How long were your babies in the NICU?

Britney - posted on 01/10/2010 ( 470 moms have responded )

9

8

0

I just had my daughter 16 days ago (christmas =] ) and her gestational age was 33 and 4/7 weeks. She weighed 3 pounds 4.5 ounces and is now up to 3 pounds 14.6 ounces and gaining every day. It seems like the stay here is dragging on though, and it's starting to get kind of depressing being here. Just wondering about other mom and baby NICU experiences.

MOST HELPFUL POSTS

Anna - posted on 11/18/2012

11

31

0

Noey, I really understand your pain and fear. I felt exactly the same way. Just so you know, it's standard for doctors to tell you the Going Home date is when they were scheduled to be due, but that is often not the case- it's sooner. But don't focus on that. Focus on taking care of yourself, talking to your Support Circle (if you don't know who to talk to- talk to everyone and whoever is by your side while you cry- keep talking to them), and be with your baby as much as you want to, as long as you aren't neglecting anything else in your life. I spent Noon to 8p with my baby every day he was in the NICU. I'd had a C-Section and couldn't drive, so I had to wait for a ride. I wish, still, that I could have slept there. I might have been less devastated every night. So here's 2 tricks to getting through the NICU stay: 1. Try really hard to not let your heart be set on the results of every test. We were told devastating news about our son a few days in, but the actual results, 3-years later, are minimally affecting him. Literally. So don't forget that they grow up, with you, an AWESOME and loving Mom, to make sure they'll be ok. 2. You can actually start to tell when your baby is going to be ready to go home- they will cry loudly and strongly, like "regular-healthy" babies. (This advice applies to Preemies, not regular term babies). You aren't alone. You are also doing GREAT!

Angie - posted on 11/17/2012

1

20

0

My first daughter was born at 27 weeks exactly and weighed 2 lbs 2 oz. She spent 85 days in NICU. My second daughter was born at 35 weeks and weighed 5 lbs 7 oz and spent 8 days in NICU. The girls are now 14 and 10 and are amazing!!

Diana - posted on 09/17/2013

68

0

40

My son donnie was born at 23 weeks his eyes were still sealed shut and could not breathe without the ocelator they told me there was an 85 percent chance that he would die he had to have heart surgery about two weeks after he was born which went well then his intestines starting rupturing he had 4 colostomy sites at one time they tried to get me to turn off the machines and let him pass away peacfully but i said no they tried to get me to do that quite a few times it got so bad all of the surgeons but one refused to operate on him after everything he had 7 abdominal surgeries one heart surgery and injections in his eyes he was in roanoke memorial nicu for almost six months but he is almost two now oh he weighed one pound two ounces when he was born anyway he has no problems at all now he is perfect you would never even know anything happened if it wasn't for the scars on his little belly but i know god saved my little man evvenn the doctors said they could not explain it and it had to be god

Mia - posted on 01/15/2013

1

0

0

My son came at 34.5 weeks, spent 10 days in the NICU. This week he's turning 2!!!
Hang in there, the technology that exists today is amazing, and she is in good hands! Best thing you can do is be there with her as much as you can.

Natasha - posted on 09/17/2013

1

0

0

My son mason was born last Monday (09/09/13) he was born at 31 weeks he is still in nicu he's doing really well the hole in his heart has closed & he's breathing on his own now has been for 2 days. I was discharged yesterday so it's really hard to leave him and go home...

If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

470 Comments

View replies by

Billy - posted on 03/30/2014

3

0

0

My daughter was born at 24 weeks on December 30th 2013 weighing 1lb 6oz and is still in the NICU. I think it is day 92 or so... She has a paralyzed diaphram and will need surgery Wednesday to repair it. Most Doctors told me she would be home by her due date, and as much as I want her home I am not pushing. There was a good week where we kissed her goodbye noth knowing if she would be there the next day but she i s here!! She still has a feeding tube in and is only taking bottle once a day. But progress is progress and thats good enough for me!!

Apryl - posted on 01/14/2014

1

0

0

I know how you feel...I really do...my identical twins came home 2 days apart five weeks after being born 10 weeks early but my little Gracie was in the NICU for 11 weeks. They are all doing great and I am so happy to have all my girls home and happy and healthy. Prayers to you and yours.

