Did any other Moms 24 week preemies do real well in the NICU?

Jade - posted on 01/02/2010 ( 35 moms have responded )

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My son was born at 24weeks and 3days he weighed 1b 10oz He did extremely well he was on the ventilator for only 3days after he was born then right to C Pap side pap high flow and then regular nose cannula in the first week and half after he was born! Of course there were a couple of downs and that was a staff infection so back on the vent but quickly recovered back to cpap , high flow and then regular cannula. The only surgeries he had was his hernia repair and laser eye surgery! His stay in the NICU was two and half months. We were very lucky and blessed! I did of course have the steroid shots before i give birth do to what was going on with my pregnancy so i was told that it helped with him not having brain bleeds and heart problems. I was just wondering if anyone could relate to me? My heart does go out to the mothers who had a harder time its never easy! Thank you!

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Our Identical twin daughters spontaneously arrived @ 24wks+5days.
No time to prepare!!!, & for a first time experience & at some point feeling the situation & surroundings surreal.
Lots of medical concerns/treatments & they have miraculously, no repercussions to date. Now 9 1/2 yrs old, above age academically, & height, outgoing personalities, eat like horses;) he he
I have the list of poblems etc in my Bio, if piques any interest or questions I'm happy to share the hope....
Love & Light! *

Bri Lee - posted on 03/22/2013

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My daughter was born 24w I was hospitalized for a week before she decided it was time to enter the world. My water broke early! I was fortunate to get steroid shots and everything else before she came. But she is still in the NICU being a strong little girl! I know the road ahead will be rough, but I'm being optimistic! Reading all these other stories are giving me more
Hope in my daughters survival! Thank you mommas for sharing your stories!!! I hope to be another 24 weeker success story in the future!

Jamie - posted on 02/01/2010

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My son Jack was born at 23 weeks gestation as a result of an incompetent cerix. I did not get the steriod shots because the hospital I was at didn't give them before 23 weeks. I give tons of credit to the hospital for my son's life, and the rest goes to the powers that be and no small amount of prayers from familym friends, and friends of friends. He's also a stubborn little guy, and that has served him well from the beginning. Jack was 1 pound 6 ounces and 12 1/2 inches long, born by cesearean delivery. He cried immediately after being born and fought being ventilated, so much so they had to sedate him. He was immediately put on medications to stabilize his blood pressure, caffiene to stimulate his breathing and to prevent apnea, and antibiotics as preventative. He was also kept on morphine in the beginning to sedate him and to keep him pain free; for the first 48 hours he was on min-stim; essentially he had ear and eye muffs on and we had to be very quiet around him. The blood vessels in micro-preemie's brains are so weak that any reaction(increased heart rate, pain) can cause a brain bleed. Because of the surgery, I did not get to see him until the day after he was born, and even now I am ashamed to say that I was terrified to see him. I needed to see my baby, but was also so scared of what he would look like, or that he would die. When I first saw him, I just sat, stared, and cried. For the five days I was in the hospital I was terrified when my room phone would ring, because I was convinced it was the NICU calling to tell me he was gone. I was sent home after 5 days, but lived only 5 miles from the hospital, so I was able to go daily (and sometimes at 3 AM!) to see him. There were a few days when I was sick, and couldn't go, and those were very hard days. Even though we had ben warned that there would be good days and bad days for him, it was still soooo hard to watch that tiny baby struggle. As he got bigger he started to pull at his ventilator, and at his IV's, so we knew they were bothering him. At 4 weeks, he had heart surgery to close his PDA; he was on a ventilator for 3 1/2 months, and then went to cpap. A month before coming home, he was placed back on the vent for surgery to repair an inguinal hernia, and had to be weaned again. He came home on nasal cannula, but was only on it for a month. He also had several blood transfusions, because, because they took blood for bloodwork faster than his body could reproduce it. It was such a long road, and it was a very rough one, but for all that, we are so very fortunate. Jack only had a grade 1 brain bleed that reabsorbed, mild ROP that his opthlamologist says should cause no problems, and so far only very slight developmental delays. He sat up a little late, but is making strides to walking, and eats everything in sight!! He seems a bit small to me, but other than needing breathing treatments when he gets a cold, he is a very healthy, normal baby boy! He does have scars from his surgeries, from the iv placements, and he has no bellybutton, just a starburst!

