Lacey - posted on 02/11/2011 ( no moms have responded yet )
1
0
my daughter has been diagnosed with a cleft palate and were due to have surgery very soon. on top of that weve already been doing research with a genetic lady because my daughter has a never seen case of mutated chromosomes which means she is technically a noonan syndrome child but doesnt have all the mutated genes like other children with noonans due. to top it off we just discovered that the bone holding her spine to her skull has too much of a prendental gap and she is stuck in a neck brace now until she is five unless a miracle makes her grow more bone. catscan is scheduled and will be letting us in on more later
No Comments
View replies by