Heart Murmurs

Pam - posted on 01/25/2009 ( 18 moms have responded )

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Hello anyone out there with a child with heart murmurs?

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Julie - posted on 01/28/2009

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Unfortunately the hole in her heart is quite large and the catheterization procedure will not work so she is having the open heart surgery.  I'm quite nervouse but relieved that we are finally going to get it done and over with.  One thing that is saving me too is my mother-in-law is a nurse and plans on staying with us after the surgery.

Cheryl - posted on 01/26/2009

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My daughter had a PDA heart murmur. This is the one that's supposed to close within a few hours after birth. It was discovered before she left the hospital and was followed by her cardiologist for a few years when it was determined it wasn't going to close on its own. When she was almost three years old and had finally reached the minimum weight of 25lbs the cardiologist performed a heart catheterization and close the murmur with a coil a.k.a. titanium spring. The surgery took approx 4 hours and she had to stay overnight in the hospital. She had to have followup visits (for a few years) to make sure the coil stayed in place. Now she's happy and health and doesn't even have a scar from the procedure. You can still hear a slight murmur but now it's more of a noise than anything else. If you have any questions please don't hesitate to ask. I know it can be very scary.

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Kristin - posted on 04/30/2012

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My daughter had her PDA closed with a trans-cath procedure last August and is doing great! She has shown significant growth and her energy is soaring! She was a very large baby (10 lbs 7.5 oz when born) but due in part I think to her PDA didn't even double her weight by her first birthday. We always thought she was very energetic before her procedure but WOW! now she goes non-stop! We do still hear her murmur, not sure if that will gradually go away after the heart has had time to grow around and into the device or not? but she is a very healthy little girl and we are very happy that we chose to go ahead with the procedure!

Kacey - posted on 12/06/2011

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My daughter was diagnosed with a heart murmer at 9 months and today at her 10 month apt the doctor said that it had gotten louder so she will get an ekg later this week i am very scared :/

Jemma - posted on 06/16/2009

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i've just found out that my son has a heart murmur he is 16 months old and they didn't detect it at birth, he has had a bad chest all his life (chest infections etc..) he has been in hospital 2 times and the 2nd time he was in they heard an extra sound in his chest. he went for a more thorough examination and has definately got a murmur but they have also sent him to a heart clinic to have a ultrasound to see if he has got a hole in it. if he has that's why he's been so ill all his life.

Jessica - posted on 03/20/2009

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My son also has a murmur but it is starting to close due to his surgery. They said the louder it was the smaller it was getting. 

Jonte - posted on 03/20/2009

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Hi i am new to this group but i have read most of the posts here and i have identical twin girls that needed the same treatment as Cheryl's Child but at age 8 weeks as they only found out after she had been discharged from hospital, it is a very safe procedure and i had found since having the surgery my daughter is not so tired and quiet anymore nor does she drink a lot of water or sweat easily after a play outside. My daughter is definitely much healthier after having the surgery and is developing great (she is now 8 years old!) The symptoms you describe surely sound as though it needs to be checked out again and surgery performed...it is scary but well worth it! (i was a 17 year old single mother of twins and went through it all alone so believe me i know how scary and daunting it can be)
Good Luck and keep us all updated :)

Christina - posted on 03/19/2009

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yes, my oldest was born with an innocent heart murmur,that closed on it's own. my baby was born with a heart murmur, the doc says that it is still quite loud, the doc is sending her back to see the pediatrician. it has affected her weight gain she is one year old, 33 inches tall and only 22lbs. she is what they are calling a slow to gain baby. she is fortunately an active child, but she is constantly getting colds, and has days where you can just tell by looking at her that she is feeling unwell. Can anyone tell me if this is common in one year old with murmurs?

Tracy - posted on 01/30/2009

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Hi everyone,

Our son has a murmur as a result of his open heart surgery he had at 8dys old to repair TGA.

It will stay with him for life and we have regular checkups with both a paed and cardioligist to make sure it doesnt worsen etc.

Julie - posted on 01/28/2009

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My daughter was diagnosed with a heart murmur at 2 months of age and has repeated echocardiograms to keep a watchful eye on it.  She is now 2 1/2 yrs old and will be going for her surgery to have the hole repaired on April 3rd.

Cheryl - posted on 01/28/2009

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Don't forget she should be on antibiotics before going to the dentist - EVEN FOR A CLEANING as this could cause an infection around her heart. This goes for everyone with a heart murmur. Your dentist should ask if you have a murmur before treating you. :)

Pam - posted on 01/27/2009

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wow,thxs again for all your imput,iam seeing the light at the end of the tunnel as the saying goes!! Iam in constant worry that she will one day just have heart failure or something crazy,cause even though there are few symptoms i still notice little things here and there that make me think,i will for sure ask her cardio specialist to see if this can be done,it sounds like a wonderfull sucess story for all of you,i do know that the muscles aroun the heart can enlarge and things can happen very quicly without warning thats what scares me the most i think,i will keep you all updated on what her doc says and thxs again it was much appriciated....

Cheryl - posted on 01/27/2009

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Pam,



For sure you need to check into the procedure. My daughter was thought to be asymptomatic (symptom free) but she was always small and very laid back. When she was coming out of the anesthesia she woke up a different child with an abundance of energy! Now, at seven years old, she's still small 41lbs but healthy and happy. She actually has a growth condition - IGF1 Insulin Growth Factor Resistance that may or may not be related to her heart. There is still alot unknown.



It was scary for me as a parent to accept something foreign being placed in my childs body. Now that everything went so smoothly and without incident I find it hard to believe it was hard to accept. Hang in there and let us know what the doctors say. :)

Emma - posted on 01/27/2009

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Oh I also forgot to mention, a friend of mine had it done at the age of 60, so it can be done at any age x

Emma - posted on 01/27/2009

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Id would get in touch with her cardiologist, Im not sure if its the same where you are (Im from England?) but I would ask for another echo to see what they suggest. Are your Daughters identical twins? Because if not then size can really vary with non Identical twins (Im one and me and my bro are very different!!). Keep on at your Doctor, Mums always know what is best best for their children so don't be fobbed off. xx

Pam - posted on 01/27/2009

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thxs for all the info,my beautiful daughter is gunna be 8,she is a twin!! her sister has no heart defects,so far i have refused any procedure they want to do with her,outta fear,so far all has been well with her,she has a cardio specialist that keeps updated with all of her things,she has the same heart murmurs that are suppose to close at birth,needless to say hers did not,i can not get any type of life insurance on her because they consider her a risk,even though the doctors have sent letters of referal and everything they still refused her,she also is so much more smaller than her sister,which i find odd because they were almost the same at birth right up until they were 2,i find that her growth isnt as fast as her sister,and iam wondering if this could be a side affect from the heart murmurs,she also tires quickly,they offered the same heart procedure for her as they did your children but i refused it when she was about 18 months,i think i would like them now to do this,how can i ask my doctor if they would still consider this,or is she to old now? thxs again ladies for all your info.

Emma - posted on 01/26/2009

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Hi, my son, Mats, had a heart murmur detected at birth and at 3 months he had the catheterization, it was awful, especially as he was so small. But he responded to it really well and only has to go back yearly now. we have just had a baby, now 3 months and his heart is fine thankfully. Its is very scary to hear your baby has something wrong with their heart, but thankfully now a lot can be done. As Cheryl said, any questions or worries let me know x

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