Catherine - posted on 04/25/2012 ( 12 moms have responded )
My little angel was born at what we initially thought was 35 weeks 6 days. I am a type I diabetic that was reasonably controlled with an insulin pump but still delivered her at 6 lbs 12 oz. She needed oxygen and O2 for the first 4 days then was taken off. She was big enough that her temperature regulation was never an issue. Her sound and touch sensitivity resolved around 4 days old when I was finally allowed to hold her.
With most of her milestones met she is still there 4 weeks later at 8 lbs 8 oz for slow feeding. She is required to eat 75 cc in 30 minutes every 4 hours. She has met this goal twice but the rest of the time she averages 40 cc and has to take the rest down the tube. She continues to be sleepy from halfway through each feeding and keeping her awake enough to finish is impossible! They keep telling us it will just take time and patience and it will "click" for her soon, but I'm starting to get very frustrated. She has to have 2 days of full amount feeding before she can come home and it feels like one day she is on her way only to be followed by poor feeds for the next two days putting us back at square one. Then they informed us that based on her initial assessments at birth her gestational age was more around 33 weeks 5 days so she still has time to mature but that just confuses me more about how old she actually is 38 weeks or 37? Regardless shouldn't it have "clicked" by now? What if we get to 40 weeks and it's still inconsistent? They have done an ultrasound of her brain and had an evaluation by a speech/feeding specialist with everything coming back normal. Should I just calm down be patient and continue to wait it out? I feel like I'm loosing my mind sometimes just wanting her to come home. I've spoken to the doctors and they keep assuring me this is all normal, but it's heartbreaking to see all of these other 5 lb babies going home after only a week stay and we are still there watching and waiting. I realize it's a small thing and the situation could be a lot worse but the waiting is a killer. Any advice is welcome!