Hemangioma (stork bite, port wine stain, etc.)

Elizabeth - posted on 10/18/2009 ( 38 moms have responded )

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My son was born at 25 weeks. He has a hemangioma birth mark that covers most of his arm from his wrist to his elbow. Another baby that was in his NICU had 2 of these marks on his body. My son is now 2, and the hemangiome has faded but is still there. The doctors tried to tell me it didn't have anything to do with him being a preemie, but I have seen so many preemies with these marks on them. How many of you had preemies that have these marks?

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Lindsay - posted on 10/19/2009

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My daughter has a large on on the right side of her head just above her ear. I did research into them and anyone can get one as a baby, BUT preemies are more susceptable to them due to immature circulatory growth(capillaries and such growing incorrectly). It is basically the same problem as what they watch for with preemies' eyes. My daughter is almost 2 and hers has shrunk significantly, but unfortunately she has not grown any hair there, no ponytails for her.

Samantha - posted on 07/19/2012

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My daughter was full term born in 2009 and she has a hemangioma on her face...was there when she was born. Its faded now but i can't picture her without it.

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Lauren - posted on 06/22/2012

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My son was only a few days early and was born with a stain that covered about 1/3 of his body and was blackberry coloured. It starts halfway up his back on only the right side, covers that leg/bum cheek/foot. He is almost 3 now and it has faded considerably, it's more of a raspberry colour and his leg is quite mottled compared to the solid colour on his back. I've always felt that it was beautiful and unique and only lends to the perfection of him.There were never any tests done as his body was proportionate and there was no cause for concern. Everything I've read has told me that there was nothing that would have prevented it and no reason to think that subsequent children would have it but my next child did! She was born with a stork bite that was VERY noticeable until after she turned 1. They both get very inflamed when they cry and my other kids refer to them as mood spots :-)

Alicia - posted on 11/05/2011

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My daughter has been on propranolol for about 1 month and we already see significant improvement. She hasn't had any major side effects so we are happy with treatment thus far. Her nose is less swollen and the redness has started to fade.

Heather - posted on 11/04/2011

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I was told when my son was born by the drs that it is common in preemies but they couldnt tell me why. My son was born at 29 weeks and it didnt appear til like 3 days after he was born.

Aimee - posted on 11/04/2011

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only 1 of my 6 children had 1 of these but my daughters were very small she is know 3 and faddin hope this helps

Pamela - posted on 10/24/2011

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My premie has one on the back of her leg. It started to heal at 4 months and now she is 3 years old and it's very lite. I do know of several other full term babies of my friends that have them as well.

Alicia - posted on 10/12/2011

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My Daugher was born at 38 weeks and hers started to show at around 7-8 weeks. She has one on her nose that has grown significantly and two little dots on her right thigh. She is scheduled to start the clinical trial at Stanford Thursday and start getting the proranolol. It's disfiguring her nose so I hope it works.

Michelle - posted on 10/12/2011

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my 27 wkr was born with stork bites on his forehead, eye lids, ears and the nape of his neck! only the ones on his eyelids and forehead are finally lightening up.

Alicia - posted on 10/11/2011

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My daughter developed one on her nose at about 7 weeks. The pediatrician told me to wait until she was 2 but I took her to Stanford University/Lucille Packard Children hospital and they recommended she take proranolol since it's still growing (she's 4 months) an it's disfiguring her nose. Shell be participating in the clinical trial for proranolol for children with hemangiomas. I'm so glad I went to get a second opinion.

Amanda - posted on 01/07/2010

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my five year old born two months early has one on the top of her head and one on her back...she is five and they have gone down but not away..dr. said i would need to consult a dermatoligist to have them removed...my three month old was full term and dose not have any at all. i have done some research and it is more in common with under weight or premmies..

Erin - posted on 01/07/2010

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My son was born at 35 weeks and had the "angel kiss" on his forehead and the "stork bite" on his neck. I heard that the stork bite most likely won't go away with age, BUT it will be covered by his hair so no one will notice. As for the angel kiss, it should disappear or fade around age 2.

Deanna - posted on 11/10/2009

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My daughter developed hers about a week after she was born. I thought a nurse in the NICU had scratched (accidentally of course) her. Turns out it got bigger for about a year. She is now almost 3 and is slowly starting to fade.

Leslie - posted on 11/09/2009

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My daughter was born at 29 weeks. She had a hemangioma develop on the base side of her neck. Her doctor told me that it would go away by the time she is 4-5 yrs old or sooner.

Kristy - posted on 11/09/2009

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my little man has a strawberry on his head covered by hair now and totally fading and a tiny one on his hip which is more like a skin tag than a strawberry

Cathy - posted on 10/31/2009

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My son had a hemangioma near his eye, we had to have laser done on it to remove it since it was growing onto his eyelid and they were worried it would affect his sight. he was born at 25 weeks also

April - posted on 10/30/2009

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My son has a stork bite on the back of his neck ( he was born at 31 weeks 4 days

Bailey - posted on 10/30/2009

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my little girl was born 4 weeks premature, shes 10 days old now. and she has a stork bite on her left eye lid

Jesica - posted on 10/26/2009

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My son was a 35 weeker and he had one on his back. Hes 8 months now and it already seems to be lighter although his pedi said it would eventually fade away.

