Preemie with breathing problems

Shannon - posted on 09/25/2009

this was happening to my boyfriends little sister and it actually turned out to be caused by acid reflux disease...its something to ask the doctor...

Danielle - posted on 09/22/2009

My son was born at 28 weeks and was only on the vent for 2 days and he had no breathing problems until he went in for a hernia surgery and was tasking off the vent. They determined at first he had laryngomalaysia then trachealmalaysia and tehn the ENT surgeon took him down and did a broncoscopy and found a cyst. About 2 months later they took him into the OR for a steroid injection (they finally determined it to be a hemangioma cyst in his airway just below his vocal cords) and after surgery in recovery his airway swelled completely closed. The very next day he had a laryngealtracheal reconstruction surgery. He still has some airway issues but his ENT specialist says he should completely grow out of it by about 3 years old. By the way do you live anywhere close to Mayo Clinic (Rochester Minnesota)? Is so it would be great if you would contact me to see if I could help you out in anyway. Good luck.

Chelle - posted on 09/14/2009

Your daughter sounds like what she has/had or what they are looking for is a lot like what my son has. He has tracheomalacia and bronchiomalacia. His trachea and bronchial airways collapse off and on randomly on their own. His lips turn blue because of it. He also has asthma. He was just recently diagnosed w/ all this and is 15 months so it's good they will find this out sooner for you. There is nothing we can do for him. They said it will firm up with time, or it should. And his pulmonologist has left it at that and we have regular check ups for his asthma. But the malacia make him wheeze constantly even though he is on steroids for his lungs and inhalers and what not. Also my son has GERD and is aspirating his reflux which causes even more wheezing. But we have bought a pulse-oxygen machine and monitor his breathing when he turns blue. You can buy them offline. We bought our offline for only $45 and it's small and portable and works great! Good Luck!

Janet - posted on 09/13/2009

Great question, my daughter was 27 weeks weigh 1lb 2ozs, her breathing was always really loud. Her Ped. started treating her for ashma. They recommanded that she sees an ENT Doctor...the ENT Doctors did xrays and a sleep study, and found that her tonsils and adenoids were enlarged...because they were enlarged she was always sick with colds, upper respiratory infections and also had sleep apnea. Her tonsils and adenoids were removed at age 4, she is now 10. Since the surgery she does not get colds as often and the loud breathing problem went away. But for the first time in 6 years, last winter she started having breathing problems again (not loud breathing)...it started with a cold that lasted for 2 months, the good part is once winter was over she was fine. The loud breathing did not come back, but she had a very bad cough only at nights and seems to not breathing properly. Her Ped. sent us again to have her test for ashma, once again we were told she doesnot have ashma. Instead the Doctor said she has very bad outdoor allergies. My daughter is fine now...but lets see what happens this winter....

Megan - posted on 09/11/2009

My daughter was Born 24 weeks to the day! And she Is On Oxygen and is almost 5 months and only is 7 lbs.. And the ZDoctor said she might be on Oxygen til she is 3yrs old.........

Diana - posted on 09/11/2009

My daughter Tanaea was born at 25 weeks. We finally brought her home two weeks before she would have been term on July 30, 2008. Her breathing was fine until October 2008 and then suddenly she was breathing loud through her nose. Our ped. said it could be immature larnyx and we'd keep an eye on it. Almost a year later we had her scoped and it was found to be that her nostrils are narrow causing congestion in the nasal passage. Since she refuses to breathe through her mouth, when her nose is congested it remains loud. It is something she will outgrow as the nasal passage grows, so until they grow bigger I will keep on using saline drops when needed to clear out her nose. I'll keep my fingers crossed that they find the same result for you, in the meantime if the nose is noisy try Otrivin saline drops and a suction to clear her nose. I hope this helps!

Stephanie - posted on 09/10/2009

My son did not, and I'm sorry to say I guess I am of no help to you... my son had a "cold" when he was 4 weeks old which turned out to be RSV. He is now on long term aresol inhalers.. he hates the machines and makes us want to cry ourselves but we know we are doing it for him. I would say to let them look through the scope and see whats going on- then make a plan for the future- whether its surgery or not... hope I helped you a little and the best of luck to you!!!!!!