Feeding tubes?

Darla - posted on 01/22/2010

we had the G tube. and i hated it. we would go out and people would stare, then it would fall out, had to have emergency surgery then 3 weeks later it fell out again. we were teaching him how to drink from a bottle since he didnt know how to, we would cut the nipple because the haberman bottles were so expensive. plus feeding through the Gbutton he would vomit all the time so he wasnt getting the proper nutrition he needed. just keep your head up and things will get better. im just shocked that people of today still stop and stare...

Dora - posted on 01/15/2010

My son has a g-tube due to weight issues. He began to have an oral stimulation issue after his lip surgery and does not want to take anything by mouth. He is currently on g-tube 100% of the time. Occupational therapy is trying to get him to taste, but he does not like anything touching his mouth. Only thing he puts in mouth is hand or pacifier. This has been a great challenge, but without the g-tube it would be harder to feed. I'm praying he will one day feed so we can get this tube out. He also pulled it out recently, my husband and I got a new one in! Scary, but pretty easy!

Susan - posted on 03/19/2009

Its funny that you say that. When my daughter had her first lip surgery at 10months she didn't take to the straw bottle they had for her to use. So we decided to keep the feeding tube in-even though at this point we rarely use it-for when she can't eat any other way. Plus, after the first lip surgery she stopped eating solids for a month or two.

Now we are scheduled for her lip adhesion and rhinoplasty on April 28. And hopefully she will gain more weight and have her first palate surgery before August.

Laura - posted on 03/18/2009

Hello my daughter is 8 mths old now & is still on a ng tube. She was born with a cleft palate has still not been repaired as yet as she has a heart defect (hole in the heart) so it's been put on hold. trying to feed her solids but is not taking very well to it (keeps coughing & bein sick). Is there any reason they're keepin your little girl on the tube for so long?? Weve been encouraged by our cleft team to keep persisting wiv the feeding as they arent goin 2 operate til she's of the tube!!

Susan - posted on 03/05/2009

It was a wide cleft, she almost doesn't have any roof to her mouth. When they closed her lip the two ends of her palate are finally touching.

The reason she got one is because she wasn't gaining weight fast enough. NOw she is almost 17lbs. Still not past the 10% but at least she is still gaining.

Maria - posted on 03/04/2009

what kind of cleft was she born with, was it severe?