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Lori - posted on 01/30/2009 ( 7 moms have responded )

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Hello! my name is Lori and I have a 3yr son with a Cleft palate we have been very lucky with him so far all he has needed was tubes in his ears at 6m I did not know how common his defect was until I came on here I'm just looking for somebody I can relate to

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Donna - posted on 02/12/2009

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Hey Lori it is nice to meet you my name is Donna.  My son Bridon was born with Hair Lip & Cleft Palate.  It was a real shock to me as I did not know until he was born.  He is now 5 and had 12 surgeries including 1 only last week.  He is doing great and he bounces back really well. It is more common then you think but it's not until you start looking that you find someone else with it. Hope to hear from you I am always here and will help anyway I can.

Hope - posted on 02/08/2009

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Hello!  I do not have a child with a cleft palate/lip; I have one.  I have a bilateral cleft lip and palate.  I am 35 and just finished my last surgery (#20).  I thought that I may be able to provide a first-person point of view for anyone who would like it.

Jenn - posted on 02/06/2009

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Hi Lori Jenn here I am the mom of 3 beautiful girl. The youngest (6 months) was born with a partial cleft palate and still waiting to see when surgery will be done. Welcome to the boards the girls are great here

Vida - posted on 02/06/2009

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Hi Lori, welcome.  Sorry I haven't been around, I am trying to get back into the swing of things here...
My daughter, now 6 1/2, was born with a wide unilateral cleft lip/palate.  There are photos of her on our photo page, you can check her out there.  :)
Her first surgery was done at age 3 months, she had her lip and nose repaired.  Her second surgery was her (first) palate repair, that was done at age 13 months.  She's had a total of 8 surgeries so far, 7 of which were done before the age of 5.  She had tubes placed quite a few times during other cleft-related surgeries, and had a "tubes-only" procedure just a couple of months ago, the week before Christmas.



Vilija is doing beautifully.  :)

Ashley - posted on 02/02/2009

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My daughter is 18months. She had both the palate and the lip! She has had 2 surgeries! Recovery isn't bad at all. If you need nething your welcome to talk to me I will listen!

Jen - posted on 01/31/2009

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Hi Lori. We adopted our son from China. Ricky is 2. He has repaired cleft lip and palate. Ricky has been home a year and has 2 surgeries with us plus one in China.

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