All Communities > Moms of Kids with Clefts > my daughter was born with Pierre-Robin Syndrome

my daughter was born with Pierre-Robin Syndrome

April - posted on 11/02/2010 ( 3 moms have responded )

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Hi I'm April my daughter was born with Pierre-Robin Syndrome.I'm looking for other moms that have children that has had that. My daughter was 20 days old when she had her surgery to fix her chin and was 9 months old when she had surgery to fix her cleft palate.
Thanks: April

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Teresa@MiCleft - posted on 02/19/2011

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Are you in the UK? I'm in Detroit Michigan, USA.

Sarah - posted on 02/12/2011

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hiya my name is sarah both my children had pierre robin my son whos nearly 5 had it worse wiv breathin probs and my daughter who 1 didnt have it as bad.. both also had cleft palates but this runs in our family as quite a few of us have had clefts. where bouts r u from i live in stoke-on-trent.xx

Teresa@MiCleft - posted on 11/15/2010

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Hi April!
I'm new to this group, my name is Teresa. My youngest son was not born with PRS, however, I have many friends with children that do. I haven't browsed through any profiles to see if they're a part of this community, but if you like, I can put you in touch with them. They are all members of the cleft/craniofacial community and I know that they'd be eager to help you and answer your questions!
Teresa

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