possible asperger's syndrome

Amanda - posted on 04/28/2010 ( 11 moms have responded )

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one of my twin sons is behind and the pediatrian wants him developmentally tested. he was 5 weeks and 4 days early at 5.4lbs. he is physically where he should be but is far behind in speech and motor skills. i have been doing some research on asperger's and he fits some of it but not other aspects of the disorder. help, anyone know anything...

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Susan - posted on 05/05/2010

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My son was born 15 weeks early and weighed 1lb. 8ozs. at birth. We had him developmentally tested several times and he was always fine until he reach 2 yrs. The doctor that tested him also found him to be speech and motor skills delayed, he also found that he had 2 points out of 11 that suggested Asperger's but ended up diagnosing him with Pervasive Developmental Disorder not otherwise specified, which is a fancy way of saying there's something there but we're not sure what it is.
Don't despair, keep his up his evaluations, talk to your pediatrician often and tell them your concerns. My son will be 17 yrs old next month, he is finishing up his junior year in high school and is doing great. He caught up in speech and motor skills before he started Kindergarten and the concerns that we had ( in his case limited eye contact and repetitious movements) fell away in time. Keep informed, have good communication with his pediatrician, and just keep being the good Mom you obviously are.

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Kacee - posted on 05/06/2010

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I am raising my nephew. He is now 13. When he was little (about 4) they diagnosed him with aspbergers. He does not have it. He doesn't have the need for extreme scheduling, he is just socially awkward. This is from the behavior therapist we had come to the house. Unfortunately, today anything or anyone that is different must be diagnosed by a synrdome or "ism" of some sort. I don't know if your son has it or not, but I will say do not let the dr push you into something that you don't feel is right. If you feel that other avenues should be explored (like speech therapy) for the sake of your son INSIST upon them. I know Drs make it very hard for us to make our own choices for our children, but that is our job now isn't it? Like all parents, do you best, go with your gut and everything will work out.
P.S. My nephew is still "socially awkward" but he has friends, he does well in school, and because of my husband and I making an effort to shut down the TV at dinner time and talk, and remove the nintendo on long road trips and talk he is getting more confident every day.

Corina - posted on 05/06/2010

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Go with your gut..if you think something is wrong, than I would get my son tested. I think this is the reason, I keep asking the doctor and researching because I saw some differences. When my son went to preschool at the YMCA, I started to notice his speech delay and behavior he had was very different from the other children. His preschool teacher was the one who advise me to call the school district for speech.

Corina - posted on 05/06/2010

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Hi, my son was recently diagnosed with autism at the age of 3 1/2. His doctor was concern with his speech delay at the age of 2 years old. Autism was never a thought because he did not have all the signs. I was referred by my doctor to speech therapist to have him evaluated ( 2 1/2). Once he turned three, he was tested by the school district for his speech..however, the speech therapist insisted that we have him further tested. After we received the diagnosis we were in denial than we started to talk to the other people and noticed he did have some of the signs. Than we found out their are different levels of autism. Now we have my son in a preschool which is for children with autism and they working on his speech and behavior. I think the best thing is for you have your son tested. The earlier you obtain help the better. I feel bad in my situation because we waited too long, and wish we would have gotten help at age 2 or earlier because, I never knew about autism until recently.

Sharalyn - posted on 05/04/2010

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Sounds more like a Sensory Processing Disorder problem to me. My son (born at 34.5 weeks, weighing 5 pounds 4.5 ounces) also had severe speech delays, and some compensatory motor problems from weak core muscles. SPD is quite common in preemies, so he should be tested. I would go to the School District asking for the birth to 3 program contact info. Then check with them (many of the districts are now birth to K) on what the best route to testing *for developmental delays* for you and your son is. Don't bring up Asperger's. If they find signs of it, they will bring it up. ((hugs))

This is a great website (with checklist included):
http://www.sensory-processing-disorder.c...

Trying reading one of these:
The Out-of-Sync Child
Raising a Sensory Smart Child
Too Loud, Too Bright, Too Fast, Too Tight

Hope that helps!

Teresa - posted on 05/04/2010

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My best friend's son was diagnosed with Asperger's about 6 years ago. They did early intervention, learning ways to interact and teach him the social skills he would need, they also did a GFCF (Gluten Free Casein Free) diet which worked like magic for him. He is still on the diet and still struggles with social and academic skills but his diagnoses has changes to a cognitive delay and he has been able to stay in a regular classroom with a part time aide. Everyone loves working with him and everyone in the school knows who he is. We just remind him that he thinks differently and needs a little different approach then the other kids when he gets down on himself.
Keep to your guns as a mom. Mom knows better than doctors when something is off. Keep going until you get help that works for Connor. If my friend had backed off and not gotten him the help he needed he would not be doing so very well.

Amanda - posted on 05/02/2010

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i have always worked with kids and understand the importance of getting help. i want to get him what he needs as soon as i can but i have to find out what is up with him first, it is hard to know what is personality and what is lack of speech problems.

he is always my follower, never the leader, he rubs my shirt or his blankie when he needs comfort, and he has to have that alone time daily. he does make eye contact and laughs when tickled or chased around the house but he is so far behind in his speech. he hates to use his fork, he would rather drink then eat, he jumps into the pool but doesnt like water poured over his face in the bath. he is my special little one.

Megan - posted on 05/02/2010

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I am a kindergarten teacher and a mom of a one year old. I would say that the soonest you can get him tested and into therapy the better. It is amazing the progress kids make through the therapy, but only if they receive it when they are young. I had a five year old student that was still undiagnosed and he is falling farther and farther behind all because his family is in denial.

Nikki - posted on 05/01/2010

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It sounds like Conner has some real strengths, Amanda. The neat thing for you is that you have other children to compare him to (of course, too much of that is never a good thing). My best advice for you is to go with your gut. If you thing something is organically different about him in a way that seems developmentally abnormal, then you are likely right. Remember that social skills can be taught. If he does have Asperger's, they will just have to be taught explicitly. In other words, he won't just "pick up on them." But, there is a real possibiltity that the desire to be alone is all just part of his personality. Don't try to figure it all out before going to the doctor because then, your perception may be skewed. Just notice what you notice and bring that info to your doctor. Keep me posted!

Amanda - posted on 04/30/2010

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he does make eye contact, will carry on a conversation with you, even if you cant understand him, he was three on april 24th 2010. he doesnt socialize very well, we can go to the park and he doesnt play with other kids, he plays alone or with his brothers. he doesnt rock or act like i have seen autistic kids act, but he can sit with playdough or blocks for an hour and be in connor land. i want to get him back in speech threapy and figure out what is personality cause he doesnt talk very well and what may be a disorder. any ideas on other things to look for nikki? i am desperate for answers so when we go for testing i am as informed as i can be so he gets the right kind of help...

Nikki - posted on 04/29/2010

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some things to look for...
does he make eye contact? does he watch what you do and respond in any way? does he smile or laugh at things you do? there are definite motor delays associated with autism spectrum disorders, but the social stuff is much more prominent. how old is your child? from a professional standpoint (i am an OT) and from the standpoint of a mom (i have a 1 year old), i would recommend getting the testing done. it can only help!!! your sons delays may be minor, temporary, or easily "fixed" with therapy. or, even if it is autism or asperger's, there is a ton of research that shows that early intervention makes a remarkable difference in the level of severity that the kids have once they get older. some of my favorite kids that i work with in the schools have autism spectrum disorders. it is nothing to be afraid of:)

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