Tracy - posted on 12/04/2012 ( 4 moms have responded )
Gave birth to son at 33weeks and was diagnosed with esophageal atresia and tracheoesophageal fistula a few hours after birth. he cannot have surgery to repair until 2.5kg currently has been in nicu for 2 weeks 5 days and is 2kg. My concerns are we live 1 1/2 hours from the hospital. I am able to stay in a room from time to time in hospital but everyone keeps telling me I shouldn't do that too long. I was put on bed rest in hospital before delivery and stayed until last week and felt I was going crazy so went home. I want to see him everyday and hold him but my husband says i should stay at home one day and work on some things around the house to help me cope since when I leave the nicu i cry and when i get home i cry all night. to top of this my 12 year old dog has cancer and i have to put her to sleep this week a little to much to take right now. I feel guilty if I do not go in to see him for at least an hour and talk to him etc. We can watch him on the computer so that helps but just not the same. Anyone else had to deal with this and how did you cope? I know he is being well taken care of.