Lizz - posted on 01/15/2010 ( 19 moms have responded )
Hello, my name is Lizz, I have a 4 month old son that was born with spina bifida and hydrocephelus, I have 3 other girls so he is the first son! We found out at 20 weeks the week before mothers day! THe drs said he would not be viable and that I had to go to another hospital that specilizes in this care and can do termination b/c he didnt do that, I was absolutly against this! Thank god because my son is an abslolute joy, and we are all head over heels in love with him! he had his first surgery right away to fix the spinal cord(L3) and a week later for his VP shunt. He has feeling all the to his ankles so he actually has a mild case! and they said he wouldnt live!, When we went to the childrens hospital they were very positive about pregnancy and that the baby would be fine! I would love to chat with other mothers for info or just for support! I am a stay at home mom!