Vanessa - posted on 02/15/2013

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My son was born at 23 weeks 4 days. Weight 1lb 9 oz. Was on the ventilator for about 2 months then went to the cpap and then to the nose cannula... He was in the NICU for 105 days......had surgery to put in a broviac in his chest for meds and was taken out before he went home. He did also have a grade 3 bleed in his right side of his brain and grade 4 on his left. He also recieved blood transfusions.....it was very hard to see him like that every day but we knew it was for the best......he went home off oxygen but came back to the PICU a month later with conjestive heart failure and pulmonary hypertension. and did have to come home on oxygen.....BUT thank fully is off of it now and doing very well.....his heart is back to normal and thankfully doesnt have any lung problems.....

Teresa - posted on 01/31/2010

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My youngest son was also born at 24 weeks,he weighed 2lbs 2ozs and was 13 inches long.The doctors at Northeast told me not to get to attached because he probably would not make it out of the hospital.Two hours after his birth he died three times and was revived.They rushed him to CMC neonatal ward where he stayed until he was three months old.AJ lost down to 1lb &2ozs before he ever started gaining weight.We all call him our miracle baby.AJ is 21 years old and happily married to a beautiful young woman.The doctors said we would not raise him past the age of 5.He was born with chronic asthma and bradycardia,both of which are gone now.God works in mysterious way,some times man can not understand or comprehend them.I have always felt that AJ has a higher calling,I just think he is running from it now.But I am sure God will show him the way.

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Christina - posted on 09/05/2013

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I just recently gave birth to twin boys at 23weeks 4 days one weighing 1lb 1oz the other weighing 1lb 4oz. My 1lb 1oz baby made it for about a half hour but ended up with a punctured lung. I feel he passed so he could watch over his brother and help him get through this. He is now a 3 weeks old he has grade 3 bleeding on left side and grade 4 on right that is leaking into the brain tissue. He had PDA still has it but not has bad. He now has chronic lungs disease. It hurts to watch him go through all this. I am hoping for the best. The doctors say he's going to need alot of help when he's older. It's just very upsetting to hear because they say they can't tell what he will do next but they tells us he will have this or that. Anyone out there have a 23 weeker who doesn't have alot of problems?? I can't imagine our little guy going through more stuff than he already is! I hope and pray everyday it is something minor!

Bri Lee - posted on 03/26/2013

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@jillyan I am so thankful for the NICU staff, you're absolutely right about if the nurses and doctors don't freak out then I shouldn't worry. They have been so informative and nice and helpful to me! My daughter is doing well today and they were able to feed her more of my milk! How is your little boy? Doing well I hope! :)

@crystal, I hope your little one is doing well! Keep your head up and this site has been encouraging and helpful to me with the whole NICU and having no clue on what to expect! The other moms on here are awesome!!!!!!

Crystal - posted on 03/26/2013

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My lo was born at 26+3 at 1 lb 2oz. He is IUGR and currently 34+4 at 2lb 9oz. He is currently on the conventional ventilator and has had a successful pda ligation. Today he is undergoing an injection of medicine into his right eye due to ROP. This has been one of the most draining experiences in my life, but I look forward to a beautiful future with my lo. It is helpful and inspirational to read the stories of other mothers. I wish the best for all our little miracles. ♥

Jillyan - posted on 03/25/2013

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No worries Bri Lee. I am glad to answer any questions you may have.

The best advice I can give you is: If the nurses and doctors don't freak out, then you don't freak out. It has helped me throughout both my nicu experiences and has led to me bonding with the nurses and doctors.

