IVH

Jennifer - posted on 11/22/2009 ( 13 moms have responded )

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Is it common for preemies to have IVH. My son has a grade 2 IVH on his right side

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Misty - posted on 12/10/2009

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I don't know if it's "common", but my 24 weeker had a grade 3 and 4 bleed on both sides. After weekly ultrasounds of her head, the bleeds resolved on there own. She is now 13 months old (9 corrected) and has no problems! She is about to start walking any day now...not to worry!

Caroline - posted on 07/04/2012

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My daughter was born 9 weeks premmie, weighed 3 pounds & 11 ounces, she had many challenges. She was not able to walk un-assisted, she needed support to sit up, drooled constantly, developmentally delayed, frequent body tremors, some seizure like episodes, kind of in a daze all the time, clenched left hand, choking on her food, speach problems, left side weakness etc. She was elevated on her toes when holding her to walk, she was splinted for a leg brace & they wanted to give her botox, but after researching botox and discovering how it’s made and there were no long term studies I decided against it. Her life was restricted & so was mine ...and it looked this way for the rest of her life ... & mine. I felt hopeless.

We were attending all sorts of treatments and therapies which cost a lot. A friend told me about some special wellness supplements from a particular company, she started taking them in her yogurt, after one week she was up walking un-assisted, it made an immense difference to her brain function, memory, balance, mood & cognition in a short space of time. I was elated!

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Monique - posted on 11/26/2009

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My son started early intervention late. He was about a year old. He was just approved for Occupational therapy because he is a little weak on his right side. He uses both hands but dominates with his left. The earlier they get help the better. He is waiting for the braces and his physical therapist says once he gets them he will be a lot better with walking. When the doctor said he showed signs of Cerebral palsy i was shocked because she even said that for a two year old he was very verbal and intelligent. the form of cp that she said he has is spastic parapertic cerebral palsy where his legs spasm and he walks on his toes. She said it mild because his brain seems to be fine.



My son was born at 27 weeks and was 2lbs 7oz. If you have any other questions . im here for you.

monique

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Nita - posted on 03/25/2012

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my daughter was a 27 weeker. she had grade 3 on right and grade four on the left. she also had to have a shunt placed due to extra fluid between her brain and spine. she has been cruising for a while now and does great pushing the toy walker like elderly people have. i noticed that she has her left foot flat and her right foot on the tippy yoe. i took her in and they said she has mild cerebal palsy and will need a brace for a while but shes only 20 months old and have over come so much im happy that shes going to walk. shes very intellegent tho. has amazing speech, is almost potty trained and so many other amazing things

Kristy - posted on 11/28/2009

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my son a 24 weeker had a grade 3 ivh. i was also told he may never walk or talk. now he is 11mths adjusted and is cruising furniture and very vocal. doing really well. early intervention has done wonders for him. no weakness on either side but may need braces waiting on physical therapy check up. continue to enjoy your miracle and know that prayers come true. your baby will have all he ever needs with the lord

Jennifer - posted on 11/28/2009

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Thats what i fear the most is cerebral palsy. I know babies who has IVH is more at risk for cerebral palsy. My son Cameron has a grade 2 which is minor and the doctor that he might not have any long term problems. Mainly with grade 3 and 4 causes long term problems. My mom co-worker has twins who were born premature and her daughter had grade 3 IVH and the doctor told her that her daughter may not be able to walk or talk. She is now 7 yrs and is a straight A student.My son is 40 weeks corrected age, is going to start early intervention in a week or two .I look forward for the postive outcomes that this program have to offer to my son . All i want is my son to have a normal life as possible.

Lindsay - posted on 11/24/2009

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It is very common...my daughter did not have one (she was a 27 weeker), but thanks to the head u/s they performed to look for IVH they found another condition that would have otherwise gone un-noticed.

Jennifer - posted on 11/23/2009

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ohhh ok ... my son has a grade 2 IVH on his right side . The doctor refer me to see a early invention therapist. Today we had an appointment , they explain to me that he does have some stiffness in his legs which may be a concern, but its too early to tell.

Monique - posted on 11/23/2009

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My son also had a small brain bleed. i believe it was a level one. He is fine except he walks on his toes and one doctor is saying that this could be because of the brain bleed. They told me in the begining he suffered from hypertonia where he had stiffness in his joints. They are now saying it could be a mild form of CP. In everyother way he is a normal toddlers. Talk in sentences, can hold a conversation and is very intelligent.

Megan - posted on 11/22/2009

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Yes it is. The earlier they are they have more of a chance of having one. My son was a 24 weeker and had a grade 3 on the left side.

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