Moms of kids with craniosynostosis

Community for moms of kids who have (or have had) craniosynostosis.

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Sagittal craniosynostosis

My son is 8 months and has been diagnosed with mild saggital craniosynostosis. The consultant said it is up to us if he has the operation of not. Can anybody tell me if he has...

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Saggital Synostosis

Hey Everyone! My little boy Leon was diagonsed and corrected with Saggital Synostosis in 2000 when he was three months old. He has a few ongoing problems but on the whole he...

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Surgery soon

My son has surgery in 6 weeks and I am freaking out. Is there any information anyone can give me to prepare me?

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Please help!!

Okay so my sons Dr said he had some form of craniosynostosis. They sent us to children's mercy in kc mo for a ct. We got the results back today and they said it's normal. So I...

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Please help!!

Okay so my sons Dr said he had some form of craniosynostosis. They sent us to children's mercy in kc mo for a ct. We got the results back today and they said it's normal. So I...

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Craniostenosis?

My son is now 11 months and we just found out the ridge is getting bigger... he has a ct on Tuesday. I'm not sure what to expect any advice would be awesome!!

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developmental delays?

my son had metopic and saggital synostosis and had surgery at 3months and 6months. Now he is delayed and cant sit up on his own or talk. The Dr. says it will be ok and he will...

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second surgery

my daughter diagnosed with coronal craniosynostosis she had her surgery 15 months ago this past 3 weeks i hav enotice that her forehead is getting a little flat again from the...

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Coronal Cranio

Hey everyone! My 5 month old daughter has Coronal Craniosynotosis. Her surgery is scheduled for April 10th here in Tampa, Fl. I am nervous, but know this is the fix. I am hoping...