Anyone have Hellp through there pregnancy
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Julie - posted on 01/27/2009
So good to know there are so many people all with similar stories and all being able to share there stories with us and maybe help others to learn what this really is. We are all there for one another which is a help. Thank you for sharing all your stories . Keep it up
Kelly - posted on 01/27/2009
Me too...had it and had a csection at 26wks, daughter was 1#10oz...she is now 15mos old and PERFECT, and my horrible health (at the time) returned to normal w/in 3months of delivering (thank goodness!) All is now good. What is your situation?
Amy - posted on 01/25/2009
I developed HELLP at 28 weeks. My son was delivered via emergency c-section. I spent 3 days in ICU, he spent 79 days in the NICU.
HELLP was not identified until 1982 and only occurs in less than 0.5% of pregnancies. OBs can literally practice for 30 or 40 years and never see a single case of HELLP. It is not uncommon for non-OBs (general practicitioners, ER docs, etc.) to have never heard of HELLP.
Here is a page of links about HELLP: http://www.preemieparenting.com/causes/h... Also, the Preeclamspia Foundation offers a Forum for HELLP survivors at http://www.preeclampsia.org/forum/forum....
Helen - posted on 01/24/2009
I had a liver funtion problem, but it wasn't hellp. It was acute fatty liver disese of pregancy which is very simialar. A normal liver funtion reading should be 50 but when the dr's worked out what the problem was my reading was 960. It could have been fatal for me and my unborn at the time. The signs are just as most of you have experiance, pain in right side, sickness. Some of the other signs that i didnt have was the high blood presure, swelling in hands and feet, and itchy skin.It starts to show at 30 weeks but until then you don't know its going to happen. I live 30 miles from london and it was a doctor in a london hospital that worked out what was wrong over the phone. After i have my c section, my family looked up about the condition and it apeared to have in first child and main boys. They are unshow if it will happen again as there is only 1 in every 13000 people get it.
Emma - posted on 12/12/2008
Yes I did and it's good to know I wasn't the only one. I don't mean that in a nasty way it's just that I thought I haddone something wrong as I bet you all did. I was ill throughtout the whole of my pregnancy. Trips to the doctors atleast once a week and no-one knew what was wrong. Then I started getting really severe headaches and nausea but they said it was most likely lack of sleep. Then I started with blurred vision (once even falling down the stairs), flashing white lights and dizziness. All down to a lack of sleep. Then I started to swell and get a rash everywhere and once again went to the doctors where I was referred to the delivery suite and told it was only a precaution. On arriving at the hospital I was asked what the problem was and told them. The midwife was the most ignorant person, no word of a lie. She basically said I was wasting her time and said she would have finished her shift if I hadn't have turned up. How nice? Anyway, my consultant was a really nice man and basically told me I might have HELLP and I got scared lol but then the midwife said yeah but her bloods are normal so I was discharged. (This was Friday). The following Tueday I went for a check up at my local clinic, because I had previously had protein in my urine, and I was told not to worry but everything wasn't normal i.e bloods and urine so I was taken to the hospital. I stayed there two days and got worse and was tolod I would be delivered in 48 hours. On the Thursday, I had a bite of toast and vomited (greenish bile) and then I was nausious and blurry visioned again. So, I told the midwife and I was sent straight away to the delivery suite. I was then put on drips and everything to be monitored. And at 23.22 I delivered my first little girl and she weighed 5'11 and I was told she should only be 2'5. She was born at 35 weeks but was very healthy apart from jaundice. I had to stay in hospital for 2 weeks because all my bloods were all over the place and because of my daughters jaundice. I'm really scared about having anymore because of this happening to me and the risk of either me or my child dying. Will this most likely happen to me with any further children?
Patti - posted on 11/30/2008
I think all of us are in the same situation of HELLP not being out there & known by enough people. But I think we can change that by always sharing our stories with others. Then maybe one day they will find away to stop this terrible thing from happening to so many of us.
