Kimberly - posted on 11/23/2009 ( 8 moms have responded )
I would love to get in touch with other gastroschesis mommies out there. As a social experiment, I would also like to know where everybody is from. I'm from the South Seattle area
My little Eleanor was 3lbs, 13oz, and 15 inches long. She was born at 32 weeks. We had to do an emergency c-section because the hole her intestines were coming out of was constricting them, causing her intestines to severely swell up. Also, every time I had a contraction, her heart rate would drop. Eleanor is 8 months old now, 6 corrected. She was in the hospital her first 4 months of life. She had 2 intestinal infections (got to keep all of her intestines though) and 3 surgeries: 1 to open up the hole for the swelling to go down, 1 to put her intestines back in, and 1 to put in a g-tube. Oh, she is now eating all of her food orally, by bottle (elecare) and rice cereal. Yay!
So that's my story. What is everybody else's story?
PS. I don't know about you, but I was so happy to hear about her pooping for the first time, did anybody else feel that way?