My daughter was 14 oz. at birth, 2 1/2 now and great! Any other micro premies?

Tina Matusek - posted on 01/15/2009 ( 62 moms have responded )

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Gianna Finizio was born on April 21, 2006 at only 14 ounces at 24 weeks gestation. We were in the hospital for 6 months and came home with oxygen and feeding machines. She is now 2 1/2 and really finally starting to eat well enough that I think the button will be going soon! She is a little delayed with speech and fine motor, to be expected with such a difficult start, but nothing that won't completely disappear. I have had to learn how to be a nurse as well as a new mom and it has been very trying at times. But, now things are finally coming into place and we hope to put her in a regular day care/preschool environment in September. It has been a life changing experience that I would not want to relive, but our little miracle has made us grow in ways we never would have without her. She has been the center of our existence for almost 3 years, which after facing near death experiences many times with her, she will continue to be the center of our world. I don't think I would have appreciated a child as much as I do now. So I am so thankful that she is doing so well.

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Candice - posted on 10/19/2009

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My dauther was born at 29 weeks, weighing 1lb 15 oz and was 14 1/2 inches long! We spent right at 2 months in the nicu , and she came home the day

before thanksgiving!! She had PDA and was on oxygen up until about 2 weeks before she came home.. Now at the age of 1 she weighs 14 lbs 9 oz and wearing 3-6 months clothes!! She does have webbed fingers on her left hand and her right index finger is crooked.. Her fingers are alos shorter on her left hand than normal.. I dont care about her fingers though Im js thankful shes breathing!! I thank God for her everyday!! She will cruise along the couch and she will walk with push toys. She has let go and taken one step.. but other than that shes taking her time as far as walking lol.. Shes been crawling for a while though. She talks all the time , she says momma, daddy , bubba, byebye , nana , papa , pepaw, mimi , get it , no , yeah , hi , hey , and she has js figured out how to scream haha!!

Paige - posted on 10/18/2009

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Wow, all these stories are amazing! My baby girl was born on August 2, 2009 at 29 weeks and weighed 2 lbs. 14 oz. She was in the hospital for seven weeks, but had a very easy preemie-hood. She is now home healthy at 8lbs. 1.5 oz. She is a miracle, and so are all of yours!!!

Whitney - posted on 10/11/2009

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Wow i cannot imagine 14 oz! My 1st was 25 weeker and was 2 lbs 2 oz at birth..(i know thats big, they were really surprised i think it has to do with my hubby being 6'4 and he was 9.5 lbs at birth so may have something to do with my "bigger preemies"). He got down to 1 lb 9 oz and that was so tiny for us i cannot imagine smaller!My second was born at 29 weeks weighing 3 lbs 8 oz (a whopper right ;) seemed like it after the first) due to a cerclage holding him in had i not gotten one i would have delivered at 19 weeks or so, i have an incompetent cervix. Both boys are doing absolulty amazing now. My 1st was truly a miracle he came home after a lil over 2 months on no monitors or anything. My 2nd was on a heart/respitory monitor for almost 6 months and that was a challenge. But both are doing wonderful now, really the only issues we have had are my first son have major speech delays but he is leaps and bounds from where he was, and my 2nd is very small still and gets wheezy when he has colds and has to use an inhaler. We are all very blessed, people have no idea what its like to be the mom of a micropreemie!

Brittany - posted on 10/07/2009

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My son was born on April 22, 2009 at 24 weeks he was 1lb 7oz and 11 in. He is now 5 months old and still in the NICU and on the vent again.

