Moms of Kids with Heart Defects

This is for parents of children with heart defects of any severity.

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Tetralogy of Fallot

Hello! I'm new to this group... My daughter was born with Tetralogy of Fallot, and I was so glad to find this group. I hope to meet new and great people.

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Anyone with a chilld with HLHS

Hi. My name is Karla. I'm 19 years old and my 5 month old daughter has HLHS. Sasha had her NOrwood at 1 week old and will soon have her Glenn this summer. We spent17 weeks in...

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hypoplastic right heart

My daughter is 1month n 16 day she born with hypoplastic right heart,tricuspid atresia and pulomonary atresia.i live in central america and here do not perform the...

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hrhs

Hi..my daughter is 1 month and 16 days old..she born with hypoplastic right heart syndrome,tricuspid atresia and pulmonary atresia.she need to do 3 surgerys,none are not done as...

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miracle child

My name is Ashley my daughter Destiny has hypoplastic left heart, double outlet right ventricle, mitral atresia, reversed ductal flow, severe asthma, and mild Scoliosis. We...

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Daughter has ASD and tiny VSD

When my daughter was born, the found that she had two holes in her heart. They said they would repeat the echo when she was 6 months old. So in October, we found out that the...

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ASD, VSD and a PDA

Hello Moms, I have a 6 week baby girl. She is born with two holes in her heart (ASD and a VSD) each ranging from 2mm to 3mm - and a PDA. Her Pediatrician said they will close on...

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OHS and Incision Options

Hello all, I have a two month old girl with TOF. She is doing very well and you would never know she had a heart defect. However, the cardiologist says her repair surgery will...

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