Nissen Fundoplication and Gastronomy Surgery

Crystal - posted on 01/24/2010 ( 4 moms have responded )

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My daughter was born at 26 weeks , and has been in the NICU for 19 weeks. She has had a PDA ligation, lung remodeling because of chronic lung disease, and she now has to have a gastronomy tube put in and nissen fundoplication surgery.

Has anyone else's child had either of these surgeries? How has your baby handled it? How long did your child have to have the g-tube? Has anyone had a child have the g-tube and come home on oxygen? Any advice?

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Crystal - posted on 02/22/2010

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We came home with the g-tube and oxygen. Have you had the button come out on it's own, or did you just replace when it came time to change it out?

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We had the g-tube and on O2 at home...it really wasn't that bad once we got used to it. Putting it in yourself the first few times is tough, but then it becomes old habit. My only advice is to tape it down good - my daughter was quite proficient at pulling that tube out several times a day.

Crystal - posted on 02/10/2010

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How did her surgery go? Is she home? My daughter had her's done last Monday. We have taken all the classes, and it doesn't seem as over whelming as the reading material made it out to be.

Heather - posted on 01/24/2010

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My daughter was 28 weeks and has Chronic lung disease, anemia, IUGR. She is having the nissen and g-tube on Wednesday because she has failed all medical management. She was born Oct 6 and has only been home 15 days since then. This is our third trip to the NICU.

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