When Preemie Comes Home....

Elizabeth - posted on 09/02/2009 ( 23 moms have responded )

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What would say were the toughest moments and the most memorable moments when your preemie finally came home?

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Shari - posted on 09/30/2009

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Dealing with the oxygen tanks and apnea moniter was pretty much a nightmare, and being terrified of him getting sick. He started to get NEC in the NICU (though they caught it early), and the second day home I thought he was getting it again because he kept screaming. Turned out to be wicked bad gas. =) He's almost 6 months now and I still check to make sure he's breathing before I go to sleep at night.

[deleted account]

Our little guy decided he wanted to be born just 4 days before we were suppose to fly to Germany(Military family). He spent almost 3 weeks in NICU with really no problems other than them wanting him to hold his body temp before they would let him leave the hospital. The day he was released we had a 3 1/2 hr drive to my moms home for about a week and then we had to drive back to catch our flight. While at my moms house I had to make sure everyone washed there hands before they held him. On the flight to our new home he did wonderful. I will never forget sitting in the bathroom on the plane pumping milk so that he could eat...lots of unhappy people :)

Molly - posted on 09/28/2009

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the toughest was remembering to wash hands and when visitors came over they had to wear a medical mask...the most memorable was him sleeping all the time:)

Tori - posted on 09/28/2009

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i was scared to fall asleep lol i was scared that she was going to spit up in her sleep and choke but she is 3 months now and a-ok lol

Debbi - posted on 09/14/2009

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For me the hardest moment was leaving the NICU nurses. My son was there for over 15 weeks so we had bonded a lot with them.

The best moment(s) were when the took the bracelet off. That made it so real. Then when the cat came to inspect him and he made a sound that made her jump - that was hilarious. Also, knowing that we could hold him and bathe him whenever we wanted!

Danielle - posted on 09/13/2009

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Quoting Carie:

I was always checking on her to make sure that she was breathing. You get used to the constant monitoring in the NICU.


I was the same way when my daughter came home. When we were in the NICU being discharged I got sick to my stomach cause I was so nervous not knowing how I would care for her without the machines there telling me if she stopped breathing or had a sudden drop in heart rate.

Carie - posted on 09/12/2009

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I was always checking on her to make sure that she was breathing. You get used to the constant monitoring in the NICU. The best part was being able to do what you think is right for your child not what the NICU staff thinks is right. Not that I don't love the NICU staff I do.

Staci - posted on 09/11/2009

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the toughest was trying to convince the ICN nurses that nobody makes a car seat for babies under 5lbs. My daughter was 4lbs 11oz when she left the hospital and the nurses didn't want to let her go because the car seat said 5-30lbs on it. I told my husband that even if it meant that he had to go home and get her stroller so I could walk her the 6 miles back to my house I was not leaving that day without her. She had been in there for 27 days. Looking back I probably looked like a crazy person but I was stressed out and just wanted my baby home. The most memorable moment was when the cat's were sniffing her bassinet and she sneezed they both bolted for the bedroom. It was hilarious.

Katie - posted on 09/11/2009

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We did not have cribs yet becasue we were broke. It was rough not having a special place for them but also their reflux problems made them stop breathing a lot and we had to sleep in shifts to make sure we were there at all times to help them remember how to breath. It sucked.

The most memorable was watching my hisband bond with the boys. He wanted girls but now is so in love with the boys he would not trade them for girls anytime lol.

I love your profile picture buy the way...how precious.

Wendi - posted on 09/06/2009

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The toughest moment so far with my first one was the days of no sleep and walking the hallways because she was colicky, making sure she had a bm everyday as she had problems with that, and having an operation at 15 months old for tubes in the ears. The toughest moment so far with my 2nd one was when I left the hospital leaving her there by herself. I cried for days because I wanted my baby home.



The most memorable moment for my first one was everything watching her grow and learn and once she had her tubes put in her ears not having a constant ear infection and then watching her vocabulary just grow. The most memorable moment so far with my second as she is only 7 months is just watching her explore everything and when they told me she went 48 hours straight with no tube feeding and that I could bring her home.

Peggy - posted on 09/06/2009

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Quoting Natasha:

The hardest thing about bringing my preemie home was that she was so small. I was so afraid to hold her, and breastfeeding was a challenge since her mouth was so tiny. :] But there are so many good moments. Like when she finally went to sleep and I could just look at her, without all of the IV, cords,and machines. Just knowing she was mine and God had given me such a precious gift. Then she wakes up screaming for what seems like no reason, then you start to think that you are in way over your head. Lol. Make sure you have someone to talk to about your frustrations, don't hold it in, and make time for yourself, even though it seems impossible. Remember, your daughter can feel when you are tense, so try your best to make a balance in your day, find time for yourself, take a hot shower! Good luck!


Preemies need to conserve strength and so do you.  If she's falling asleep be fore finishing and doesn't seem to be getting enough milk and you have to express more milk and still bottle feed and then start all over again in 2 hours, like I did.  You'll never get any sleep. Believe me you'll be a better and healthier and happier mom and baby if you both can sleep in between feedings.  I found that Breast milk expressed (especially using an electric pump, as my step daughters have used) and then given in a bottle with a softer nipple designed for preemies can provide faster, better results with less stress.



