Has anyone done synagis?

Alexis - posted on 11/22/2009 ( 25 moms have responded )

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I am thinking about doing synagis for my baby that was born at twenty-eight weeks, and I was just wondering the feedback from anyone that has done it. Any bad reactions or just general experiences.

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Carol - posted on 12/05/2009

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My daughter, who was a 24 weeker, had syangis shots for the entire winter of 2008. She showed no obvious issues as a result. The shots stung her, she definitely cried... but it was a very small price to pay. When she was in the NICU for 120 days, she was on a ventilator. She had chronic lung disease as a result. I highly recommend the shots if your insurance co will cover them. We weren't able to get them this year, unfortunately, because ours wouldn't. (they are like 2,000 bucks a shot)

Laria - posted on 01/10/2010

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Hi, I am a mom of twin girls born at 33 weeks, I dont know if this will help you but I went ahead a did the synagis for them because it would help them with their breathing ( not that they had a problem ) but I always have this saying "better safe then sorry" I hope this helped you out.

Emilie - posted on 01/09/2010

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My son is now 4 1/2. He was born at 26 weeks and got 2 seasons of Synagis. Insurance covered it and after discussions with his doctor, I felt it was best for him. He is now very good at getting shots, but other than that, we didn't see any side effects. It is a bit of a pain scheduling so many injections, but avoiding the hospital is definitely worth it.

Alda - posted on 01/08/2010

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My girls were born at 28 weeks and were given synagis in hospital. In most hospitals in the UK I think it's standard practice to give the shots to premature babies. After they left NICU/SCBU I had to take them to hospital for follow-up shots. Definitely worth it compared to the risk otherwise. Mine showed no ill effects whatsoever.

Valerie - posted on 12/04/2009

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Both of my kids had synagis (one @ 35 weeks and the other @ 33) and there were no side effects at all...it can be be expensive depending on your insurance and the dosage goes by your baby's weight. Now i am pregnant with my third and the pediatrician said our goal was past 33 weeks and over 6 LBS and we are definitely past that. YEAH!

Good Luck

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Crystal - posted on 08/16/2013

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Really consider whether or not the Synagis (RSV) shot is beneficial to your preemie. Some information reports the shot has mice DNA in it... 24 hours after my son (born at 1lb with PH & CLD, Gtube) got the 1st round of the shot, his health deteriorated. It was the day before he was to be discharged home. In two days, my son was back on the ventilator and medically paralyzed due to his discomfort. My son will no longer be receiving the RSV shot.

Sophie - posted on 01/14/2010

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my 29 weeker had the first shot but no more after that cause his doctor felt he was well enough without it. I was very blessed with my preemie being as healthy as he has been.

Janet - posted on 01/08/2010

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We're on our second year of synagis due to my son's breathing issues (he was a 27 weeker). He definitely qualified this year with his trach, but he's caught up on growth, so it takes two shots each time. Speaking of which....that's on tomorrow's schedule.

Jennifer - posted on 12/03/2009

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My son was born at 31 weeks and got his 1st synagis shot in NICU. i think that the shot is really good and he didnt have any side affects with the shot so hee would be getting his 2nd shot within this week!!

Kesia - posted on 12/03/2009

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My little guy was born at almost 28 weeks in 2007 and we did synagis from october to march the following year (6 months). He did fine on it, no bad effects, he has been pretty healthly, only a few colds. I know the shots are pricey about $1000 a pop (we only had to pay the $15 copays). I thought it was worth it for him. I know they do not offer the shot to all the infants just those with a higher risk.

Tanya - posted on 12/03/2009

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My daughter was born at 24 weeks..we just sent the request in to insurance..I would def recomend it!

Nicole - posted on 11/30/2009

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My daughter was born at 23 weeks and the hospital gave her her first synagis shot before she was discharged from the NICU. Now her home health care nurse will be giving her one shot a month through the RSV season. I have not yet seen a bad reaction to it. I really think with having a preemie it is a very good idea. I am glad we are doing it because I would not want her to get RSV. Not after everything she has overcome.