Misty - posted on 10/05/2009

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It's wonderful to know that I'm not the only micro-preemie mom out there! It's frustrating to hear people that delivered after 30 weeks or later, and complain about their baby being in the hospital for a few weeks, I'm sure it is trying for every family to have a preemie, but micro-preemies are a different ball of wax! We saw so many babies come and go out of the NICU while our daughter was there for almost 5 months! My daughter, Courtney Hope, was born 10/23/08 at 24 weeks, she weighed 510 grams (1 lb 2oz) & was 11 3/4 inches long. We spent 142 days in the NICU & didn't miss one day with her. Initially she had an open PDA that resolved on its own, grade 3 & 4 bleeds on her brain (also resolved on there own), feeding issues, and severe ROP. Her feeding issues were resolved in the hospital when they realized she was allergic to milk and is still on a special formula called EleCare. She is up to 6 1/2 oz every 4 hours and that is all she can have right now. We're anxious to at least start some cereal, hopefully soon! She has had 4 eye surgeries and now wears glasses, what a struggle to keep them on! She is trying to sit up and crawl, we work with PT and OT a couple of times a month & take her to the Little Gym once a week to socialize her a bit. She will be a year old in a few weeks, she now weighs 15 lb 4 oz and is 26 inches long, we're finally in our 3 month clothes!! I'm sure the emotions are going to start flooding back in a few weeks! God Bless your little micro-preemie as we thank God for ours everyday!!

Sarah - posted on 10/04/2009

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hey my son was born at 25 weeks gestation, he was 860grams or 1.19pounds (i think thats what it converts to, he spent 88 days in the hospital and we got to bring him home at 37 weeks gestation, he is doing great now, he is now 6.38kgs or14.06 pounds

Heather - posted on 10/04/2009

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Wow, how nice to find this group. Wonderful to have other parents that understand the term, micro preemie. Usually just deal with people that ask her age, thinking she's a genius, and I say 2 and half and they look at me and say..."she's really tiny".. then I explain. lol

My daughter was born at 25 weeks with IUGR so she weighed 1 pound 1ouce and dropped to 15oz. We had alot of close calls, and a few infections. After 98 days she came home with an apnea monitor and oxygen! Shes tiny but doing fine!

Katy - posted on 10/04/2009

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My son was born @ 24 wks Spontaneous rupture, no health problems.... weighing 1 lb and 11 Oz. He had a 4 month NICU stay. Was on a ventilator, CPAP thankfully he made it home. He is 2 now doesn't walk or talk but therapy is helping and center based program

Heather - posted on 10/03/2009

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Quoting Shayna:

I had a micro preemie. Her name was Amauri. She was born 12/11/2008 weighing 1 lb and 4 ozs. She was on a ventilator for 1 day and was switched to a c pap machine for about a week. After that she was on a nasal cannula, She did really good up until she caught an infection called NEC, which took her life on 1/19/2009. She was very adorable and will be missed. Rest In Peace Mommy and Daddy's Angel.



 





Shayna,



I am so sorry to hear that!  Sounds as though she was doing a great job! I'll say a prayer for your family, I could not imagine.  My daughter was on the C-Pap for a day and a half.  She was just over 2 pounds at that point.  When they checked it they only unstrapped the bottom part and never the part over  the forehead.  She reached up and pulled the top part off of her head, with her fiesty little self.  Because of that she saved her own life.  In that time she had the nastiest bedsore that I have ever seen.  It developed into a Staph infection, but it was caught soon enough.  Infections are a beast.  Again my prayers for your family and your little angel that will forever watch over you.

Heather - posted on 10/03/2009

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Quoting Marin:



My daughter was born and 27 weeks gestation, and only 1 pound 8.5 ounces and then droped to 1 pound 5 ounces after her birth weight adjusted.  She was also at the time of her birth diagnosed with mosaic turner syndrome found through an amniocentisis done just before she was born.  She is now 3 years old and doing great.  She was the smallest in our group of babies at the hospital (through other families we met while staying at the Ronald McDonald house) and the first to come home.  She came home free of oxygen and any feeding tubes or monitors. She was barely 4.5 pounds when we got her home and were scared to death.  Now she is fine, but with the mosaic turner syndrome she is on growth hormone shots until probably puberty.  We are still so blessed that she is alive.  From birth we have called her our little lion.