Mary - posted on 10/25/2009

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I had twins at 32 weeks.. one has 7 hemangiomas. We just had 2 removed surgically from his neck as he had another procedure that had him put to sleep. The 2 got nasty looking and even bleed one day- as his clothes would rub on them. We are leaving the other 5 alone. His twin brother doesn't have any.

Kylie - posted on 10/25/2009

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My son was born at 27 weeks. He has a stork mark on his right eyelid, and a strawberry birth mark on his right cheek, I call it his kiss mark! I wasn't preemie and neither was my husband but we both had the same birthmark, his was on his head and mine was on my forehead, so perhaps its genetic. I do think that being preemie their skin won't be developed when they leave the womb and they'll be more prone to marks and blemishes. I don't care what doctors say anymore :-)

Brooke - posted on 10/24/2009

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My little girl born at 31 weeks, now 17 months, has a hemangioma on her lip, a very rare place to get one. It has definatley faded in colour as it is now the same as her lip but used to be bright red or sometimes purple but still sticks out a little bit. I was told is should go away on its own over time but if not it can have some sort of lazer treatment.

Liz - posted on 10/23/2009

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My twins had this on the back of their necks, which have faded. My daughter also had one on her eye that was really red when she was born, but it's barely noticeable anymore. Only time you can kind of see it is if she's really tired. But that's only if you know what you're looking for.

Andrea - posted on 10/22/2009

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My 30 weeker has a stork bite, they told me that it would go away around one... she is now 19 months and is still there and not fading. Neither her dad or me have birth marks so it was kinda odd when I first found it!!!

Angela - posted on 10/22/2009

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My 24 weeker has one on her butt. It was raised and now she is 1 it is not raised at all and is getting lighter. The dr at neo nates told me it was common for premies.

Kim - posted on 10/21/2009

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My daughter was 35 weeks & she has 'stork bite' on her eyes, she is 4 months now

& it is fading some but when she gets mad or crys...boy oh boy, lol..... My pedi told me hers was due to early birth ???

Pamela - posted on 10/21/2009

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Mine was 30 weeks and has one on her calf. But my niece was born full term and has one as well. My daughters started tio bleed, which was a result of involuting when she was only 3 months. I spoke with Dr. Zide out of NY and he was very helpful and we talked about surgery some day if necessary. See his website, I have no ties to him but he helped me when I needed advice.

http://www.hemangioma.com/



Good Luck,



pam

Elizabeth - posted on 10/21/2009

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I have 4 boys. All were full term except for my 25-weeker. I'm used to seeing the one on the back of their necks at the hairline, those are normal and are seen quite often in babies, but my preemie has the one that covers his whole lower arm from wrist to elbow. That was why I was asking.

Ashley - posted on 10/21/2009

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I had 2 preemies 34 and 36 weeks they both had what the doctor called stork bites. They have both dissapeared you can still see my sons sometimes if he crys really hard it seems to bring it out,

Sheri - posted on 10/21/2009

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My son was born at 35 weeks and has 4 of them (stork bites). He has one on his left eye, one on his forehead, and two on the back of his head. The ones on his face have faded a bit, but the two on the back of his head are still very bright.



These marks are very common in babies, preterm or not. They are nothing to worry about and have nothing to do with the premature birth. I have a mark like this on my hand that has faded over time, and I was a preemie. Two of my three brothers also have marks (theirs are both faded and barely noticable), and they were both born full term.

Kathy - posted on 10/21/2009

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My son was born at 35 weeks and had one on his leg. He is 9 years now and it is barely visible. You need to KNOW to look for it, it doesn't stand out at all.

Heather - posted on 10/20/2009

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My son was born at 29 weeks and he has the same thing. Hes now 2 1/2 yrs old, his goes from wrist to shoulder but splotchy.

Elizabeth - posted on 10/19/2009

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Oh, see, the doctor tried to tell me it wasn't anything to do with him being preemie. I figured it did have something to do with him being so early.

Elizabeth - posted on 10/19/2009

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Well, I was told that it would grow with him and stay dark til about the time he turned 3, then it would shrink and fade over time as he grew up. His has already faded so much, and looks a lot better than it did when he was smaller, and he just turned 2. But I have just seen so many preemies with these marks on them.

Megan - posted on 10/18/2009

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My son is a 24 weeker and has 2, one on his forhead and one on the back of the neck. I was told they would go away but they have barely even faded yet.

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My husband has one of these marks on his side and he wasn't a preemie. His has actually gotten darker with age. My son has no birth marks like this.

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