Moms of kids with metabolic disorders

This group is for moms with children afflicted with a metabolic disorder such as FODS, OOAs, PKU etc...

3

GA1

So, I'm pretty sure there are no other children who have what my little girl has. But, its very similar to some. Lyana was diagnosed with Glutaric Aciduria Type 1 when she was a...

5

m.c.a.d.d

Hi i have 5 children 3 have a metabolic disorder called m.c.a.d.d,its very rare. My other 2 children could be carriers ,thankyou for letting me join your comunity it will be...

3

MMA

Hi, thanks for letting me join this community.My son is suffering from methylmelonic acidemia. Is there anyone with similar condition?

4

pku

My 5 month old was diagnosed with PKU. I was wondering about other families that deal with this.

9

Welcome!

I thought I would create this group to see if there are any other mothers of kids with metabolic disorders. My daughter Maren is 3 and was born with MCAD (medium chain acyl-CoA...