Moms of Kids with Heart Defects

This is for parents of children with heart defects of any severity.

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Tetralogy of Fallot

Hello! I'm new to this group... My daughter was born with Tetralogy of Fallot, and I was so glad to find this group. I hope to meet new and great people.

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miracle child

My name is Ashley my daughter Destiny has hypoplastic left heart, double outlet right ventricle, mitral atresia, reversed ductal flow, severe asthma, and mild Scoliosis. We...

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Daughter has ASD and tiny VSD

When my daughter was born, the found that she had two holes in her heart. They said they would repeat the echo when she was 6 months old. So in October, we found out that the...

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ASD, VSD and a PDA

Hello Moms, I have a 6 week baby girl. She is born with two holes in her heart (ASD and a VSD) each ranging from 2mm to 3mm - and a PDA. Her Pediatrician said they will close on...

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OHS and Incision Options

Hello all, I have a two month old girl with TOF. She is doing very well and you would never know she had a heart defect. However, the cardiologist says her repair surgery will...

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Seizures after TAPVR repair?

Hello All- My daughter is 3 days old and is recovering from TAPVR surgery 2 days ago-- she is doing well, but now is having seizure activity, they have an EEG on and are...

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Double inlet left ventricle

Hi. I'm new here and just wondering if anyone has a kiddo with double inlet left ventricle. Our son was born in January and had his first surgery, DKS procedure & BT shunt,...

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Grandson with HLHS...

My Grandson has HLHS and is now 12 years old. He has only been in the hospital once for about a month and a half due to complications of the liver and blood. Thank God he got...

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Scimitar syndrome Australia

Our little girl was diagnosed with scimitar at 22wks and was never expected to live after birth, but my amazing strong girl defied everybody and still is.We had four months in...

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