 



Not sure if this is how I should post to your post Marin.  I have some questions for you.  My daughter was being looked at for IUGR, before I could have my next ultrasound, I developed Preeclampsia.  She was born at 25 weeks 1lb 1oz and dropping to 15oz.  She is now 2 years 8 months weighing 19 pounds and 30 inches.  The endocrinologist really wants her to have growth hormones and I'm not sure.  Her projected height is anywhere from 4'4" to 4' 10 inches.  They think with hormones by age of 3 that she'll reach 5".   What is your opinion on the hormone's?  How are the daily shots percieved by your child?  I know that she has a different scenario than your child, but I would like to know how she deals with them?  I don't want Nyllah to start until she is 4.  I want to give her body a chance to catch up with medicine.





 

Shayna - posted on 09/28/2009

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I had a micro preemie. Her name was Amauri. She was born 12/11/2008 weighing 1 lb and 4 ozs. She was on a ventilator for 1 day and was switched to a c pap machine for about a week. After that she was on a nasal cannula, She did really good up until she caught an infection called NEC, which took her life on 1/19/2009. She was very adorable and will be missed. Rest In Peace Mommy and Daddy's Angel.

Marilyn - posted on 09/28/2009

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soon your baby should be on the nasal cannula, my daughter was on it a little after she got her PDA, GOOD LUCK with your journey, it truly is unbelievable and worth it to have such a blessing

Marilyn - posted on 09/28/2009

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My daughter Jayden was born September 12, 2007, was 26 weeks, 1 lb. 11. oz 12 in. had a Jaundice, had PDA ligation Nov 07, CMV, bleeding in her brain stage 1, she came home after being in the NICU for 4 months Jan 08 on nasal cannula, oxygen all day and a pulse ox, now she is 2 working with an OT, PT once a week and soon speech/feeding therapy, we see Pulmonary, GI, Dietitian, Pediatrics and Optometry (has prescribed glasses) once a month, she is still on oxygen but just at night, she is crawling and currently we are working on standing by herself and walking. Our daughter is truly our little miracle, times are definitely trying and i definitely have had to learn a lot along the way, she has kept me learning and growing along with her. She keeps me busy but anything i would do for her. I am very thankful that she is here and that she is progressing. My husband and I love our blessing more then anything or anyone. A child is what true love is.

Amanda - posted on 09/28/2009

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I just delivered on August 18, 2009 at 24 weeks. she was 1 lb 6 oz, and now she is 2 lbs 10 oz. She just had PDA surgery last week, and she is doing soo much better since that. They have taken her off the vent, and she is using a cpap for now, but that might not be for long. I thank GOD everyday that she is hear, and I know she was meant to be here. I have had 2 stillborns in the past, and she is the Miracle I have been praying for.

Anna - posted on 09/26/2009

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My daughter was born at 26w5d weighing 725grams, due to twin to twin transfusion. Her twin survived 26 hours. She was on a ventilator for 30 days, cpap for 2 months and oxygen till she was 10 months old. She had a co-arctaion repair and PDA at 30 weeks and a balloon dilatation at 40 weeks. She was discharged at 44 weeks, after 4 months in hospital. She got strep twice, one of those times she also got sceptacaemia, pnuemonia and a collapsed lung and needed 3 minutes of resuscitation before coming back to us. She cardiac arrested once more due to heart issues but was resuscitated very quickly. She was diagnosed with optic nerve atrophy at 11 months and her VNT told me she didn't know whether she'd ever walk.. She is now a very active 4 1/2 year old that will climb anything and runs everywhere. She has slight developmental and speech delay. Her vision is about 80-90%, much more than the 5-10% we were told to expect. She doesn't seem to have any fine motor issues, but is sensory challenged. We're working on that, she's getting much better. She gets seen by the paed once a year now and the same with the cardiologist. Special Ed is finishing and she starts school with no extra requirements. The main issue for her is she is still affected by chronic lung disease and is much more prone to get quite sick from a cold and take a long time to recover.

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I have a community called Moms of Micro Preemies that you are all welcome to join. If you know any other micro preemie moms let them know about it as well. The community is fairly new and I'm trying to grow the membership.

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My little guy was born 14 weeks early weighting 790 grams (1 lb 12 oz). He was in hospital for 114 days before coming home, he had breathing and feeding problems. There have been no issues since he came home. In two weeks he'll be 17 months actual (14 corrected) and he's doing amazing. He's crawling, standing and wants to walk but still hasn't built up his confidence. He's happy, healthy and a joy to be around.

