Jenna - posted on 01/03/2010 ( 3 moms have responded )
When my daughter was born, the found that she had two holes in her heart. They said they would repeat the echo when she was 6 months old. So in October, we found out that the PFO closed, she had an ASD that was 5 mm and, also discovered a VSD that wasn't seen in the echo done when she was 2 days old. The cardiologist said that they are really only concerned about the ASD. He said that normally the ASD doesn't usually cause a problem until they are close to 20 years old. He said we would check again when she was 2 unless there seemed to be concern that we should check sooner. He said the hole can get bigger smaller or stay the same between now and then. Depending on what it is doing, surgery could be a possibility. My daughter is 9 months now and has been on table foods since she was 7 1/2 months old to try to help her gain weight. She has been on a constant decline percentile whys since she was born. At 6 months she was 25%, but at 8 months dropped down to 15%. I was wondering if any of you had similar stories, advice, things to possibly watch for now that she is crawling everywhere and almost walking,were any of you told similar things....... really anything to help me understand what to expect.