Katie - posted on 07/08/2010 ( 10 moms have responded )
My son has aortic stenosis. He had a balloon procedure done at 2 months and has been going back to the cardiologist regularly. Each time he said something a bit different as to when he would possibly need to have surgery to replace the bad valve. The doctor wants to do the Ross procedure. Tanner is now about 15 months and just had a doc visit and he says that it looks like he will need surgery sometime next summer, after he is two. But how do we know its time to have surgery? I have never seen any signs in him - no blueness, change in breathing, or being lethargic. How do you know when your child needs surgery? Have any of you experienced seeing the symptoms in your toddler? Is it obvious when they are blue, or is it faint and something that happens slowly? I hate the idea that we are waiting for his heart to start failing before we do anything, but understand that we shouldn't do surgery if we dont have to so that he can grow. Its so hard to think about him going through surgery now when it doesnt seem like anything is wrong with him!