LIsa - posted on 07/07/2012 ( no moms have responded yet )
My Daughter is a 25 weeker, Born 1 pound 12 ounces, she has been in the Hospital 263 days, going to be 1 years old in 2 days. She is still in Hosptial hopfully coming Home in 3 weeks, She has multiple issues going on. Lung disease, G Tube, ( feeding issues), Sezures activity, and profound hearing loss. also positive for Mersa.. Its been a long year..I actually am having a hard time with the hearing loss. Has anyone hasd experience with there baby having profound hearing loss, failing test 2 times? I really dont wann believe it, and I pray everyday that the test was wrong. In my heart I dont believe she was born with loss of hearing. There are moments with her and still are that dont seem add up. I feel like sometimes she can hear me. I dont know. WE decided to wait til she gets home. and go see a specialist, get a second opinoin and go from there. Does anyone else experience this?