Nikki - posted on 11/29/2008
Hi Im Nikki, I too got Severe HELLP with my first child Mia (who is 4 next Week), At around 34 weeks I had the most horrific pain in my chest going through into my back. After numerous visits to the fetal ass unit they just said baby back to back position,.. turn out to be the start of HELLP unknown to me at that time. Then after enduring this for 2 weeks (as I didnt want to be a burden) I had to go again to the hospital & get help, this time they thought I was in early stages of labour. Wasnt the case, no blood was taken, they sent me home. Then late on the 5th Dec 04 I went again to hospital & luckily someone realised something not right. Saw my consultant & turned out he thought I had HELLP, so did various tests (as my blood pressure was pretty perfect throughout pregnancy)& yes it was HELLP. At 36 exactly (on my birthday too) Had an emergency c-section under a general, (Mia was born 4lb 12oz) My platelets went down to 24, white blood cells went crazy & my liver & pancrias was very swollen (hence all the chest pain) it was the most horriblest thing, was scary as didnt understand it. I was in hospital for a week & most if not all midwives hadnt heard of HELLP, which was not great, felt very very alone.
Then in May 07 had number two baby Poppy, pregnancy was well (except for my anxiety & fear) but had c-section booked in but my waters broke, so had Poppy by emergency c-section at 38 weeks (5lb 3oz) then immediately after the epidural, my platelets started to drop then I got H.E.L.L.P again after delivery, platelets went down to 40 this time, so not as bad as the first time, but I felt equally as ill as i did first time round. Poppy was ok just on the small side like Mia was!!
This is a scary silent killer, Im a part of a web group, and a lot of the mums have lost their babies, some husbands too have lost wives, so I view myself as a lucky one, but cant deny that it scared me, it was very painful, & i felt very very alone as no one understood HELLP (I didnt at the time) I cant see me having anymore, not really advised, but my husband would like one, but its too risky for me, so he will have to get himself another wifey!!
I cant understand why HELLP isnt more out there, not one person I talked to about HELLP had heard of it, but it needs awareness raising as its a killer,... take care everyone & sorry for the long posting!!! xxxx
Becky - posted on 11/29/2008
I had HELLP syndrome and my son was born at 32 weeks, weighing 4lbs. 1oz. He's happy and healthy now at 14 months but man was that ever scary. This was my first pregnancy and I still really would love to have another. I had a midwife with my first and if I decide to have another I'll have to be consulted with an OB as well. I too had the right sided rib pain and I had for at least a week before i realized something was really wrong. My BP was 180/130 and my liver and kidneys were shutting down. I was admitted at 31 and 5 days and had my baby 2 days later.....the day before my baby shower!!! I have heard it is more common in first pregnancies and I guess that's what I keep thinking about for having another.
Nancy - posted on 11/21/2008
I got HELLP at 28 weeks. A couple weeks prior, they were watching me closley b/c my fluid was measuring low in an ultrasound. Then at 28 weeks, all of the sudden my BP spiked way high and I had protein in my urine. They admitted me right away and my dr turned me over to a specialist b/c he didn't feel like he was experienced enought to handle my case. I was admitted on a Friday. On Saturday they gave me sonogram to check the baby and my little guy he wasn't moving much or responding so they decided to induce my labor that night. I did okay through the night but woke up to an awful (horrible!) pain in my side and abdomen early Sunday morning. After the pain medicine they were giving me wasn't working, they did blood work which revealed HELLP and they immediately took me away for surgery. Noah was 2lbs 10 ozs and stayed in the NICU for 40 days. He is 6 years old now and minus some attention deficit issues, he is perfect. As for me, I had another boy (4 years after Noah) and didn't have any problems with pre-eclampsia nor HELLP. I decided to stop there...not b/c of the risks of getting sick again but b/c i don't know if I can handle 3 boys ;-)
On another note (that may or may not be related) ...thinking of long-term effects...I recently had to have my gallbladder removed. I think the gallbladder is connected to the liver so I wonder if the HELLP syndrome had anything to do with my failing gallbladder.
