G Tube

[deleted account] ( 6 moms have responded )

Hello, are there any mom's out there who's child is fed through a g-tube or who has TEF/EA?

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Tina - posted on 04/18/2009

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I have an 18 year old that has had the g-tube and nissen since he was 8 years old. He had trouble keeping the meat on him so to speak. After not going weight fast enough and staying the same weight for 3 years, we give in to have it done. I was extremely against it because he is a very good eater by mouth and I just couldn't understand why we would need it. I was in denial..... My attitude soon changed. We have really gotten attached to it now. It never gives us a problem unless someone accidently knocks it out and we don't catch it in time to have another put in. I hope that if your child needs one that it will be as easy as our to have kept. If anyone every needs to talk please let me know.

Karen - posted on 02/09/2009

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Yep, g-tube mommy here. My son was a 31 weeker last June, but was suffering Kidney Failure. He naturally was NG fed for part of his NICU stay, but as soon as was allowed thrived on the bottle. Once he started sleeping 10+ hours at night, we decided to put in a g-tube to help him grow more. You have to be 22lbs before you can have a kidney transplant as a baby (have to be big enough to hold an adult kidney). We've been g-tube since Oct of this past year...so going on 4 months now. Gaining and growing. YAY! though he LOVES to pull it out...arg!

April - posted on 02/08/2009

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My son Edwin is 2 years old. He has had a button (g-tube at first) since he was 3 months old. He also had a Nissen. Edwin, and his twin sister Annabelle, were born at 28 weeks. He will finally get his button out on Feb. 20th! We are so happy!!!

Eliabeth - posted on 01/28/2009

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My son Adam has a gastrostomy, and a mickey button for all fluids, though he can eat mashed food, but anything 'runny' he just aspirates.



He was NJ fed until he was 16wks old, then NG, then bottle fed, but due to his medical problems and disabilities he had to go back to NG feeding when he was 22mths, then he had his button done when he was 2and a half, best thing we ever did, no more choking, no more lung infections, and he gained weight! Adam will have his button for the rest of his life.

[deleted account]

Yes, I have totally been there. Our daughter had a nissen and g-tube put in at 6 days old. Scared the heck out of me at the time, but seeing my child thrive and grow after the procedure made me realize it wasn't bad after all. I couldn't believe how common it was either. We had it for only 5 months, and started bottle feeding again after about 2.

Kidada - posted on 12/02/2008

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My daughter was fed with a g tube for about 4 or 5 months. She had the nissen procedure done at 2.5 months and a g-tube. Once the nissen corrected the acid reflux we weaned her off of the gtube and started giving her baby food and formula.

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