Moms of kids with spina bifida

Having a special needs child can be trying task at times- it is nice to have a network of people going through similar things. This group is for mommies of kids with Spina Bifida.

3

surgery

My daughter is 12. She is to have her spinal cord untethered during x-mas break from school. This is actually her 2nd one to untether her cord. The last one was about 3 yrs ago....

9

Our story

Warning...this may be long! My husband and I already had 2 boys, and decided we wanted another baby. We got pregnant easily, and everything was looking good. I went in for the...

1

ortho question

Ian is 14 months old, his first ortho appointment was in may making him 8 months old. that went well, he didnt do anything actually, just looked at him and told us to come back...

0

Bright ,Victoria, Australia

hi everyone, i just wondered if there was any one living near bright vic or melbourne australia?? im relocating there in dec and will be apart of the sb clinic and dont know...

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Older child with SB

My son is 21 and I was wondering if there is anyone here that has any older children that can share their experiences with me. My son is ambulatory, uses forearm crutches,...

2

from mexico

Hi everyone, I have a little daughter who has hydrocephalus and spina bifida, she has 2 years old, we are from Mexico, and maybe my english is not good, but I like to be in this...

3

Just curious

How old are your little ones (or not-so-little anymore!) that have Spina Bifida? My daughter is 2 1/2, and she's doing great! I love they there's a specific group on here for...

2

Hello

My name is Sandy, I have 3 beautiful boys, 1 is 16 and twins 13 years old. When the twins were born they were 6 weeks premie, Cody was born natural, Chris was breech, 50 minutes...

0

looking for a playdate

Is there anyone from Yuma, Arizona with a child with spina bifida? looking for a playdate, Ian is only 12 months but is very social, I think it would be good for him to meet...

1

Newbie to the group =)

Hi, Im Samantha and my son AJ has Spina Bifida. he just made a year old on May 20th and is beginning to walk. His case of SB is at the very base of his spine right above his...

5

Welcome

I am the mom of a little girl born in April 2007 with Spina Bifida and hydrocephilus. She has been diagnosed with lots of not fun stuff but we take it one day at a time....

4

Bladder & Bowel Augmentation

AJ will be having his bladder and bowel augmentation surgery on Aug. 25th, not sure what time we have to be at the hospital. We go in July to meet the bowel surgeon and on...

0

My babys anatomy

So I just found out when learning to cath my daughter who is one week old...her pee hole is on the bottom instead of the top of the vagina???...but everything works fine as...

0

Bladder Stimulation?

I was wondering if anyone has had their child recieve bladder stimulaton and if so what was the outcome? Mom to Christopher 7, Hunter 4, Olivia 2 1/2 L5/S1 shunted, urogenic...

0

Newbie to the group

Hi I'm Kim, and my daughter Alyssa is 3 1/2 born w/ spina bifida. She has a VP shunt and has had 1 revision and brand new one put in once. Along with that, she has epilepsy,...

2

Jonas

we had a myelo clinic today. we left the hospital feeling that all was well. however the results of the ct said otherwise. he will be going in on monday to have a shunt...

8

My Brother had SB

My Brother, Christopher had spina bifida. I just joined facebook, and was looking through profile groups. I saw this one with the lil girl and started crying. Our family was...