Amy - posted on 04/09/2012 ( 4 moms have responded )
My son Xander was born March 2, 2012 at 25 weeks 2 day he was 1lb 12oz and 12.5 inches long.. He has had many issues grade3/4 IVH which has caused many seizures, 2 lung bleeds, many blood transfusions, severe edema, kidney problems, still has a PDA, and now after 7 weeks of being in the NICU he has NEC.. and he is also still on the oscillator they have not tried to wean him from it.. The Dr. called me this morning about the NEC because he just started showing signs of it around 4 this morning they put in a tube to drain stool and toxins and gave him a blood and platelet transfusion.. they said they arent sure how much of his bowel and intestine has been compromised and there is really no way to tell until 24 hours has passed because they are too afraid to operate on him. they are just going to monitor his platelet counts to see if they get low again and if they do it means there is a big section on intestine that is bad if they dont only a small portion is bad and maybe it will correct itself.. the Dr. told us that they have stopped evaluating him as when will he get better and evaluating him as what else will go wrong and they just arent sure if he will make it out in the long run of things.. Im starting to lose hope here.. has any one else experienced these things and came out ok?