Rebecca - posted on 11/29/2009

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I completely reccommend Synagis......as a nurse and a mom of two preterm sons. My oldest did not receive the shots, and he had RSV twice!!!!!! My youngest son was given the shots, and he has never gotten it. Be sure that you also get your children the flu shot......it is no joke, being in the hospital for something that could be largely diminished is a shame. My younger son did not have any side effects, but my oldest (who did not get the shot) developed asthma at 4 months after his first bout with RSV....he is now 6 years old and has been on breathing treatments and inhalers his entire life. Luckily we have a wonderful team of doctors caring for him and he is getting much better.....

Amanda - posted on 11/29/2009

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My son is having his second year of synagis, he was born at 26wks in sept 2008, in January of this year he got Bronchiolitis and was very poorly had to go back on oxygen and fed thru a tube, the dr's said he would have been much worse if it wasnt for Synagis, so i would recommend it without hesitation.

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If you are able, get it. It can really lessen the risks of RSV, which can be life threatening in babies born too soon. My son recieved it for two RSV seasons (Oct-April) and never had any issues.

Tara - posted on 11/26/2009

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My twins were born at 29 weeks. They both got the synagis shot the first flu season. they had no side effect from it. And I was super glad that I did, cause I knew of a few other mothers who's babies did not get the shot, and their babies got RSV, and had to be hospitalized. And I didn't keep my babies in quarintine either, so they were exposed to the public, so it worked well. RSV is very dangerous for preemies, due to their underdeveloped lungs. I highly recommend it!

Kylie - posted on 11/25/2009

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Joseph was initially meant to have it, but the hospital decided he didn't need it. In the UK its funded by the government not insurance, and you don't have a right to appeal!



I live in fear of RSV and bronchiolitis, but so far so good.

Jamie - posted on 11/24/2009

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we had no bad reactions to it when Mackenna was born @ 40 weeks, but with Down syndrom and a heart defect. we had such a positive experience with it, we are doing it again this year. it will be her last year to have it as she is recoverd from her heart surgury now. side effects were normal for any shot, a sore thigh and mild fever for one night.

Jamie

Leeinda - posted on 11/24/2009

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My 28 weeks received the synagis shot. We never had any side affects and I would recommend it. It has been studied more in depth than the H1N1 vaccine and has been trusted for several years.

Tammy - posted on 11/24/2009

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I have two preemies, one 29 weeker and one 32 weeker. We did synagis with both the kids. We never seen any adverse reactions and would really suggest it! RSV is such a terrible illness for preemies. If you have any trouble with insurance paying for the shots, we found a non-profit that actually provided us with a grant to help pay for the medication. You can check them out, search for Patient Access Network Foundation. There are some income limitations, but they tend to cover most middle income and down.

Sarah - posted on 11/23/2009

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My daughter got Synagis shots for her first year of life. That is all that insurance would pay for. After they stopped the shot, she got RSV twice. It is terrible to know that because insurance wouldn't pay and I could not afford the out of pocket expense, my daughter was exposed to such a terrible illness.

Jennifer - posted on 11/23/2009

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I have had 6 premature births ranging from 30-36 weeks. I have used the synagis for quite a few with no reactions at all. The one child that I didn't use it for because I actually made 36 weeks (which isn't too early) caught RSV and almost died. He was in the hospital on a ventilator for a mth. I really suggest the synagis.

Kristy - posted on 11/22/2009

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my son was born at 24 weeks. hes now 11mths adjusted. had it last rsv season while in nicu and just started receiving it again this season. he has not had any reaction to it and the home health nurse that comes every month will answer any questions u have and also give you some info booklets. it is definatley better than risking them getting rsv. i think.

Maghan - posted on 11/22/2009

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My twins did synagis for a year. I didnt see any side effects at all! My boys were born at 27 weeks and it was very new then, 6 years ago! but I think that it is definately better than them getting RSV. My friends son had RSV and he was not premature just very little, he was 4 months old. He had alot of problems after that and became very delayed in speech and physically. Do some research if your not sure but I had a good experience with both of my boys.

Jennifer - posted on 11/22/2009

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Before my son was discharge from the nicu he got his first shot of synagis. A nurse will be coming to my house once a month to give the injection. My son was also born at 28 weeks. Have the doctors talk to you about synagis?

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