Am looking for anyone who had a premmie who was fed through a GAVAGE tube that now has nasal/sinus

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

8 Comments

View replies by

Keli - posted on 05/29/2010

45

58

5

Well just updating how it all went. The operation itself went well. Unfortunately we still have nasal issues, we've had a postnasal drip since we came home from the hospital which was just over 6 weeks ago. So who knows where we go from here. On the upside the snoring and sleep apnea has stopped.

Andrea - posted on 12/23/2009

565

29

55

Thank you for confirming my suspicions. My son has nasal issues when he had the g-tube in and they had to change it frequently. He now breathes really loud and even snores! He is always having nasal issues. I wondered if the tube had done some damage. I should get it looked at.

MaryLou - posted on 12/22/2009

3

14

0



Mary Lou



My son was a 24 weeker and he had that surgery done at 2 years old and he has been doing great. He did have a nasal feeding tube and eventually got a g-tube, which helped with his weight.  His pediatrician follows him very closely on his feed and growth.  My son got a g-tube and nesan wrap due to reflux.  I was afraid to let him sleep on his stomach due to g-tube, but dr confirmed it would not hurt him.  I beleive all preemies love to sleep on their stomachs.  I tend to do a lot of praying before every surgery and also a lot a researching on the internet.  If you have faith regardles of religion your god will get you thru this.  I try not to be so upset on the day of my son's surgery, since I have been told that your child can sense a parents fear.Quoting Keli:

Thank you all for pretty much confirming my thoughts. Jako is 2.5 and even though he's a 34 weeker he was very sick at birth. had a gavage tube until about 3 days before we came home. He's always had nasal issues since we brought him home. They have discovered that his adnoids are defective and so are coming out in March along with his tonsils as he has abnormally large tonsils and getting grommits ( tubes ) in his ears because he can't get rid of the fluid behind his ear drums. For a long time I kept wondering if it had anything to do with the feeding tube because if you ever watch them put them in and pull them out its a little barbaric.
He's also a reflux baby which was interesting in itself. He still only weighs 12.5kgs so has to spend some time in the peadiatric ICU after the surgery. I would also like to hear from anyone who's had premmie who's had similar surgery at this age... I'm a little freaked out as to what to expect....





 

Keli - posted on 12/20/2009

45

58

5

Thank you all for pretty much confirming my thoughts. Jako is 2.5 and even though he's a 34 weeker he was very sick at birth. had a gavage tube until about 3 days before we came home. He's always had nasal issues since we brought him home. They have discovered that his adnoids are defective and so are coming out in March along with his tonsils as he has abnormally large tonsils and getting grommits ( tubes ) in his ears because he can't get rid of the fluid behind his ear drums. For a long time I kept wondering if it had anything to do with the feeding tube because if you ever watch them put them in and pull them out its a little barbaric.
He's also a reflux baby which was interesting in itself. He still only weighs 12.5kgs so has to spend some time in the peadiatric ICU after the surgery. I would also like to hear from anyone who's had premmie who's had similar surgery at this age... I'm a little freaked out as to what to expect....

Jennifer - posted on 12/19/2009

622

12

83

My son was a 29wker and is now 3 1/2. He was gavage fed for the first 34 days. He has had "upper respratory" issues (nasal/sinus) basically since birth. His main issue has been his throat, constantantly getting infections and viruses. He also has a VERY sensitive gag reflex, even today, but it was the worst his first 18/20m, where he very rarely kept a feeding down. He had his "huge" adnoids removed at just over two years old and that made a tremendouse differance in how often he was sick, but recently (the past 4 monthsish) I am seeing signs that maybe they have grown back. We finally got him allergy tested at two and a half, but his seasonal allergies are minimal and his environmental allergies major. He takes a strong allergy med and uses nasel spray twice a day, August through May (we are in Texas). And lately even it isn't totally working as he has drainage daily (runny nose and congested after waking in the morning or naps). So...not sure that's what your looking for, but I certainly understand any frustration you might be having!

Diana - posted on 12/19/2009

51

6

3

How old is your prem now? My daughter is a 25 weeker, born May 2, 2008, and had a g-tube until she was released (a week before she was due to be born). After having her home for two months her breathing became horrible through her nose. She was very loud and everyone, including her Ped, commented on it until finally we had to take her to a specialist. He checked her with a scope. He found that her trach/larnyx and voicebox were great, but her nares/nostrils were narrow because of her prematurity and she would eventually outgrow it or rather they would grow into her. Well she is now 19 months, 16 months corrected and she breathes perfect. I had been so used to hearing her breathe that I couldn't sleep for 3 days because I would think she stopped breathing. Have the nostrils scoped, unless you have already done so. Good Luck!

Carie - posted on 12/18/2009

166

38

31

My little girl had a feeding tube and I think that they are no good. I know that some little ones need it but for my little one she did nothing but spit up. For 7 months they made us keep it in and for most of that time she did not gain weight very well (the whole reason why she needed it). My husband and I decided to just give her a bottle and that was the end of the feeding tubes. Now at 21 months I agree with Marika, Kaylee has a lot of sinus problems. She has acid reflux too. I am sorry if I scared anyone the truth can be scary and I am willing to answer any questions anyone might have.

Marika - posted on 12/17/2009

30

34

5

hi keli my daughter was born at 28weels and had a nasual tube for 12 weeks she get sinus quiet badly she is now 20 months if you go to your g.p they get have dimatap 1 ml as young as six months usually its not allowed in children under 2 they can prescribe a scpipt for half dose

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms