Moms of Kids with Heart Defects

This is for parents of children with heart defects of any severity.

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Daughter has aortic regurgitation

hi, we just found out our daughter has mild aortic regurgitation. she is 7 years old. we were told not to worry and she can live a normal life, but i need to meet other moms who...

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Double inlet left ventricle

Hi. I'm new here and just wondering if anyone has a kiddo with double inlet left ventricle. Our son was born in January and had his first surgery, DKS procedure & BT shunt,...

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Double inlet left ventricle

Hi. I'm new here and just wondering if anyone has a kiddo with double inlet left ventricle. Our son was born in January and had his first surgery, DKS procedure & BT shunt,...

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Seizures after TAPVR repair?

Hello All- My daughter is 3 days old and is recovering from TAPVR surgery 2 days ago-- she is doing well, but now is having seizure activity, they have an EEG on and are...

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Seizures after TAPVR repair?

Hello All- My daughter is 3 days old and is recovering from TAPVR surgery 2 days ago-- she is doing well, but now is having seizure activity, they have an EEG on and are...

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Pink Tet Baby

Hi everyone! My Baby now 3 months has been diagnosed with tetralogy of fallot (pink tet) when she was still a couple of weeks since i gave birth to her. She is now under lasix,...

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Pink Tet Baby

Hi everyone! My Baby now 3 months has been diagnosed with tetralogy of fallot (pink tet) when she was still a couple of weeks since i gave birth to her. She is now under lasix,...

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Anyone with a chilld with HLHS

Hi. My name is Karla. I'm 19 years old and my 5 month old daughter has HLHS. Sasha had her NOrwood at 1 week old and will soon have her Glenn this summer. We spent17 weeks in...

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P.L.E.

My son is 5 years old and was born with HLHS. He had his Fontan about two years ago and his fenestration is still open. About 8 months ago, he was diagnosed with PLE and we have...

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HLHS - Life post Fontan

My 4 year old was born with HLHS.. He has had the Norwood, Glenn & Fontan procedures and is doing well. I am interested in talking with other post Fontan moms to hear how...

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