Alexandria - posted on 01/12/2014

2

24

0

Both of my sons were born early. The first was born at 32 weeks at 3lbs. 14oz, but lost down to 3lbs. 1 oz. He stayed in NICU for 6 weeks with a major setback at 3 weeks (stopped breathing and turned purple, so back he went to the critical room instead of the transition room). I didn't want to rush NICU as I wasn't sure if I could handle the risks at home alone. It was hard. I commuted 45 minutes each way twice a day to spend time with him, and the first few days were really hard, but when he started making gains, taking bottles, and getting better I was so happy.
My second son was born at 34 weeks, but due to earlier complications, I had had steroid injections around 24 weeks. When he was born at 5lbs. 1oz. and able to breathe on his own we were given the all clear to take him home within 48 hours.
While I never wanted to relive the exhaustion of NICU and the stress, I will give you one great thing (besides first baby's survival) about it... they train your baby for you! Meaning, when baby boy #2 came home he was awake every 1.5 hours crying for food, baby #1 would eat every 3 hours or more giving me time to rest. Baby #1 only got up once at night, baby #2 got up 3-4. The routine was set after NICU, so if nothing else, be glad to get a little sleep at home and for having help in setting a routine for baby.

Becky - posted on 01/06/2014

41

8

0

My son was born 3/26/09 weighing 2 lb 15 oz at 28 weeks. We spent 7.5 weeks in the hospital. He had to meet the goals, of feeding by himself, keeping his temp, breathing and the like the weight of 5 lbs but if he was close and met all the others he could have went home. He weight 5.5 (maybe a little more) by the time he went home (lazy eater, kept falling asleep). But he did come home before the 40 week mark so we got extra time with him. And now he is happy, healthy (almost never gets sick), smart tall, average weight

App+7mnejhu - posted on 12/30/2013

1

0

0

Hello my name is Martine
My son was born on 12/27/2013 at 28 weeks gestation, he his in the nicu but he is being stable, they don't want to tell me when he will go home , was hoping for the 35 weeks limit , but they don't want to say when,
They say he needs to finish his goals; feeding , body temperature,and breathing on his own,
What is your experience in that nicu, and what should I expect? I am new to this experience.

Amanda - posted on 09/18/2013

5

0

0

Yes I know what you mean by feeling robbed! It wasn't what you thought would ever happen when you 1st find out your pregnant and all you want to do have your baby heathy and home in your arms. Sending you and your baby love and hugs!

Ashley - posted on 12/29/2012

3

5

0

My son was born 12/6/12 and he was full term...he swallowed meconium was placed in special care, had a resper rate over 100 and was placed on a cpap, got off that and placed on a nasal canula.... 5 days later he asperated on my breastmilk due to the hospital allowing me to breastfeed with his breathing rate above 70...and got pneumonia. We transfered him to another hospital and he just turned 3 weeks old Thursday and we have no idea when he will come home :'( test after test has shown that his diaphragm is not working properly, his small intestine isn't looped around right and will need surgery to correct it....it stinks...i feel angry with all the waiting period and not having him home. We have to wait for his lungs to get healthier to handle these surgeries and for his diaphragm to correct itself if it can bc we do know the nerves arent severed. He's so sweet and we feel robbed. Anyone else feel this way?

Anna - posted on 11/18/2012

11

31

0

It makes a huge difference- being an active participant versus a passive one. And, all too often, NICU's are not prepared to teach new parents what to do, what to ask and how to get through it. Thank god for this forum, eh?

Noey - posted on 11/17/2012

1

0

0

hi ,I also have my baby in the NICU. its very heartbreaking, he was born 28 weeks 2lbs 6ozs,and the dr told us that he will be staying in the NICU untill january,thats the baby due date. i really miss my baby so bad,and specially right now they will do a blood count tomorrow,because he looks pale,that make me nervous and cant sleep thinking about the baby and what the result would be. evrytime im at the hospital to see my baby i cannot stop looking at him,i dont wanna go home,and when im home i cant stop myself from crying because i used to be that he is with me moving inside.