I am rooting for your little girl as well :)

Bri Lee - posted on 03/25/2013

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@jillyan wow! It seems we are going through the same thing at the same time! My little girl has been in the NICU for almost2 weeks now as well! Thank you for your words of encouragement! I've never had to go through this before and my nerves are less then stable.
But I've had a lot of support and plus this awesome site helps me realize that tons of other moms have gone through this as well! I wish you an your son a speedy home coming and all goes well!!:)

Jillyan - posted on 03/24/2013

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My 1st son was a 27 weeker and is now 3 years old. He had a 3 and a half month stay with a grade 2 brain bleed, a pda ligation, and a hernia repair surgery. He went home with no medical equipment and is doing great. He is speech delayed but the therapists and I believe it is more from stubborness than actual limitations.
My 2nd son is a 24 weeker and is currently in the NICU. He has a grade 2 brain bleed as well and a pda. Right now he is 2 weeks old and on a ventilator. I did recieve steroid shots and MAG for both boys and I am so thankful for both.
The NICU is scary and frustrating but you will survive. You can make it through. I have done it and am doing it again. To see your child and be able to hold them while they go through this is hard but it is doable. They are always worth it :)... Just keep breathing and you will make it.

LOREMBAM NIKITA - posted on 02/03/2013

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I HAVE MARRIED 2 YEARS AGO TILL NOW I CANNOT HAVE A BABY AND MY HUSBAND IS NOT HAVING SPERM IS THERE ANY MEDICINE TO MAKE SPERM FOR MY HUSBAND IF YES PLEASE SEND THE NAME OF THE MEDICINE AND IS IT AVAILABLE IN KOLKATA(INDIA)

[deleted account]

I read some of the posts about not being able to look at pictures, etc from NICU days. I have to say I am completely the opposite and just want other moms to know that it doesn't have to be a sad experience. I had twins at 33 weeks (I know this is VERY different than your micro-preemies) and am thankful every single day for our NICU days. It allowed us to bond as a family in a way that most ppl don't get. As a first time mom, I would have been PETRIFIED to bring those babies home after only a few days. We got to do something different. We have a different story to tell. We got to bond in a way that most families don't get to do. It was amazing to watch them get stronger at every 4 hour check!! We were such a well oiled machine by the time we left that NICU. It may seem weird to some, but this was my take on it to minimize stress as much as I could. Good luck, NICU families!!

Patricia - posted on 02/08/2010

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One of the things that I had to overcome is the guilt that I felt because when my son was born at 24 wks 1 day, he did relatively great compared to another 24-weeker that was born a few days later. He was on the vent for a month because of a two-week fight with pneumonia, then went to the CPAP for another two weeks. He had to go back to the vent for a second bout with pneumonia for two weeks, then to the CPAP and nasal cannula before finally coming home after 92 days in the NICU. I only got two steroid shots during the 5 days I was in the hospital before he was born (I had an abruption). One thing that I have always said is that God will not put on us any more than we can handle. We must lean on each other to make sure that not only our children's emotional well-being are supported, but ours as well.

Check out his updates website at www.firstclasslogistics.net/alexzander

Ashley - posted on 02/01/2010

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I just had my baby girl on Jan 23rd she was due May 15th. She weIghed 1 pound and was 12.7Inches. It was hard for me because this is my first baby and i had to have an emergency C-Section just to keep her alive. everyday she is doing better and better. She is a miracle baby and when she was born had a 50/50 chance of living. I love that little girl so much and its so hard for me because I wake up in the middle of the night hearing a baby cry and i want to hold my little girl. She recently had her ventilator removed and was on CPAP only, but after an emergency surgery this morning her ventilator had to be reinserted. The only thing that has been helping me through this tough time is prayer along with the support of my fiance and my family and friends. No matter how hard times look and how tough things may seem always remember God is there and he will never let you down.