Leanne - posted on 06/03/2009

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Well I guess I am really luck as although Phoenix /saul was born at 25 weeks and came home on oxygen at 14 weeks old. He is absolutely perfect now and catching up with his age group really well. He is only 6 months old and the doctors are so happy with his progress as he is already off his oxygen and now weighs over 13pound and was only 1pound 14 at birth. He makes me really proud as we went through hell to have him and he is such a little fighter to have got as far as he has so fast!

Debbie - posted on 06/03/2009

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Amazing stories. My wee miracle girl was born at 25wks 5days weighing 1lb 14oz. She spend 101 days in NICU, 3 weeks on a ventillator then on CPAP for about 3 weeks then on nasal oxygen till 4 days before she came home.

She had her PDA op at 3 weeks old which was terribly scary for us.

She was on & off oxygen for weeks & I was certain she would come home on it but she was a fighter & came home on nothing weighing 7lb 1oz.

She is 2 in 9 days & is doing really really well, no delays at this stage.

Started crawling at 12 1/2 months walking at 17 1/2 months & has lots of words.

All babies are special but premmies are miracles & will always be that little bit extra special to us all.

Ana - posted on 06/02/2009

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wow... thought i had whent thrue alot..

I see i am not the only one that was going thrue alot, found out i was going to deliver my baby early..

Pamela - posted on 05/29/2009

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My twins were born at 24 weeks and 3 days. Aspen was 1 lb. 8 oz. and Siena was 1 lb 3.5 oz. They were in the hospital for 99 days. They are now 3 1/2 and are doing great. They have OT for Sensory Processing twice a week.

Linda - posted on 05/28/2009

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Glad to hear she's doing well. Statisics state that girl premies always fair better than boys. I am the mother of 3 premies. Lisa was born April 25, 1993 at 2 lbs 9 oz. Robyn and Regina were born Sept 24, 1996 at 1lb 6 oz each. Lisa remained in the hospital for 1 month and now at 16 she is the beautiful young lady I knew she was destined to be. Robyn and Regina scared us for a while. They were in the hospital for 3 months. That was followed up with a visiting nurse for two months due to respiratory problems. The speech and fine motor skills came along with the help of therapists. At 12 1/2, they are vibrant young women ready to take on the world.



All premies are truly GOD's blessings. Gianna will come along just the same, and when she hits her teen years you'll wonder what was easier. Her as a premature infant of as a pre-teen. But all of it is good. Many Blessings to you and your family. The children really are a prize that has been given to each of us.

Carie - posted on 05/28/2009

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My Kaylee was born at 26 weeks geatation and was 1 lb. 6 oz. and gropped down to 1 lb 4 oz in the first few days. She had surgery at four days of life on her intestine. She had an ostomy for the first 11 months of her life. She spent 181 days in the NICU before being able to come home. She came home with feeding tubes and the ostomy. She is now 14 months old and doing much better. She is a little trooper. She loves to eat and they told us that she may never be able to eat a bottle because she lacked the suck they need. Well she is doing great only eating bottles and food. I am glad that I had the NICU staff. They kept my little one alive and saved her life many times. But I know all you moms know what I mean.

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Tomorrow is cara's nuro appointment, first one since she has been home. We are praying for good news. We know she will have an eye sergery for her ROP, Addie has already had hers in her right eye.

Zuleika - posted on 05/27/2009

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Gosh! where do I start. Let begin by saying it feels good to know that their are other moms out there who share what I have gone through for the past 27months.

My Micropreemie Claire came to this world at only 25 weeks weighting a whooping 1lb and 13oz. She was an inch longer than a 12inch ruler 13inches to be exact. She spent 4 months in the NICU. Claire underwent 4 surgeries while being in the NICU. She had a PDA, Shunted for bleeding grade 3 and 4 and then needed VP Shunt and had laser eye for her ROP. When we finally brought her home all she need was one med. With the help of early intervention ( PT, OT, infant development teacher, Speech and vision Therapy) Has been the key to my daughter success to doing many of her milestones. My daughter has recently had surgery to correct her right eye that crosses. I happy to report she doing well. She does continue to wear her pink plastic glasses that make her look so cute. My daughter is my biggest motvation. She has a fighting spirit that keeps going. I LOVE YOU!!!!!!!!!! CLAIRE your mommy is your biggest fan.

