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HELP Dose anyone eles have a baby with a paralized vocal cord,

Holly - posted on 04/28/2009 ( 2 moms have responded )

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Hi everyone my daughte has a paralized vocal cord from her PDA . I'm terrified i won't hear her at night when we bring her home does anyone have a suggestions so i know i will hear her when she cries cause its so quiet. please HELP

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Dani - posted on 06/14/2009

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one of my twins had his PDA liagated.. he is quieter than his sister.. but they dr said we will have to wait till he starts talking to see if there is any real damage to his vocal cords.. thats still a long time away.. they r 17weeks or 6weeks corrected age..

Julie - posted on 04/29/2009

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YES!!! I was actually thinking of posting on this topic, but we are doing very well with it. My son also had a PDA ligated and was paralyzed because of it. The NICU nurses used to tell him he had to get louder so we'd hear him at 2am! He slept next to me in a cosleeper until he outgrew it. I am a light sleeper, so this worked well. He kept getting louder, but every time he was scoped, it was still paralyzed and the doc said he was compensating very well. Most recently, ~10 months corrected (13 calender), she suspects it is permanent, but he is fully compensated as his right cord gets all the way and contacts the left. She did say originally it may come back at up to 2 years of age, but I'd be surprised if it did. He still sleeps in my room in his own crib (his room isn't done yet) but I can hear him fine on the monitor when i get up to go do stuff in the morning as he usually sleeps in. Was your daughter also on a ventilator for a while? My LO was on for 6 weeks or so and he didn't make any noise until he was 3 months old, I think. I wonder if that didn't also play a role... She will get louder, you'll be surprised. Anyhow, our guy is doing great but we are having feeding issues related to starting solids and that may be related to the nerve damage that paralyzed the cord...



Good luck, and don't forget your "super mommy" senses will kick in when she's home and you'll hear her needing you, either on a monitor or next to you! Feel free to send a message if you'd like.

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