Sherry - posted on 11/16/2012

14

5

0

Both my kiddos were preemies&. My son was born at 35 weeks I had to get steroids shots before delievery and he stayed 7 weeks my daughter was born at 33 weeks weighing 3lbs 12ozs but dropped to 2lbs 5 Ozs. She had to stay 7weeks also. It all depends if they can breath on there own & if they are eating on there own. Big prayers for you. It's so very hard the NICU life but it's best for them to get strong enough to go home so they don't end up having to go back.

Vanessa - posted on 11/15/2012

2

0

0

Thank you so much Anna every thing you said is so helpful and very true...I have started participating in his diaper changes and everytHing it makes me feel more like his mom and not some visitor. But this really helps me a lot thank you for the great advice an I will defiantly keep writing and expressing my emotions everyday.

Anna - posted on 11/13/2012

11

31

0

Vanessa, I'm sorry to hear that your son is in the NICU and not well. You can help both of you feel better by holding him and being an active participant in his care. Help bathe him, change his diapers, hold his feeding syringe, or whatnot. Do everything that looks like you can do it and if they say you can't but you want to, challenge them and take over. You don't know how long he'll be there, and he's your baby, so take care of him as much as you can. It'll help your heartache and it'll give him the love and comfort every baby needs. Also, keep talking about your pain and hurt, as well as the good things, to your friends and family. Or even on here. But make sure you are letting out your emotions. Cry. Crying helps with your emotions and processing. Most importantly, make sure you are eating, drinking water (helps with breastmilk production) and sleeping. These are the hardest things to do with your child is in the NICU, but your baby needs you to be well so you can be strong for him. You have all my sympathy. Find that strength within you that you didn't know you had and work it, Girl. ♥

Vanessa - posted on 11/13/2012

2

0

0

My son was born 11/4/2012 and was admitted into the Nicu the next day due to feeding habits. He has been in there a little over a week now and it's really starting to take its effect. I'm a first time mom and I didn't think I would have to go through this. I cry every night now hoping he would start feeding better. Dr.'s don't know why he doesn't want to eat and there force feeding him through a tube and running all these test. I'm just so upset and frustrated seeing my newborn son go through this. He always look sad when I see him...it hurts when I see him like this. As a new mom I don't know how to deal with this. I want my son home with me so bad. I need advice I need help.

Anna - posted on 06/21/2012

11

31

0

I completely relate, Kristin. Every day, my husband practically had to pull me, physically, away, so I'd go home and eat dinner. I cried myself to sleep every night.

The NICU stay is a roller coaster of emotions, news and events. But leaving gives you a MUCH needed mental break, although you don't realize it. Use that time to try to spoil yourself with long baths, enjoy a good book, eating well, drinking tons of water (helps if you are pumping or just to deal with the stress you're going through).

Post here for support and know you aren't alone. It's possibly the hardest thing you'll ever go through, but you CAN and WILL get through this. The NICU stay eventually ends and then you bring home your baby.

Mary - posted on 06/21/2012

2

0

0

My daughter was born at 28 1/2 weeks. She weighed 3lbs, 3oz. She went down to 2lbs, 14oz and was in the NICU for 2 months. She is now a very healthy and very smart 19 year old who just finished her first year at UCONN. It will get better, and before you know it, you will be home with your baby and looking forward to everyday you have to spend with her.

User - posted on 06/20/2012

1

0

0

I had my daughter vie emergency C-Section at 29 weeks 1 day due to HELLP Syndrome, She weighed 2 lbs 8 oz. She is still in the NICU, has been since 5/26 (her birth date) and we are still unsure as to when she'll be coming home.

She is currently 3 lbs 9 oz, and off of everything except the NG tube. Luckily she isn't sickly and is only in the NICU due to being so small.

