Brittany - posted on 02/11/2010 ( 1 mom has responded )
Hi my daughter was born on January 12 with a cleft palate. It wasn't found by any doctors or even my midwife at a home visit. I found it the weekend after she was born and told her pediatrician at her first office visit at a week old. At that time she had lost 13 oz due to inability to eat (i was trying to breast feed and supplimenting with an SNS feeder). Now, she eats with a Medela Special Needs Feeder
(Haberman bottle). She still has issues with formula coming out her nose. Especially when she lays down. I know she will need tubes at 3 months old. We've already met with the ENT. Does anyone else have a cleft palate team? What age can I expect her corrective surgery? The websites I've looked at are all over the place.