Moms of kids with spina bifida

Having a special needs child can be trying task at times- it is nice to have a network of people going through similar things. This group is for mommies of kids with Spina Bifida.

4

Bladder & Bowel Augmentation

AJ will be having his bladder and bowel augmentation surgery on Aug. 25th, not sure what time we have to be at the hospital. We go in July to meet the bowel surgeon and on...

0

My babys anatomy

So I just found out when learning to cath my daughter who is one week old...her pee hole is on the bottom instead of the top of the vagina???...but everything works fine as...

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Bladder Stimulation?

I was wondering if anyone has had their child recieve bladder stimulaton and if so what was the outcome? Mom to Christopher 7, Hunter 4, Olivia 2 1/2 L5/S1 shunted, urogenic...

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Newbie to the group

Hi I'm Kim, and my daughter Alyssa is 3 1/2 born w/ spina bifida. She has a VP shunt and has had 1 revision and brand new one put in once. Along with that, she has epilepsy,...

2

Jonas

we had a myelo clinic today. we left the hospital feeling that all was well. however the results of the ct said otherwise. he will be going in on monday to have a shunt...

8

My Brother had SB

My Brother, Christopher had spina bifida. I just joined facebook, and was looking through profile groups. I saw this one with the lil girl and started crying. Our family was...

20

HI

My baby boy 1year old has spina bifida. It wasn't pick up by any scan, what a shock!! Now he is a very lively boy, who is progressing fantasticly, he is pulling himself up to...

1

Where did the time go?

Hi there. My name is Kathy. I'm 33 and have a beautiful (and very feisty) 10 year old daughter with my husband Mark. My daughter Polly was born with Spina Bifida and...

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New

Hello all , my name is Michele and my son Tyler is 13 and our family live in the Atlanta area. Are there anyone who live in the area? Tyler is a mylo patient , well he started...

1

new to the site

hi everyone. I am new to the site and just wanted to share our experience. we live in southern ohio and travel 1 1/2 hrs to columbus for our drs appt. my son is almost 8...

2

Hi all

Hi my name is Sue i have 3 Boys my middle one has Spina Bifida & Hydrocephalus with a Chiari II Malformation he has a shunt and has had 4 revisions he has also had bowel and...

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AJs Spina Bifida appt

He had clinic on the 19th - all the drs were very happy with how well he's doing. He had a shunt series & renal u/s done while we were there. 1 dr. noted on the shunt series...

1

Thanksgiving

I hope everyone had a wonderful Thanksgiving!! I wanted to say thanks for being a part of our community. I hope this offers each one of you friendship during sometimes...

1

It's not my daughter...

Hi all It's not my daughter that has spina bifida it's my older sister, Enza. I grew up with it so felt comfortable joingingt his group. I've leared so much over the past 40...

3

Vandy mom as well, sort of...

My name is Kirsten and I have 4 boys, the youngest born with spina bifida. He also had in-utero surgery at Vandy Dec 01 by Dr Tulipan/Dr Brunner. We live in Madison, WI and...