It's getting increasingly difficult to leave the NICU after spending time with her. =/

Ellen - posted on 04/14/2012

3

0

0

My boy was in the NICU for 7 days. He wouldn't have gone if I didn't have a lactation consultant visit and send him there because he was breathing rapidly and had jaundice. I didn't know what to look for. I didn't like that he was there and 7 days felt like forever, but I now realized we started some good habits while there. He was on a strict eat/sleep schedule which helped establish a good routine. He self soothed with a binkie and now isn't as fussy and sleeps longer than some of my friends that didn't have that established early on. He had tummy time (even in that first week) so I learned it was OK to start helping him develop his muscles. The NICU isn’t that bad.

Brandy - posted on 05/15/2011

43

10

5

After reading this I feel blessed. My little girl was born at 32weeks she was 3lbs 11oz. We knew she would prob be premie so they gave me steriod injections while i was pregnat.She spent 2 1/2 weeks in the NICU. I cried everytime I had to leave her there and go home w out my baby! The hospital had a scraobooking class for the NICU moms and dads. Maybe you could scrapbook your babys time there. When I felt down or missed her when I couldnt be with her (mostly at night) I scrapbooked. When she left the hospital she had to go through alot of checks, keeping down food, poop and pee out put, food going in, she had to be able to drink from a bottle, she had to keep her body temp and had to pass a carseat test and on and on. Maybe find out what the milestones are and focus on one at a time.

Kylee - posted on 05/14/2011

26

115

1

My son was born at 33 weeks and weighed 2.2kg not sure what that is in pounds he stayed in NICU for about 3 weeks and another 2 weeks in transfer before coming home and he is now 17 months and going strong. My daughter was born 25 weeks and stayed over 11-12 months due to being put in a induce coma.

Racheal - posted on 05/14/2011

13

5

0

My lil one was born at 35 weeks 1/7 days....she weighed 4 lbs and 12 1/4 oz. She didn't have to go to the NICU...she had only one problem...keeping up her body temp...she was daubbed the "peanut" of the nursery!

Kristel - posted on 05/12/2011

33

80

2

My son, Judah, was born 16 weeks and one day early. He was 12 inches long and weighed 1 lb 10 oz. He weighed 5 lbs 1 oz when he got to come home, 6 days short of his 3 month birthday.

Fiona - posted on 02/02/2011

8

13

0

my baby was in nicu for 3 weeks she was born at 32 weeks and 4 days weighing 3lb7oz and when we left she weighed 4lb 5oz. she did brilliant thou and had no help except her feeding tube. it is depressing in there i found it really hard x

User - posted on 02/01/2011

3

0

0

Hi my baby girl was born at exactly 33 weeks, due to preeclamsia. She weighed 3 lbs 10 oz. She stayed at the NICU for 3 weeks and one day. When we brought her home she was 4 lbs 13 oz. Those were the hardest three weeks of my life, at first it was ok but after while i was getting exhausted i spent most my day at the hospital with her. Hang in there I know how hard it it.

Jen - posted on 02/01/2011

3

0

0

my daughter was born at 36 weeks at 3 pounds 12 oz ans shw in the NICU for a few weeks. We didn't think that they were doing anything for her that we couldn't do at home. They were scared to let her go home cause she stopped breathing and turned blue when she ate. She is now 2 years old and doing great! hang in there she will go home soon!!!

Alison - posted on 02/01/2011

6

16

0

Hi, I cna relate to that feeling, I had twin girls born at 31 wks 2 yrs ago weighing 3lb 5oz and 3lb 6oz they were in forn 5 wks, however the nursers would have packed us off earlier if I'd wanted to bottle feed. If there aren't any probs then it's a matter of gaining weight....babies are soooo resilient.. wish you all the best xx

Robyn - posted on 01/31/2011

2

6

0

I had my twins at 30 4/7. Max weighed 3 lbs 3 oz and Chloe weighed 2 lbs 15 oz. Max came home after 45 days and Chloe came home after 67 days - her delay was due to feeding issues. They are just about 3 months actual now and weigh 8 lbs 11 oz and 7 lbs 11 oz... doing great! Hang in there - I know it's tough!

