Moms of Kids with Heart Defects

This is for parents of children with heart defects of any severity.

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51

Tetralogy of Fallot

Hello! I'm new to this group... My daughter was born with Tetralogy of Fallot, and I was so glad to find this group. I hope to meet new and great people.

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Son born with aortic stenosis

My son Elijah was born with a heart murmur that was orginally thought to be harmless, as time passed his Dr started to get concerned so we were sent to a cardiologist. At his...

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New Tet mom

So we just found out at 28 weeks pregnant that my son has TOF. I met with the pediatric cardiologist who sounded very optimistic. She said he won't need the surgery until he is...

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Heart moms

How do I stop thinking about my baby dying that feeling of impotency and sadness not being able to do anything feeling hopeless

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OHS Scar Treatment

My son recently had his 2nd open heart procedure at age 12. His scar was already quite wide from 1st surgery ( 2 weeks old) due to complications that resulted in reopening his...

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Heart moms

How do I stop thinking about my baby dying that feeling of impotency and sadness not being able to do anything feeling hopeless

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Anyone with a chilld with HLHS

Hi. My name is Karla. I'm 19 years old and my 5 month old daughter has HLHS. Sasha had her NOrwood at 1 week old and will soon have her Glenn this summer. We spent17 weeks in...

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