Ashlee - posted on 05/30/2012 ( 6 moms have responded )
My name is Ashlee, and im a 23 year old mother to 3 BOYS. My 2nd child Carter was born with Spina Bifida. He was diagnosed when i was 13 weeks pregnant. He will be 3 this September! I was told by a good friend the other day to try a blogsite, with other mothers in my position. Ive never talked to anyone else who has had a child with SB. He has a shunt placed in his head, hes had multiple surgeries for his clubbed feet, but they are still very clubbed. He crawls around like a mad man, stands up on the outer sides of his feet, which i try my HARDEST to prevent, but i guess at this point in time, thats what he is comfortable with. I was just wondering what other mothers have gone threw with there child? His SB was located at L5. They dont believe he has much paralysis, if any. Right when i delivered him c-section, they did tests on him, and he could feel and move his feet, toes and legs. I am concerned about his bladder and bowel control. What are some ways this is controled with little ones in this position, and how difficult is it? Feel free to give me your input!!