Amy - posted on 01/26/2011

2

36

0

my daughter was a 28 weeker 2 lbs 2 oz we were in the NICU for 93 days it was really hard but I just keept teling myself they are keeping her alive and the nurses were great they tolerated me this was my first and I lived there for the entire time. Hang on it will get better :)

Ebonie - posted on 01/26/2011

4

22

0

I had my Daughter in June and she was 1.5lb and she stayed in the NICU for 3 months when she came home she was 3.16lbs now she is a little over 10lbs.But those day when she was in there it just seemed like she was never going to come home.It was time she was suppose to come home I had her things ready for her to come home but she didn't pass her car seat chanllage. Its a long road and its not easy I just had to keep my faith

Jennifer Nichole - posted on 01/25/2011

6

22

0

I was also totally depressed when my son was in NICU...and he was in for 5 weeks. Just remember that this is the best thing for her right now. She is being taken care of and you are a wonderful Mom! I stressed myself out with wanting to be with him as much as I could. My son is now 16 months and 30 lbs and as healthy as he could ever be! He was 5 lb 6oz when he was born 6 weeks early. Right now all this seem so hard...but before you know it she will be running around and you will wonder how the time flew by so fast just like me! Take care and remember to take care of YOURSELF.

Rebecca - posted on 01/20/2011

5

53

0

My Baby girl was born in November at 34 weeks and 5lbs 14ozs. She was in the NICU a month and sent home a week before her due date on .5 liter 100% oxygen on nasal canuli, home monitor for heart and lung, and caffiene citrate. She is still on caffiene, monitor, and oxygen. :(

Donna - posted on 01/20/2011

4

20

0

I had my daughter at 26 weeks. We were at the NICU for 3 1/2 months. I was there everyday. There are all kinds of emotions that you go through there. A lot of it depends on the news you hear from day to day with the progress of your little one. Always know they are in the best care they need right now. My little one weighted in at 1 lb 8 ozs. Now she is a health 3 1/2 year old. Get as much sleep as you can while they are being cared for, because that day they come home she will need you fresh. It is hard, but He has your baby girl in his care. God Bless and He will give you the strength to get through this very difficult and depressing time.

Dominic - posted on 01/20/2011

31

44

4

hello our daughter was born at 29 weeks and she only weighed 2.4 lbs and was 15 in long. she was in the NICU for 3.5 m. it seemed like it took forever. and on top of that we were in germany and the english was very poor. so communicating with the nurses and dr was pretty stressful. it does seem depressing but when you bring her home its the most wonderful thing in the world to have her there next to you and not leave here every night anymore. hang in there. your strong!

Stacey - posted on 01/17/2011

7

126

0

My first came home
My second was a 34 weeker and we were lucky that she came home in 26 days not the full 42 they thought she would need..
My third was a 37 weeks but needed 2 weeks in the NICU to heal. He collapsed both lungs at birth.

Brittany - posted on 01/15/2011

2

0

0

My daughter was born at 27 weeks, weighing 1lb 6 oz. She stayed in the NICU 2 months...she'll be home before you know it.

Sarah - posted on 01/14/2011

20

0

2

My son was born @ 32.6 weeks. He spent about 4 weeks in the NICU. He is now 2 months/2days old. (adjusted age 1 week 6 days old) and is weighing in at 6 pounds 8 ounces (weight when he was born was 3 pounds 3 ounces)

Chaille - posted on 01/13/2011

10

0

0

First of all, congrats on becoming a mommy! I had my first three months ago on Oct 11, 2010. I was only 26 weeks 5 days along and he weighed 2lbs 1.5oz. We have been in the NICU for 94 days and counting. He is having issues eating and we found out today he has cerebral atrophy (brain shrinkage) which may explain why he is delayed and having trouble finishing his bottles. It has been a long hard road. There were times we weren't sure he would pull through. But he always did. I know every day feels like an eternity- I am in the same boat. But all you can really do is stay hopeful and take things one day at a time. I've also learned not to jump to conclusions. No answer the docs give are definite. These kiddos will surprise you at how strong they are and what they can overcome. Best of luck to you and your daughter. Hang in there! :)

Danielle - posted on 09/13/2010

11

23

1

my daughter was born at 27 weeks gest. and we are still in the NICU after 2 1/2 months. we will be here past 3 months i know that. its been a long road but its the best for our little girl.