Angela - posted on 05/11/2009

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My son was born at 27 weeks and weighed 1 lb 9 oz.He spent three months in the hospital and is now 5 months old ( 2 months corrected) Im told that he is still small for his age. right now he weighs 9 lbs. He was diagnosed with ivh while still inuteral. When he was born it was detemined that it was a grade 4 bilateral ivh. It has just started to regress. He also has hernia which is being fixed by surgery soon. He does have a heart murmur as well but they are not to concerned about it. He has physio about once a week because he is not using his right side of his body as well as he should be but other than that he is doing great!!

Rika - posted on 04/26/2009

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oh and she came so early because my water broke and i didnt go into labor but the next day i had a prolapsed cord, her cord fell through my cervix, and so they kinda jumped on me like you see in ER with lots of screaming etc and i had an emergency csection.

Rika - posted on 04/26/2009

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my daughter was born at 24 wks 4 days weighing 1lb 10oz and 12" long. she was in the hospital for 73 days. on the vent for about 6wks and went from vent to cpap to cannula in 1.5 days! she took her first bottle at 30wks gestation but didnt take all her feeds without the tube in until 35wks gestation which is when she came home. luckily we didnt have any major issues. she didnt have any bleeds and was actually quite stable while in the nicu. the nurses and i always joked she just didnt know she was a preemie lol. she came home on a monitor and nothing else. today shes doing terrific, she weighs approx 14.5 lbs and 24" long she is now 9 months old. she is a bit delayed in some areas but others she right at her adjusted age. i truly believe she did so well because of kangaroo care and am so glad that our nicu let us hold her everyday from 10days on even while she was on the vent.

Jennifer - posted on 04/12/2009

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I also had a micro preemie,, He was born at 29 wks due to me having eeclampsia. He weighed 2lbs. 8oz. 13 In. He is now a little, but very healthy 3 year old, Smarter then a lot of 4 year olds, He colors in the lines, and can write his own name!! Truely a miricale. For thse who have angels I also have an angel and that baby will always be with me. Don't ever forget them, and when anyone ever tells you to "move on" ask them if they have "moved on" from their live children? We love them all the same. Keep smiling for those who have babies still in the NICU, it only gets better from here! Keep a positive outlook no matter what that can only help your baby get bigger and stronger!

Christina - posted on 04/11/2009

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My daughter Zari was born on 2/28/09 at 27 weeks gestation. She weighed 1lb and 8oz. She is still in the NICU--which is closing due to the economy---so I'm having to transfer her to another hospital's NICU (like we don't have enough to worry about). However, she's doing pretty good. She's 2lbs 13 oz. She seems to be gaining quickly now. We can't wait to bring her home. I feel like I could take up nursing as a second profession. Its very overwhelming learning all of the medical terminology, dealing with "Bradys" and going home without your baby.  Keeping up one's breast milk production is a topic in itself. Thank God for this circle...

Libby - posted on 04/10/2009

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My 2nd son was 10 weeks early weighing in at 2lbs & 14 oz.  He is going to be a happy and healthy 5 year old next month.  My daughter who was born on December 3rd, 2008 was 20 weeks early.  Much to early to survive.  She was alive at 3:30p and stillborn at 4:56p weighing 7.4 oz.  I wish our daughter had the chances that some of these micropreemies had, if we could've made it a few more weeks.  But we are so blessed!

Chandra - posted on 04/09/2009

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My son was born Nov. 29th at 26weeks. He weighed 2lbs 5oz. and was 12.5inches long. (or short however you see that lol). I was told to not expect anything close to 2 lbs at all. Well I know in my heart He would be bigger than what the Doc said because CJ always measured bigger. My doc was always trying to tell me my due date was sooner well I knew different I know that very day and Time I got pregnant. But he is now home and is a whole 8lbs 9oz!! We were very blessed cause he only came home on 1/8th of Oxygen and meds for his acid reflux. But it was a very long 3months. I could only see him 1 a week cause I live 1.5 away from him and my mom works doing the week and had my brother (senior) and my sister (7th) and our dad.

