Moms of kids with Sickle Cell Disease

Allexus was born With Sickle Cell Disease, at 2 months of age she started having complications. Her spleen was swelling up due to this blood disorder, so she had to get blood transfusions because blood was settling in her spleen causing the swelling, and she had to have it removed at the age of 3. She had brain surgery at the age of 4 because of a tumor, which doctors say that they don't know if it had anything to do with the disease or not. She's had pneumonia like 7 times and a mild stroke. Currently she's receiving blood transfusions every 3 weeks because of hypertension in the lungs, which is called pulmonary hypertension. She's now in 6th grade and misses a lot of school because of blood transfusions, other doctors appointments, and sometimes being admitted into the hospital.