Julie - posted on 11/21/2008
It sounds very similar sort of thing to me. My son was only 4 weeks early but only weighed 3lb 10 oz cos of the hellp he was getting enought to keep him alive but not to fatten him up.Once he was born they had to feed him so little so his stomach wouldn't rupture as it wasnt use to having food. He done really well and was only in hospital 3 weeks. He was 4lb 3oz when we broght him home. It was hard cos i wasnt to well after. I have to have a liver check to see if the Hellp had damaged it. Thank god it hadn't. It is so god to speak to other mum's of the same all with different stories. Some even were in coma's for months after. i just thank god that never happened to me. So i was lucky in that way. How old is your eldest child? I bet he loves the youngest bless them
Patti - posted on 11/21/2008
I suppose the dr's don't know enough about it & it truly isn't a "common" thing so they don't want to scare every pregnant woman out there. There are so many different thing related to hellp that are the same as other medical problems its kinda hard to identify. I had no issues until a severe pain in my right side, when I called the doctors office they said it was most likely gas but you know when its something more. So thankfully I went to the ER & they diagnossed it. I went to ER late at night almost midnight and they did blood work & stuff then by 7 am the dr. came in to tell me she thought it was hellp and I would have to deliver the baby. I had blood work every hour on the hour no matter where I was, I had an ultrasound on my gallbladder & liver, I had a ultrasound of the baby, they did a MRI on me (which is not normal since I was pregnant) they read the MRI as it was being done. They had to wait for the platelets to be get to the hospital before I had the c-section and delivered at 3:11 pm. It was rough because we also had a 3 year old at home & trying to be there for our baby & be at home was very hard. But it all worked out & out oldest will still stories about kissing his baby brother's feet in the ER. They are now 8 & 5.
Julie - posted on 11/21/2008
I did ask my consultant about the chances of getting it again. He told me it is less likely with the same partner but more lickly with a different one. Someone i have spoke to about this said they had it twice with the same partner.So i suppose it just depends.
I asked the consultant why have i never heard of this condition and he said "They dont want to frighten you" But i do think that is you knew all the symptons you could keep a eye out for them. The pain i was getting that made my midwife do a liver check was my liver failing. I know all this now cos i have a close freind that is a midwife and she has told me quite a bit about it. Not sure it was for the better to know as much as she said. I didn't have the high blood pressure which is one of the big tell tale signs.
Patti - posted on 11/21/2008
I can totally understand your concerns. We thankfully only wanted 2 children and this happened on our second. I'm not sure I would've had the courage to try again after having HELLP. Apparently many women do have healthy normal pregnancies though. But I've also read about multiple incidents of having HELLP. I wish you the best of luck through your next pregnancy if/when you decide to proceed. Do you have doctors now that are more aware of HELLP? It truly is amazing how many people have never heard of this & how little its talked about.
Julie - posted on 11/21/2008
I thank you for your kind words... I must admit i havent really thought about effects on the children. I know the side effects from being pre can be alsorts of problems. My son is 8 and apart from having a ruptured Appendix at the age of 5 he has been in very good health. It is so nice to speak to people that have been through the same things. I have re married since my son and my new husband and i want to have a child between us i am more worried about this than i let on as my story i and my son are lucky to be here. I know then would keep a eye on you more next time but it's still very worrying
Patti - posted on 11/21/2008
Hi All - I would like to say thanks to Julie for creating this group. It is great to talk to others who have had HELLP. It has been 5 years since my HELLP incident & I'm still reading up on any studies I can find to participate so that others won't have to go through this (hopefully).
I feel we are all true blessing to be here & to have these wonderful children.
Does anyone ever wonder if you or the child will have side effects down the road from this?