Lisa - posted on 04/09/2009

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Quoting Ashley:

Cara will also be getting a shunt placement next week for her hydrocephlys



i feel really sorry for u my lil boy had to have a shunt do to hydroephlys too he acutally had mengittits and he had seizures all the time and now he is pretty much brain dead. So i am really sorry to hear about your lil girl

Lisa - posted on 04/09/2009

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I feel for u  all i have a baby that was born at 28 weeks and he weighted 2 lbs 7 oz  and we had to stay 7 months in the hospital and now he is life support and has a feeding tube and a trach and i have nurses that are with 16 hours a day. That is like me i had to be like a nurse and a mom at the same time but i wouldnt change it for anything and now he is going to be 6 years old in september

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Today is April 09, 2009, my twin girls are 3 months and 12 days old. Adelyn and Caroline were 22 weeks and 4 days gestation. Putting them at 17 weeks early. They are both still in the NICU in NC, thats were i was when i delieverd- I was just there to spend x mas with family while my husband worked the hollidays so we can afford all the baby things we needed. We live in SC with our 3 year old son, it is a 4 hour drive from our house to the NICU. I had a very normal pregnancy, no issues, no concerns, everything was going great- untill christmas day when i went into labor. Addie was 1 lbs 6 oz. 12 inches long, and cara was 1 lbs 7 oz 12.5 in. they both were born crying, and had an apgar score of 8 each. 3 days later addie was rushed to a second hospital becuase her intestins has ruptured. at day 6 cara was transfered for necrosis of her intestins. that same week we learned that both of our baby girls have a grade 3 brain bleed. Caroline was the first to get off of the ventilator, and she was on nasle canula beofre she was a month old. It was valentines day before i could hold addie for the first time, the very next day she was on nasle canula. we have our great days with great reports, then we have days like today where our report is they had to reintabate our baby and shes on 5 mics of fintinal. my girls were a great and unexpected christmas gift. To some extent i understand what you went through.. Micro preemies are amazing little things.









also, any advice, incouragement anything would be super. my e-mail is ringerfamily5@yahoo.com

Sandra - posted on 03/12/2009

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It is so nice to hear from other micropreemie moms and their stories. My son Antonio was born at 24 weeks weighing 1 lb 15 oz. He spent 142 days in the NICU, 2 months on a vent. We were fortunate that his lungs have been his only major issue. He is still on 1/8 liter oxygen at night and therefore still uses an apnea monitor at night too. He had hernia repair surgery at 6 months and suffered from reflux pretty bad. Developmentally he has caught up to his real age of 14 months except hasn't started to walk on his own yet (he is on the cusp though as he walks with us holding onto one hand and he cruises like a king). Every day with him is a miracle as he is an amazing boy!

Lindsay - posted on 03/12/2009

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what an awesome story.  I too have a micropreemie at 24 weeks weighing 15 oz!  He was in the hospital for 135 days and came home on oxygen, but never needed a feeding tube.  He is now 3.5 years old and he doing great.  He goes to daycare/preeschool as well and LOVES it.    WHat similar stories we have!  MIRACLES DO HAPPEN!!!!  Congrats

Erin - posted on 03/01/2009

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My daughter was born at 22oz or 1 lb 6oz at 24 weeks gestation. She only came home on an apnea monitor. She spent 99 days in the NICU. She is now three and a half and has no problems. She is so smart. It's amazing. She will be starting preschool in the fall. The most wonderful thing she had after she came home was what we call Birth to Three. A program where she had a physical therapist, occupational therapist and speech therapist come to our home 2 times a week to work with her. She was never more than 4 months behind in her milestones and is now surpassing my 5 year old nephew with skills. I am so proud of her.

Cheri - posted on 03/01/2009

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I also had twin boys that were born at 19 weeks. 280 and 286 grams. My little Angels may they rest in peace.

