Its hard to believe she is here today.......

Mari - posted on 12/01/2009 ( 3 moms have responded )

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I had problems my whole pregnancy but nothing prepared me or my husband for what happened the day our daughter was born. I went into labor around 2 am and had my daughter at 12:51pm. When she came out she was blue and wasnt breathing like she should. Her oxygen levels were below 40 so the nurses worked on her for over an hour to try to get her oxygen up. After an hour of trying, life flight was called to take her an hour away to Childrens Hospital. Within a few hours we found her she had a transposition of the great arteries and a coarctation of the aorta as well as a small murmur. The night she was born she recieved a balloon septostomy to allow he to breath more easily. When she was 6 days old she had her open heart surgery for the TGA. The 3 surgeons doing her surgery told us she was in the 10 percentile of high risk because of the placement of her coronary arteries. The surgeons gave us a strong warning that although the surgery might go well, her coronary arteries were a problem. Not only were they in the wrong placement but they were 80% smaller than they should be. After 12 1/2 hours of surgery Alissa was out and all we could do was wait. Her surgery was on November 3 and she came home with us November 16! She is doing great to this day! She still has her murmur, the coarctation and also has two leaking valves in her heart, but the doctors are just going to watch them and see how she does. They say those surgeries will be nothing compared to what she had done and should go fine if needed in the future. She will need to go in every 3 or so years to get her coronary arteries fixed to enlargen them as she grows. Me and my husband cant believe our little miracle is here today and being as perfect as she can!

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Erin - posted on 12/27/2009

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Hey, I just wanted to write and thank you for telling your daughter's story. My daughter, Kailey was diagnosed last December with multiple CHDs and my husband and I are still a little bit in shell shock about follow up surgeries and frequent heart caths. Its good to know that the small percentages in this world aren't completely alone in their journeys.

Julie - posted on 12/22/2009

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Its amazing what these surgeons can do. Our son had complicated heart surgery 5 years ago and he's running around full of fun and mischief. I write to the surgeon every year on the anniversary of his operation to thank him once again for saving our son. Our son is a miracle baby just like your darling daughter-make the most of every moment. Have a happy healthy Christmas ans 2010.

Samantha - posted on 12/15/2009

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I just want to tell you i am so happy for you!!! God works in fabulous ways. Cherish your baby girl!! Have a merry merry christmas!!

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