Moms of Kids with Heart Defects

This is for parents of children with heart defects of any severity.

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Grandson with HLHS...

My Grandson has HLHS and is now 12 years old. He has only been in the hospital once for about a month and a half due to complications of the liver and blood. Thank God he got...

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Scimitar syndrome Australia

Our little girl was diagnosed with scimitar at 22wks and was never expected to live after birth, but my amazing strong girl defied everybody and still is.We had four months in...

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Hello everyone...

I was wondering if there were any moms with children that have Ebstein's Anomaly? http://www.americanheart.org/presenter.jhtml?identifier=11075. My daughter has had it since...

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Double inlet left ventricle

Hi. I'm new here and just wondering if anyone has a kiddo with double inlet left ventricle. Our son was born in January and had his first surgery, DKS procedure & BT shunt,...

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Double inlet left ventricle

Hi. I'm new here and just wondering if anyone has a kiddo with double inlet left ventricle. Our son was born in January and had his first surgery, DKS procedure & BT shunt,...

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Seizures after TAPVR repair?

Hello All- My daughter is 3 days old and is recovering from TAPVR surgery 2 days ago-- she is doing well, but now is having seizure activity, they have an EEG on and are...

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Seizures after TAPVR repair?

Hello All- My daughter is 3 days old and is recovering from TAPVR surgery 2 days ago-- she is doing well, but now is having seizure activity, they have an EEG on and are...

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Pink Tet Baby

Hi everyone! My Baby now 3 months has been diagnosed with tetralogy of fallot (pink tet) when she was still a couple of weeks since i gave birth to her. She is now under lasix,...

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Pink Tet Baby

Hi everyone! My Baby now 3 months has been diagnosed with tetralogy of fallot (pink tet) when she was still a couple of weeks since i gave birth to her. She is now under lasix,...

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