Arieal - posted on 01/31/2010

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I had twins @ 28wks my daughter weighed 1lb 3oz and my son 2lbs 3oz it was horrible I had preeclampsia my fiance passed away 3mo b4 they were born. The twins were in thier about 3mo HARDEST thing in my life Ill save u 4 now all the things that still make me cry, but they r 4 1/2 right where they need to b in every aspect of a 4yr olds life. I was truely blessed, to have it turn out this way.

Elizabeth - posted on 01/31/2010

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My 4th was born at 25 weeks and he was on the vent for a month. He had only a level 1 brain bleed, no PDA and no ROP but his intestines perforated when he was 7 days old. We were terrified of NEC, but miraculously (even to the doctors) his intestines healed themselves. For me, it was the intense prayer of those who knew about his story. He had a hard time getting off the CPAP and then eating or gaining weight. We ultimately discovered he cannot swallow thin liquids and is still on thickened liquids - he just turned 2. We spent four long months in the NICU, I visited every single day and prayed - a lot. It was important to get up and get dressed well each day - to put myself together on the outside to prevent falling apart like I felt on the inside. It gave me some semblance of being held together! He did come home on oxygen, cardiac and apnea monitors. There are on-going pulmonary & gastroenterology issues, and last week he was put on allergy shots. He has been diagnosed with a difficult espaphogeal disease that apparently has nothing to do with his prematurity - but I still wonder. Best of luck to all the brave moms here and their beautiful preemie babes!

Amzy - posted on 01/30/2010

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my son was born at 24 weeks and 2 days. 1lb 9.5oz on 6 th november 2009 at 12.23 i cant really say anything about the c-pac he was gonn go on it when he was a week old but he became really ill. she had a operations. when he was 10 days old and when she was 13 days old the doctors said there was nothing more they could do. 19th november 2009 my son connor paul all thats babys survied

congrats to

Kayla - posted on 01/29/2010

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Yes, my little girl was born at 26 weeks and weighed 1lb 11 oz. She was only on the ventilator for day and the nasal cannula fr abot 2 months. She has a PDA and another hriditary heart defect, but nothing else major, I felt like we glided over all the other major hudles I also ot the steiod shots and Ifeel blessed, but my heart goes out to all the other mothers.

Leila - posted on 01/29/2010

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WOW thats amazing! my son was born at 25 weeks weighing in at 1lb 8 oz and he was on the vent. for 2 days then cpap then back on the vent for over a month. he came home 70 days later on oxygen and an apnea monitor just goes to show god has a bigger purpose for our lil miracles

Christina - posted on 01/28/2010

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My son Christian was born at 23 week gestation, he weighed 1lb 1oz, 10 in. He was in the NICU for 6 months recovering from heart surgery, laser eye surgery, and collapse lungs. We took him home still needing the nasal cannula. He did not have a brain bleed but did start having seizures a year later. He is 8 now seizure free and medication free but blind due to ROP. We are still working on his delay, but feel very blessed that his is making progress. Glad to know that we are not alone in raising a preemie.

Juanice - posted on 01/08/2010

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Our daughter was born at 23 weeks and 6 days, she had a 2 month and 14 day NICU stay at Cook's Children. I did not get the steroid shot though. She is now 8 months old and we have not had any issues at all.I feel so blessed that our NICU stay went very quick and was very uneventful. She weighted in at 1lb and 9oz when she born we have no clue how long she was because it was about a week before they got around to doing that lol. But now she is a 11lbs and is 26inches long.

