Moms of kids with spina bifida

Having a special needs child can be trying task at times- it is nice to have a network of people going through similar things. This group is for mommies of kids with Spina Bifida.

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21 yr old with spina bifida

Just trying to figure out how to deal with a 21 yr old son who is really about 13yrs old mentally....wants to make his own decisions but is really not capable and he gets really...

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Any T-10 levels out there?

Hello all! New to the community. I am 32 weeks along tomorrow with our daughter, Eliza James. She has been diagnosed with T-10 level SB and I know that is higher than the...

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Help and advice

Hi, I am a mom to a 10 soon to be 11year old and I am so scare. He is growing and I don't know what to expect. I have always tried to be there for him but now that he is older...

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Wheelchair van

My daughter is 17. We are in need of another wheelchair van. Does anyone know if vocational rehab will help us get one when she turns 18?

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Wheelchair van

My daughter is 17. We are in need of another wheelchair van. Does anyone know if vocational rehab will help us get one when she turns 18?

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AFO's

M y son, just got casted for AFO's; they should be back in 2 weeks. these are his first ones. Im curious: how long does it take to get used to them? do they really help in...

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Just wanted to share

http://bellace85.wordpress.com/2013/02/19/a-heartbreaking-choice-hollies-story/ I write a blog about health issues. My recent guest blogger wrote her story about losing a child...

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New Mom

Hello, my name is Lizz, I have a 4 month old son that was born with spina bifida and hydrocephelus, I have 3 other girls so he is the first son! We found out at 20 weeks the...

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Bladder exstrophy/spina bifida

I am currently 13 weeks pregnant and learned from last u/s that the baby has bladder exstrophy,possible developemental delay to left leg,and the heart is lower in chest due to...

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New to this

My husband and I just found out that his 2.5 year old daughter has Spina Bifida. We took her to a developmental pediatrician because she has TERRIBLE balance, and he found the...

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Spina Bifida Occulta

Hello! My daughter is 6 and has been diagnosed with spina bifida occulta. We have had the MRI and are waiting to see the neurosurgeon. I was just wandering if any one out...