If you haven't got such a devise or don't have much milk, like me, I used a good soy formula and a 1/2 teaspoon of rice baby cereal (my mother's advise and on this she was better then the doctor). After all my baby was three months old when he came home and his little tummy had months of experience just not much room. It worked and he grew and he slept and I maintained my sanity.LOL

Peggy - posted on 09/06/2009

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The hardest thing about having my son home was the isolation. I no longer had the nurses to talk to and mothers with normal babies and I had little to share and it seemed I new so few. But that was 37 years ago and he is now 5'9" and 135lbs. Let me tell you every second of being his mother has been both a challenge and a blessing, and we would not be the strong and accomplished people that we are today had G-d not given us that early start.

[deleted account]

The biggest challenge was the two weeks apart between my twins. THey were born at 30 weeks and my little boy came home first. Visiting my little girl while he was home was very difficult. My mom had to come help out and get a special pass to visit her as well. Once both of them were home, however, the only hard part was fitting in all the follow-up doctors appointments!!

Shelly - posted on 09/05/2009

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my son was born at 24 weeks 5 days and was in scbu for 16 weeks with lots of problems and operations,the best day for me was when they said he could come home,it was the best feeling in the world.

The worst was thinking if anything goes wrong theres only u and no special care team of nurses and doctors behind u making sure they are ok,but we had fantastic after care and loads of follow up appointments at hospital and it has all been worth it as our son is now a happy healthy,and sometimes cheeky,7 year old and looking forward to going back to school on monday.

Bridgette - posted on 09/03/2009

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I never slept and I watched his apena monitor so close i would just sit and stare at it. The most memorable moments were when he smiled at me, when we would just stare at each other because i had no idea what i was doing! lol

[deleted account]

I brought my son home on Mother's Day after a 5 week stay in the NICU. Although we were exhausted from rooming in the two nights before, the best moment was when they took off his ankle bracelet (they make all babies wear them at the hospital he was in) and I finally put him in his carseat and carried him home. Then just holding him in without tons of blankets and monitors attached to him was wonderful. It was really challenging for a while because he never learned to breastfeed, but I wanted to give him breastmilk, so I was pumping every 3 hours so he would have food. My husband was working a 4 a.m. to 1 p.m. shift then, so he couldn't help at night, and I just remember a blur of exhaustion because of the amount of time it took to pump, feed him, get him back to sleep, then clean everything.

Laura - posted on 09/03/2009

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The most memorable moments for me were late at night. Watching her sleep, I was in such awe of her. I was completely overwhelmed by how much I loved her. Cuddling her and nursing her in the middle of the night in my bed when the rest of the world was asleep were some of the most beautiful moments of my life. They still are. The toughest thing for me was being scared and lonely. I had no family around when I brought her home, so I was basically on my own. There was no fanfare surrounding her homecoming, just us. Katelyn was my first and she was born 2 months premature. She was so tiny and I was so worried I would do something wrong. I am much more confident now in my ability to be a great mother to her. It was just very overwhelming.

Ashley - posted on 09/03/2009

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I bawled my eyes out when my son came home, it was so hard thinking about taking care of this tiny human being! As much as I wanted him at home and in my arms it was terrifying. He was already on a schedule and I felt like it was all out of my hands. After a few days we adjusted and it started to feel like everything was normal. I agree in taking time for yourself too. Take care of yourself and let people help out. I was such a germ freak, not letting anyone else hold him or feed him but my mom and my husband. Eventually I let it go and it all just fell into place! I think it was harder when my second one came home, I didn't know what to do since I was able to make his schedule and someone else didn't do it for me. Hang in there and give it time! : )

Natasha - posted on 09/03/2009

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The hardest thing about bringing my preemie home was that she was so small. I was so afraid to hold her, and breastfeeding was a challenge since her mouth was so tiny. :] But there are so many good moments. Like when she finally went to sleep and I could just look at her, without all of the IV, cords,and machines. Just knowing she was mine and God had given me such a precious gift. Then she wakes up screaming for what seems like no reason, then you start to think that you are in way over your head. Lol. Make sure you have someone to talk to about your frustrations, don't hold it in, and make time for yourself, even though it seems impossible. Remember, your daughter can feel when you are tense, so try your best to make a balance in your day, find time for yourself, take a hot shower! Good luck!

Jessica - posted on 09/03/2009

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My daughter was born at 26 weeks and after spending 113 days in NICU's in 4 different hospitals just bringing her home was the best feeling in the world. She's now into her 6th week at home and I'm still nervous sometimes, checking she's all ok and everything else that goes with having a preemie ;o) Her smiling and gurgling make all those weeks seem like a blur now!

Diana - posted on 09/03/2009

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Our daughter Tanaea spent 89 days in the NICU, 70 at Sick Kids and 19 at our local hospital. She was born at 25 weeks. I would have to say the toughest moments were the transition period. It seemed to last forever (I still treat her different than I treated my son) adjusting to no monitors, trying to ensure she was eating enough, any little cough, sneeze etc. had me wanting to run to the doctor. The most memorable moment was the day I finally had her home and watching her sleep soundly without the monitor hooked up to her, she slept so peaceful and she was so beautiful. I am now enjoying the beginning of her toddler years and everyday is a new adventure.

Lindsey - posted on 09/03/2009

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The most difficult thing was never sleeping. My husband and I worried about everything...every caugh, deep breath, cry, grunt... The most memorable and rewarding thing was snuggling. It's such a great feeling when you can finally hold your baby in your own home :-)

Liz - posted on 09/03/2009

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I'd say the toughest moments was when my son first came home. He cried all night for the first two nights until we finally realized the major thing that was different between the house and the NICU, so when his twin sister came home four days later it was a lot easier transition.

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