Cheri - posted on 03/01/2009

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Hello, my son was born on October 15th '08 at 26 weeks, delivered by emergency c-section. He weighed in at 2lbs. 1 oz. We were fortunate enough to have a well nourished baby. He was in the hospital for 95 days. He was on a ventilator for at least two months and oxygen for the remaining time up until a week of discharge. We got lucky with this little guy he didn't have too many serious issues. He had a lot of apneic events, some of which were very scary for me. He has a grade 2 and a grade 4 bleed in his brain that has been slowly healing up. He has chronic lung disease. He had to have surgery to get his PDA clamped when he was about a month old. He just had surgery a week ago to repair two hernias.

He is now 4.5 months old. He came home on Jan. 18th. He's doing great. Still on meds for chronic lung disease and other meds for minor issues. He's eating well and so far developing well...lifting his head up and such. We have appointments all this week to check his heart, lungs and brain so hopefully everything checks out fine.

Kerryann - posted on 02/21/2009

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wow thats the most wonderful story i have ever heard tina,what an amazing baby you have there and should be so proud which i know you must be, i had a little boy at 29 weeks weighing 2lb 10oz  and that was so scary i cant imagine how small your little miracle must have been thats sure is a little fighter well done to you and your little one hope she is doing well now best of luck for the future xxxxx

Shannon - posted on 02/20/2009

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My 26 weeker was born at 1 lb 13 oz. We spent a relatively easy 6 weeks in the NICU. She's 2.5 now and doing well.

Tracy - posted on 02/17/2009

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I actually had two micro preemies:



1 is my angel in heaven as she was born at 24 weeks 5 days and weighing 1 lb 4 oz, however she was not fighting and was only with us for an hour.



The 2nd is my earth angel born at 27 weeks 5 days and apgars of 6  weighing 1 lb 15 oz, and now is a healthy, happy 4 year old who can't wait to grow up.

Cindy - posted on 02/10/2009

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Put her in a kinder/1grade combo With someone who is good with special needs. Not in a special needs class. This way she will follow her pers. I worked with SPED before we got our daughter. Right now she is in a preschool they has both kids (reg & sped) they teach in sign PEC's and verbal. She is doing great. If they dont have a class like this ask or put one on her IEP. Happy to hear that she is doing good our daughter was 13 weeks early and 2lbs.

Rebecca - posted on 02/09/2009

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My daughter was born on Sept 17, 2003 at 26 weeks, 1lb 6oz, 12 inches long. She spent 4 weeks in the NICU, had ROP and a small hole in her heart, but both were fixed. She contracted sepsis twice, but pulled through. She is now 5 and in Kindergarten! She knows her letters and their sounds and can recognize most numbers, but still has a slight learning delay. I may be keeping her back in Kindergarten next year. She is also an excellent soccer player!

Lisa - posted on 02/08/2009

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Hey, well my son was born at 30 weeks weighing 2lb 9oz, my son was only in hospital for a month, when he came home he weighed nearly 5lb he put weight on so fast and all the doctors were amazed, hes now 2 1/2 and is doing so well he is very clever and is doing things some 3 year olds cant do. My daughter Freya was born on the 29th of August 2008 at just 28 weeks weighing 1lb 1/2 an oz but she was (still) born. my son my miracle, My daughter my Angel.

Kim - posted on 02/07/2009

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My daughter Kristi was born on November 8, 2001 at 26 weeks. We were very lucky that she actually was big weighing in at 920 grams. She spent 3 1/2 months in the NICU. She was on a ventilator for about 2 months, had PDA, and NEC. She came home a week shy of her due date on an apnia monitor. She had laser surgery for ROP when she was 4 months old. Today at 7 and in 2nd grade there is actually nothing wrong with her other than a mild prescription for glasses. My second daughter Kayla was born early too but only 6 weeks early. She was big too weighing in at 6lbs 6oz. Now 8 months old and weighing in at 24 lbs. A very big girl! My husband and I through our business have been supporting The March of Dimes and their March for Babies walks each year since Kristi was born in the hope to find ways to prevent premature births.

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