Moms of kids with spina bifida

Having a special needs child can be trying task at times- it is nice to have a network of people going through similar things. This group is for mommies of kids with Spina Bifida.

3

Just curious

How old are your little ones (or not-so-little anymore!) that have Spina Bifida? My daughter is 2 1/2, and she's doing great! I love they there's a specific group on here for...

2

Hello

My name is Sandy, I have 3 beautiful boys, 1 is 16 and twins 13 years old. When the twins were born they were 6 weeks premie, Cody was born natural, Chris was breech, 50 minutes...

0

looking for a playdate

Is there anyone from Yuma, Arizona with a child with spina bifida? looking for a playdate, Ian is only 12 months but is very social, I think it would be good for him to meet...

1

Newbie to the group =)

Hi, Im Samantha and my son AJ has Spina Bifida. he just made a year old on May 20th and is beginning to walk. His case of SB is at the very base of his spine right above his...

5

Welcome

I am the mom of a little girl born in April 2007 with Spina Bifida and hydrocephilus. She has been diagnosed with lots of not fun stuff but we take it one day at a time....

4

Bladder & Bowel Augmentation

AJ will be having his bladder and bowel augmentation surgery on Aug. 25th, not sure what time we have to be at the hospital. We go in July to meet the bowel surgeon and on...

0

My babys anatomy

So I just found out when learning to cath my daughter who is one week old...her pee hole is on the bottom instead of the top of the vagina???...but everything works fine as...

0

Bladder Stimulation?

I was wondering if anyone has had their child recieve bladder stimulaton and if so what was the outcome? Mom to Christopher 7, Hunter 4, Olivia 2 1/2 L5/S1 shunted, urogenic...

0

Newbie to the group

Hi I'm Kim, and my daughter Alyssa is 3 1/2 born w/ spina bifida. She has a VP shunt and has had 1 revision and brand new one put in once. Along with that, she has epilepsy,...

2

Jonas

we had a myelo clinic today. we left the hospital feeling that all was well. however the results of the ct said otherwise. he will be going in on monday to have a shunt...

8

My Brother had SB

My Brother, Christopher had spina bifida. I just joined facebook, and was looking through profile groups. I saw this one with the lil girl and started crying. Our family was...

20

HI

My baby boy 1year old has spina bifida. It wasn't pick up by any scan, what a shock!! Now he is a very lively boy, who is progressing fantasticly, he is pulling himself up to...

1

Where did the time go?

Hi there. My name is Kathy. I'm 33 and have a beautiful (and very feisty) 10 year old daughter with my husband Mark. My daughter Polly was born with Spina Bifida and...

0

New

Hello all , my name is Michele and my son Tyler is 13 and our family live in the Atlanta area. Are there anyone who live in the area? Tyler is a mylo patient , well he started...

1

new to the site

hi everyone. I am new to the site and just wanted to share our experience. we live in southern ohio and travel 1 1/2 hrs to columbus for our drs appt. my son is almost 8...

2

Hi all

Hi my name is Sue i have 3 Boys my middle one has Spina Bifida & Hydrocephalus with a Chiari II Malformation he has a shunt and has had 4 revisions he has also had bowel and...