Jenny - posted on 09/11/2010

52

1

1

my son's 24 weeks almost 25 and weighed 1lbs and 12 oz. He's up to 2 lbs and 4 oz now. It's been a few weeks he's doing well and I hope before october he comes home

Latres - posted on 07/13/2010

5

41

0

my son was born dec 22, 2009 28 weeker IURG 1lb 1oz....he stayed in hospital 5 months. Yes it was hard but I knew he was where he needed to be to becoem healthy. He came home May 21, 2010 and doing great. He is def my miracle man. No problems except under developed lungs but as we know that is a vital part to suriving. HE is now off of the oxygen,

Heather - posted on 07/12/2010

38

44

2

16 long days!!! Hang in there! I know its depressing but you will have that bundle of joy home soon!!

Lindsey - posted on 06/28/2010

31

3

4

My baby girl was born at 30 weeks and 4 days, she weighed 3lbs 6oz and was in the nicu for 6 weeks. She spent a few days on a vent and then was on the cpap for 10 days. She had a feeding tube for 5 weeks and had to have a blood transfusion because her body wasnt producing red blood cells. She had sleep apnea and ended up coming home with an apnea monitor but they said that was normal for preemies.

[deleted account]

My son was born at 23 weeks weighing 1 pound 5 ounces and wasnt even a foot long..we spent 10 days shy of a tear in the NICU...we got him hom e10 days before his 1st birthday. good luck ot you and your baby you will soon be talking memories!

MARTINA - posted on 06/26/2010

10

37

0

my daughter was in the nicu for 29 days it was the most scary experience of my life

Tachanie - posted on 06/22/2010

6

66

0

hey guys .. I had my daughter november 2005 n she was in the NICU from november unntill march , it was the most stressful nd emotional experince in my life so far..

Stephanie - posted on 06/21/2010

2

12

1

I had my son at 35 weeks, he was in the NICU for only 14 days. Looking at him today you would never guess that he was 5 weeks early, his doctor said he is way ahead of his game. Good Luck to all Mommys with babies in the NICU, its a tough time!

Kirstin - posted on 06/20/2010

11

38

1

I had my wee boy, Calum 10 weeks early. He weighed 3lbs 4ozs. He was in NICU for 4 days, then into special care. He was in special care for 3 weeks. Then into the transitional care unit for 9 days. I was in hospital a total of 20 days. It was hard to in hospital for so long especially with your hormones being up and down, doesn't help, either. But it is worth it when you have your baby home. I realise that the midwives do an incredible job and i am so grateful to them. Calum is 17 weeks old and a healthy 9lbs now. Keep your chin up!! I couldn't have done without my partner, Stuart. He took good care of our other two sons and brought them up to the hospital to see me and their little brother.

Liz - posted on 06/20/2010

1,047

15

260

Is weight the only criteria they've given you for her discharge? Normally NICUs don't go by weight anymore, but by the child's ability to eat, breathe and self-regulate temperature.

My daughter was behind in all these criteria, then suddenly achieved all of them within about 3 days. We went from 'not coming home for ages yet' to 'coming home the day after tomorrow'. She did have to have a monitor, as she had a tendency to stop breathing from time to time, but thankfully they took this away after only 7 weeks.

Sonja - posted on 06/20/2010

11

48

3

My 10 years old son was in the NICU 4 weeks and my 5 year old son was in the NICU 4.5 weeks. Stay positive and keep touching her and talking to her. If they let you feed her and hold her I would do it as much as you can. It's a stressful situation but if you stay focused that as soon as she reaches 5Ibs she will be home. Remember when they have hours that you can't be in the room. Take a walk, get food, have a friend or family member come eat lunch or dinner with you. Great time to read or plan for her home coming. Before you know it she will be home and then time will seem like it flew by. It can put alot of stress on you and your other half. But stay strong and positive. If you would like talk to you can email me sonjabroyer@gmail.com

  1. 1
  2. 2
  3. 3
  4. 4
  5. 5
  6. 6
  7. ...
  8. 10
If you see this, leave this form field blank.
Powered by RESPECT not THUMPS

Join Circle of Moms

Sign up for Circle of Moms and be a part of this community! Membership is just one click away.

Join Circle of Moms