Jennifer - posted on 06/20/2012 ( 2 moms have responded )
My son was born at 30 weeks last month. He had been doing great until this past Friday when we got a dreaded call from the doctor that he "wasn't feeling well". We rushed to the NICU where the doctor told us that he was having a lot more bradys and his belly was really swollen and he wasnt tolerating his feeds. He told us it looked like NEC and then told us he was flying him by helicopter to a better hospital with more specialists.
So we flew by helicopter and upon arrival he appeared to look a little better. His belly had went down some but then that morning his belly doubled in size in less than an hour. They had him ventilated and on 100% oxygen but his oxygen level was only in the 60s. They had him on 3 different antibiotics, did two blood transfusions and also gave him platelets. Basically he was crashing fast. The doctor said that basically he wouldnt make it, that it appeared probably his intestines were dead but they would do surgery to find out......the WORST news ever!!!!! Anyway, by the grace of God the dr rushed out about 10 minutes into the surgery and said none of his intestines were dead, they were all still pink but they were so swollen they had basically cut off his other organs. They put his intestines in what they call a Silo, which looks like a clear balloon which hangs over his belly....over time and as his intestines get smaller they fall back into his belly.
The bad thing is, they still dont know what caused this. All his blood tests for infection have came back normal and he is doing much better. The doctors have said they are diagnosing him with a Septic Ileus.....however I cannot find any information on this and am just curious if anyone else has ever heard of it?
We have a long road ahead, and not being able to find anything on this is hard because I would just like to know what other people have experienced in this situation?