Angela - posted on 01/07/2010

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Hi Jade

My son Toby was born at 24 weeks and 4 days gestation weighing 669 grams (1.5 pounds - sorry in Aussie so we use grams and kgs). I only managed to get one steroid shots 2 hours before he was born via emergency c-section due to severe neurological pre-eclampsia. Toby was in the NICU for 77 days and another 44 days in HDU and SCN so 121 days (4months) in total. He did have a pretty easy run compared to other stories you hear. He was ventilated for 19 days in total and CPAP for 55 days, a lot of feeding intolerance (and is fussy feeder to this day), ROP grade III with laser eye surgery, PDA took ages to close, two infections etc etc, BUT no brain bleeds, no NEC, No PDA surgery, No hernias etc etc. He is 18 months actual or 14 months corrected and is doing really well but may have some early signs of very mild Cerebral palsy in his ankles as he toe walks - apparently some who toe walk go on to walk normally but others it is an early sign of CP..... just have to wait and see....

Take care

Angela

[deleted account]

My daughter also had RSV at 6 months...stayed 7 days in the hospital...after that she was ok. The long term effect of the RSV is whenever she gets a cold it tends to last a long time, with breathing issues. I always have to give her breathing treatments, over the years she has gotten alot better...

Shelbra - posted on 01/07/2010

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My Daughter was born at 26 weeks, weighing in at 2lbs 4 0z. I received the steroid shots two days before she was born. She dropped down to 1lb 13 oz while on meds waiting for her PDA to close. She was on the ventilator for a few days, then to high flow for a week, low flow for two days, now on the regular nasal cannula (at the lowest setting of oxygen). She now weighs 4lbs 3 oz, receiving nipple feedings. Everything is going well, but I'm a little worried about her still being on the oxygen. She has been in the NICU since November 20, 09. I am very blessed that she is here with me an has not experienced any complications, but I can't wait til she is taken off the oxygen. It is really hard to go see your baby daily and can't take her home. When I see her progressing each day, it just makes me even happier to get up and go see her each day. The hardiest part is that her sister and two brothers will not see her until she comes home. So I take videos daily of her to show them, it makes them so happy and not really think about not being able visit her. May God bless everyone's lil precious miracle.

Jennifer - posted on 01/05/2010

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my daughter Ava was born at 24 weeks weighed 1lb 4oz she was in NICU for 5 months and 2 days. i also had the shots before having her . she was on the vent for 6 weeks she had intestine surgery 3 times , her PDA shut, now she did have a grade 3 brain bleed on the left and and a grade 4 on the right. She is now a happy 14lb 13 month old and is doing great and with all she went through they are shocked at how well she has developed and advanced she is at this point due to the surgeries and the bleeds.

Noelle - posted on 01/05/2010

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My son was born at 24 weeks and weighed 1 lb. 11 0z. Our story is very similar to yours. He stayed three months in the NICU and ended up having the lazer eye surgery and double hernia surgery, but has excelled and is flourishing at 18 months. We did have a bit of a scare, when we ended up in the ER New Years Day. He had a temperature of 104.5 and ended up being diagnosed with RSV and had to stay in the hospital for the next three days because he wasn't taking in enough oxygen. This quickly brought back all the fear and anxiety that went along with our NICU stay. At least this time I could hold and squeeze him and comfort him the whole time, even if I did have to keep untwisting him and all the wires. My heart goes out to those mothers who have to deal with the hospital stays on a regular basis. I really don't know how they do it.

[deleted account]

I received the steriod shots, and my 24 weeker did great, did not need the ventilator because I received 4 series of the shot. Why would you not get the steriod shots again?. What is harmful about the shot? My 24 weeker is 10 years old with no medical problems. I feel that because of the shots her lungs were developed much more than a 24 weeker. Lungs are primary issue for preemies that tends to be a long-term problem.

[deleted account]

My 24 weeker did very well...she is now 10 years old with NO medical problems and also a "A" student.....preemies are special children and they do very very well. Enjoy your baby and focus on all positive thoughts. Preemies do very well, build great relationships with your child doctors, and seek out professionals that have cared for 21 - 29 weekers, it makes a big difference. My daughter was in the NCIU for 3 months, during that time she had some medical concerns but was able to get over them. A mother and father touch is the best care your baby can get. So spend as much time with your baby...he/she knows you are there. Every preemie is different with their own little concerns, so keep only happy thoughts...Good luck.