Janis - posted on 11/20/2008
I too had HELLP, as, like many of you most of my midwives and even some of the doctors hadn't heard of it. I went to hospital on Valentines night as i had phoned the hospital 3 nights in a row because of the right hand stomache pain, I too could only sleep when I was immersed in the bath. It took 24 hours to diagnose me and that was by accident, I bumped my leg on a table and the midwife noticed how auickly I bruised and sent for blood tests on my liver. Up until this point I had been told it must be heartburn then I was sent for a scan as they thought I may have gall stones and all I was given was paracetmol and gaviscon! My blood pressure was a little high, but nothing to be concerned about. When my bloods came back it revealed my platlets had dropped below 40 so they needed to do the c-section but insisted on doing2 platlet transfusions before I could go down. My husband wasn't allowed to come to the delivery (I was later told this was because they weren't sure I would make it) and I had to have a general. I will always feel a certain guilt that neuther of us saw our daughter born. I had several further platlet and blood transfusions and my little angel was is SCBU for 4 weeks ( she was, amazingly, breathing for herself at birth and never needed assistace but she weighed just 3lb and needed to learn suck/swallow/breath). I am amazed daily that we are both still here and living a normal life after such a traumatic start! I agree there is nowhere near enough info. on HELLP, most health professionals haven't heard of it and that is quite a scary thought. I have read what I can on the subject. I had blurred vision 6 weeks before my daughter was born, this can apparently be a symtomn and if blood tests were done at the hospital then we may have known and been more prepared, I also had bleeding gums and was extremely tired, looking back these were all signs too but are also classic pregancy gripes which is why it was all missed.
Kelly - posted on 11/19/2008
Oooooooo, that nasty HELLP Syndrome! So many of us out there who have endured this awful sickness. I had severe preeclampsia w/ our first born, who died in utero at 26 wks. 2nd pregnancy was perfect, and she is now 5....3rd pregnancy got severe preeclampsia again, which turned into HELLP at 26wks. They took her via Csection, she was 1lb 10 oz. She had her PDA fixed, and was in the NICU for 99 days, but ended up being perfect! She's now 14 months actual and is starting to crawl....adorable girl. The HELLP was awful, made me lose sight in one eye (temporarily for a few months), liver/blood pressure problems, etc. Just awful! Lukily after aabout 3 months everything returned to normal.
Julie - posted on 11/19/2008
It is nice to hear from other people in the same situation as i was. It is a rare thing i wish there was more on it so you could read up on it. I was told by my consultant that is was less likely to happen again with the same partner but with a different one it would be more lickly. My son was in Nicu for 31/2 week. He only weighed 4lb 2oz when he went home so he was small but to see him now you would never have thought it.
I have remarried and am looking at having further children in the non to distant future but am worried about getting HELLP again. I know they would keep a closer eye on me but it is still worrying. It is so good to hear from people that know what your talking about and to haev been in the same situation. From what i have read about this they dont say anything about spacing having more children just that they will keep a very close eye on you. i know that if you have Hellp again they will have to get the baby out usually by c section. They said i was a rare case as i didn't have all the symptons so the consultent said i was lucky my midwife see that i was measuring smaller than i should ahve been and the pain i was getting and ordered for a blood test for my liver. I was admitted the same day and had to have a c-section to get the baby out. I know i was luck and so was my son. He was so small even though he was only 4 weeks early. He wasn't getting enough to fatten him up he was just getting enough to keep him alive. I do feel lucky though
Amanda - posted on 11/19/2008
my third son mason was born at 32 wks and weighed 4lb 3 he was in neonatal for 3 weeks. hes doin very now, hes 1 on xmas eve. it was a shock for me because my previous 2 boys were 10 and 11lb. my waters broke at 26 wks and he was breech so i had to have a c-section. hes fine now though apart from having to have an ear buddy and his head was flat on one side but like most boys hes very mischievous and into everything
Ambra - posted on 11/19/2008
I had severe HELLP as well and had to have a c-section at 32 weeks after my daughter stopped moving. My daughter was 1.5 kilos (3 lbs) and was in NICU for 3 weeks. She's doing fine now and only needed outpatient treatment for anemia. Although I was conscious through the surgery and recovery I did receive a platelet transfusion after the surgery. I also stayed in the recovery ward for 5 days instead of the normal 24 hours so the nurses could check my status every half hour... It took another 4 days in the hospital and about a month of heavy medication for everything to go back to normal. I found out afterward that I was the topic of discussion at both the hospitals I'd been to and that they were all shocked I was ok because my blood tests were awful when I was admitted and they expected me to go into a coma (I wondered at the time why my husband was with me and not the baby and found out later that he'd been told to stay with me just in case-- as the baby was more or less fine).
