I have to keep the pantries, and fridge locked. I hate it, but she refuses to make good food choices, even tho I keep healthy food. She had ice cream for breakfast yesterday while I took her brother to the bus stop! I swear, it is always something. Anyway, I hope you will all keep posting and chatting with each other. I look forward to hearing your stories and thoughts.

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Margaret - posted on 04/16/2009

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that is good news I hope it is a significant enough break to get on top of it all again

Sandra - posted on 04/16/2009

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This week has been a little better. The doctor reduced the Seroquel from 400 to 300 mg. It will not stay this way I know, but for now it is okay.

[deleted account]

My daughter developed a compulsive eating habit while she was on risperadol and depekote. She is now on Topomax which is used for controlling appetite, amoung other things. Since being on it her appetite has decreased and she does not like things that have alot of sugar because the topomax makes them taste funny. Perhaps that could be an alternative to what your grandson is taking now. By the way, my daughter also takes seroquel, but with the topomax things seem to be in control. At least for now. And please, vent any time. We are all going thru some of the same things you are dealing with... that's why we are here.

Margaret - posted on 04/09/2009

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the doc did the same to my  partner in the end it was causng psychosis and the still still tried upping the dose so we found a new doctor

Sandra - posted on 04/09/2009

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Thanks for replying!!! I thought it was the seroquel, but for the past 3 or 4 months after explaining about the aggression, (breaking of all kinds of things), and the eating the doctor just ups the amount of seroquel he is taking. I will try to get the doctor to put both the boys on something else on Monday. A blood test was done today for sugar level, cholesterol, and triglycerides. Should have the results on Monday. Thanks again.

Margaret - posted on 04/08/2009

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the increased appetite is a side effect of seroquel and possibly the zoloft, they should be regularly checking his blood sugar amongst other screening tests for type II diabetes and liver function.



my partner became quite agresive on seroquel when put on it in conjunction with increased anxety from an antidepressant, it may be worth having the doctors take another look at his little med combo

Sandra - posted on 04/08/2009

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I am a grandmother raising a bipolar, ADHD grandson who is 14. He is also on alot of meds. Vyvanse, Zoloft, Seroquel, and Lamictal! He takes alot of mgs of each and still wakes up before me and hits the kitchen. He has pizza most mornings and will sleep walk to get food. When he is confronted and sent back to bed he gets very irratated and starts his crappy and loud talking. He hates school and has learning disabilities that interfer also.  I tried the locking of the cabinets and fridge but of course then he gets aggressive. Does anyone have any suggestions? He goes to a counselor and a psychiatrist. Thanks for allowing me to vent a little. It does help just to be able to talk to someone who understands.

Margaret - posted on 04/05/2009

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she is the founders sister and daugher the family opened the group following her death 2 years ago last week was the second anniversary of her death there are links on the homepage containing posts with the full story

[deleted account]

Hi and thanks for posting! First, Margaret, no I do not know who Amy is. I used the ribbon because I wanted something identifiable to bipolar, and this is all I found. I believe I might have heard that she was the founder's sister who was diagnosed as bipolar, but don't quote me.

Cheryl,

I live in Ca, and so far the state has not been helpful in finding/getting services for Emily. I was so desperate at 2 different times I even contacted CPS!! They couldn't even help! Right now Emily takes her medicine in front of me whenever she takes it because we can't trust her. She takes quite a combo, Abilify, Lithium, Seroquel, Clonidine, and Topomax. She has been on so many different meds, I often worry there will be no more if these become ineffective. She too developed a compulsive eating habit, and we have had to lock our fridge and cupboards. It's always something tho.

Cheryl - posted on 04/04/2009

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How did you make out with the psychiatrist? If there is an issue with her taking her medications can you administer her meds to her? I am thrilled this group is growing. I think there are members on other groups here and those groups just are not as active as this one is. Do you have your daughter on medical assistance? I am sorry but I don't remember where you live. I am in Bensalem, Pennsylvania, USA and I had to put Heather on medical assistance to cover the services she needs. Heather has gone through periods of compulsive eating as well. Luckily her grandfather is here and can try to monitor what she eats. Also as she is the only child at home right now we can simply change the things we buy as snacks from sweets to fruits and vegetables. I know you cannot deny your son things because of his sister though.

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