Bobbie - posted on 01/05/2010

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The "will" of our lil'ones are so great! My son was born at 24 weeks, and weighed 1lb. 7 oz. My lil'fighter did well on the ventilator also, but he caught an ecoli infection a week after he was born which was a major set back and prolonged his stay on the ventilator. he was 2 months on the ventilator, then high flow cannula, and now he is at 1/2 liter. The only surgeries he has had is for his eyes, the hernia surgery is scheduled in a month. He stayed 3 months at NICU. Came home day after Christmas. But Was back in NICU Jan. 1st. for strep infection in the blood. Good news he is recovering fast and will be back home in a week!!! I agree with the steroids giving, my son had no brain bleeds or heart problems at all.

Crystal - posted on 01/05/2010

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My Son was 24 weeks 3 days early. It was the worst experience of myt life. He's doing amazingly well now tho. He was bron early due to a UTI that my Doctor missed. He was on the CPAP for about 8 days after he was born. Then they switched 4 hrs CPAP 4 hrs High Flow Canula. He was born at 1lb 9oz 12 1/2 inches.Our NICU stay was 103 Days. tho it felt like forever.He was born June 30th 09 My due date was October 14 09.Best Of Luck To You All. Your All In My Prayers. ~Crystal~N~Trenton~

Nancy - posted on 01/04/2010

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My daughter was 1/13 and she is doing GREAT.. She is 14 and has no problems at all..

Samantha - posted on 01/02/2010

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Quoting Misty:

My daughter was also a 24 weeker due to me having preeclampsia & severe HELLP. She weighed 1 lb 2 oz & was 11 3/4 inches long. She was on a ventilator for 7 weeks, then CPAP to canula. Several laser eye surgeries in the hospital, wearing glasses now. 142 days in the NICU & she is now 14 months old. It's hard to look at pictures now from this time last year realizing she was still in the hospital & how far she has come. We were very blessed like your family to have no ongoing issues. What a true blessing micro-preemies are!! Good luck to you and your family!


Misty, I so understand what you mean about not being able to look at the pictures of them then. I have put away along with the clothes that he had on at the hospital. I always tear up when I look at them, but I always give thanks because Im so glad he made it and is home. I put his sleeper that he wore home along with a copy of his birth certificate from the hospital in a frame so everyone knew how far he came. Especially him when he gets older.

Misty - posted on 01/02/2010

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My daughter was also a 24 weeker due to me having preeclampsia & severe HELLP. She weighed 1 lb 2 oz & was 11 3/4 inches long. She was on a ventilator for 7 weeks, then CPAP to canula. Several laser eye surgeries in the hospital, wearing glasses now. 142 days in the NICU & she is now 14 months old. It's hard to look at pictures now from this time last year realizing she was still in the hospital & how far she has come. We were very blessed like your family to have no ongoing issues. What a true blessing micro-preemies are!! Good luck to you and your family!

Samantha - posted on 01/02/2010

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I can relate to you. My son was born at 28 weeks. He was on the ventilator, CPAP and the regular nose cannula also. They also had the tube down his throat to feed him for awhile. He then went to the little bottles and stayed on those up until he about a month and a half. He didnt have any surgeries but they did tap his spine to make sure that he didnt have any infections. That I was nervous of, but glad that it was done. Everything went great. He also had to receive blood because his blood count was low. That had me even more scared than the spinal, but thankfully everything went great.He only stayed on the hospital for 26 days. He weight 3lbs. 2ozs when he was born. We were so happy that he didnt have to stay that long. When he came home he was right at 4lbs. I too received the steriod shots and I will not get them again shall I every get pregnant again. I just wanted to comment and let you know that I am glad your son is doing better. I am so thankful for all the nurses and doctors at PHR. I would have probably had a nervous breakdown if it wasn't for them. Good luck to you and your family.

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