We were very lucky because although we were planning to deliver at a gynecological hospital the place we chose was not experienced with severe disorders like HELLP and it wasn't diagnosed-- they were only concerned because I had high blood pressure, she wasn't moving and the fetal scans were worrying. But, the "good" news was they didn't have any room for her in the NCIU so I was transferred to another hospital for the c-section. As soon as I got there a doctor realized what it was (high blood pressure, what I thought was severe heartburn but was actually liver failure, dark brown urine, nausea, extreme swelling in my arms and legs...). At the first hospital the doctor told me I needed more calcium when I told him my urine was a funny colour (???) and everyone, my husband included, also thought I was just a whiny woman with heartburn-- even if I could only sleep when I was submersed in a warm bath to dull the pain in my abdomen. If only they would talk more about HELLP in the books and prenatal classes! I'm worried for the next one and will ask for steroid injections at 30 weeks (when my symptoms started) just in case, but the doctors assure me it's highly unlikely it will happen again... That said, it's more likely than it was the first time, too and I got it then so I'm not that reassured by statistics. We'll try once more and see how it goes. What did your doctors say about spacing, though, should we wait longer to avoid a repeat, or does it matter? I'm in Poland and gynoecologists don't seem to know all that much about the disorder.
Patti - posted on 11/18/2008
We chose not to have anymore as this was our second child & really didn't want the risk of it occurring again. I had no complications with my first pregnancy and was fine all the way through 2nd until I had a pain in my right side. Went to hospital they started out treating my like I was a whimpy pregnant woman until all these blood & urine test started coming back all crazy. Then I was the hot topic of Labor & Delivery. They did several test on me just to make sure it was HELLP. I did have a platelet transfusion as my platelets got down to 40K but once I delivered I was wonderful. Strangest thing because the dr's kept saying I'd be sick for a while. I do have high blood pressure since HELLP and not sure if its all because of that or not - I'm other wise active & healthy.
Francine - posted on 11/18/2008
I had it with both my pregnancies, along with severe pre-eclampsia both times, as well. My son was born at 30 1/2 wks, 3lb 7oz, 4wks in NICU, is totally healthy and will turn 6 tomorrow. My daughter was born at 27 wks, 1lb 14oz, 9wks in NICU and had PDA ligation, very healthy and is almost 3 1/2. Both were delivered by c-section, although dr's tried to induce with my first. Since I had the same condition twice, it would happen again, so we are finished with 2 beauties.
Patti - posted on 11/18/2008
I did, I was 31 1/2 weeks pregnant with our second child. Our son weighed 3 lbs 12 oz and stayed in the hospital for 7 weeks. He's now a strong healthy 5 year old.
Always good to find other moms with the same background.
Sandra - posted on 11/18/2008
I have to agree that the health of the baby is all that matters. My son is doing fine now, still a little smaller, but you couldn't tell he was premature. Are you thinking about having another baby? The information on haing another one is so divided. We decided not to have anymore because of the stress on my body from the last pregnancy and I don't think I could handle being in NICU any more.
Julie - posted on 11/17/2008
I was told i was a rare case as i didn't have the high blood pressure. It was the fact i was getting a pain in my right side of my tummy and i was measuring smaller than i should have been that they done a liver check. That told them i had hellp. They told me i was lucky cos it could have gone undetected. I was poorly after and had to have close eye on me after they said i was very lucky and so was my son. my platlets dropped to 46 and they should be anything from 150 -300. They were thinking i might need a platlet transfusion but luckly i didnt. I was poorly for a while after but did recover fully and my son was doing well thats all that mattered. I have seen on the Hellp web site that people have been in coma's after so i feel so lucky that didnt happen to me
Sandra - posted on 11/17/2008
no, he was actually my second baby and that is also rare. i have high blood pressure and did during my first pregnancy, and the second one they kept a good eye on me, but the protein level became so high the doctors didn't want my husband to have to make a decision dealing with my health, I became very sick after I delivered. the doctors told me that i should be fine after the birth, but i was actually worse. Did that happen to you too?