Moms of Kids with Heart Defects

This is for parents of children with heart defects of any severity.

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Heart moms

How do I stop thinking about my baby dying that feeling of impotency and sadness not being able to do anything feeling hopeless

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Tetralogy of Fallot

Hello! I'm new to this group... My daughter was born with Tetralogy of Fallot, and I was so glad to find this group. I hope to meet new and great people.

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OHS Scar Treatment

My son recently had his 2nd open heart procedure at age 12. His scar was already quite wide from 1st surgery ( 2 weeks old) due to complications that resulted in reopening his...

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Heart moms

How do I stop thinking about my baby dying that feeling of impotency and sadness not being able to do anything feeling hopeless

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Anyone with a chilld with HLHS

Hi. My name is Karla. I'm 19 years old and my 5 month old daughter has HLHS. Sasha had her NOrwood at 1 week old and will soon have her Glenn this summer. We spent17 weeks in...

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hypoplastic right heart

My daughter is 1month n 16 day she born with hypoplastic right heart,tricuspid atresia and pulomonary atresia.i live in central america and here do not perform the...

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hrhs

Hi..my daughter is 1 month and 16 days old..she born with hypoplastic right heart syndrome,tricuspid atresia and pulmonary atresia.she need to do 3 surgerys,none are not done as...

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