Ellen - posted on 12/31/2009 ( 4 moms have responded )
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My 4 year old daughter was born with a soft palate cleft. It was successfully repaired at 7 months and we haven't had any other issues with it. Now her Orthodontist is saying that she will probably need to have her jaw widened using appliances or worst case scenario surgery. I was just wondering if anyone else has a child that had to go through this and what I should expect?
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Michelle - posted on 03/06/2011
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My Daughter was born with cleft of the soft secondary palate had it repaired at 7months also (now 3 1/2yrs old)....they have talked about a palate widener...nt sure what it is but we have another visit t the orth in 6 months....will be praying for you and your family.
Teresa@MiCleft - posted on 02/19/2011
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My six year old son was born with such a wide cleft palate that his surgeons refer to his dx as not having a maxilla.
He has been wearing a form of the device you speak of...his is a Helix. It is much less invasive that the distractions and we have the same objective - to expand his palate/maxilla in preparation of a successful bone graft this summer. I hope this helps; I'd be glad to answer anything that I can be of assistance with - I'm an RN, mom, State of MI Dept of Community Health advisory board committee member - and President of an IRS tax-exempt support organization. Maybe we can learn more together! Teresa@MiCleft.org
April - posted on 11/02/2010
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My daughter was born with pierre-robin syndrome.She had a recessed chin and cleft palate.She had to have surgery for her chin to bring it out when she was 20 days old so she could breath and eat
Jenna - posted on 01/11/2010
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My daughter had jaw distraction surgery at 13 months old. I don't know if that is the same as what your daughter is facing. The surgeons broke her jaw, wired it with screws and opened the space 9mm. It was 12 days in the PICU and then she was fine.
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