Hi new here

Jessica - posted on 12/16/2008 ( 2 moms have responded )

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Hi my name is Jessica. I know all of the mothers on here are suffering with a child that has a heart defect, but in my case its the other way around. My daughter is healthy but as for me I was born with Transposition of the Great Vessel. I have had 2 heart surgery's, two pacemakers and a stroke at the age of 2. I am 29 years of age and have been though alot through all my years . I am hoping that I will give some of you mothers that have been through alot of health issues with their child some hope that God is in your child's hands and he will give you strength through all the tough times. If any of you have questions or need support please contact me. I am a stay at home mom and am willing to help as much as I can.

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Jessica - posted on 01/21/2009

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My husband and I both were very concerned for my health and my baby's when I became pregnant. Now I am not aware if it will make a difference that being the mother or the father with this type of condition. But I do know because I did and being the one carrying the child I had a fetal echo EVERY visit, not just a fetal but  a fetal heart echo ( can't remember the specific name.) I only have the one child and am lucky that she did not receive it. My cardiologists didn't believe that she would carry it as well. I do not know my birth mother very well but what I do know is that while pregnant with me she did ALOT of horrible drugs and the doctors tend to believe that may be one of the main reasons I ended up with the condition. It's not proof that is what caused it but it may play a role in the factor. I also know she never received any heart fetal echos far enough in being pregnant with to know that I had a heart condition. My doctors do not believe that Erin pass this condition on to her children, but you never know what God has in store for her. 



According to my adopted mother(grandmother) she does recall from some of my OLD records that I did have Pulmonary Stenosis. What I am aware if that after my doctors did the senning procedure I had a stroke and also had a balloon but on my heart (which is what caused the stroke) I read your message to my mom and she does believe is cardiologists are correct about when I no longer had the Stenosis. 



I am not sure if Blake suffers with the fact of a slow heart beat. As for me I have all my life until after they "fixed" the leak of my tricuspid valve. About 6 months after I went to SVT ( about 250 beats per minute)  and had already that wires put in for a Pacemaker when they fixed my valve. So exactly 6 months after tricuspid valve repair at 17 I went for a Pacemaker surgery and have had a a pacemaker ever since. 



 



I hope that this helps. I know everyone is different and figured I would explain everything incase their anything else that he may have been through. 

Stacey - posted on 01/21/2009

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My son, Blake, will be 6 in March and was born with Transposition. I have been worried about when he is older if one of his children will have it. Do you only have one child? Did your doctors think that it could be passed on? With my other children after Blake, I had to get fetal echos to make sure they wouldn't have defects.



Also, did you develop Pulmonary Stenosis? Blake's second surgery was to correct that at 8 months old, which developed from the Arterial Switch. He still has the stenosis and his cardiologist said he will battle it until he stops growing.

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