People and their rude comments

Melanie - posted on 02/23/2009 ( 4 moms have responded )

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Let me first start by telling you the miracle of my Son. I have a kidney disease, I was told there shouldn't be any reason I couldn't have children. Well my husband and I tried for 8 years to get pregnant, we both had given up all hope of having children of our own, when I got really sick. I went to emergency room thinking I had another kidney infections, only to find out I was pregnant. We were ecstatic. I felt great, no morning sickness or anything until about 26 weeks. I started falling down alot, and for me that's not so abnormal (I'm a clutz). Well on June 26, 2007 I fell and fractured my elbow, They noticed while they were checking me out that my blood pressure was high so I was told to go to my OB the next day. So I did and my pressures were still high but they thought maybe they were high because of the pain from my elbow. Well needless to say they never went down and the blood work showed I was spilling protein (which again for me is pretty normal). So my OB wanted me to have a stress test done weekly and put me on complete bedrest. Well my pressures never went down and I was spilling massive amounts of protein so I was sent to a hospital, that specialized in premature babies,where I would remain until delivery. My little miracle Ian was born at 31 weeks and weighing only 2 lbs 10 1/2 ozs. He was in the NICU for 6 weeks and when he did get to come home he was on a heart monitor. I have always babied him because I feel like he fought so hard to survive he shouldn't have to fight to do things. He is now 18 1/2 months old and having alot of delays. He didn't sit until almost a year old, he didn't crawl until 13 months, he just started standing up on things a couple weeks ago. He is not walking, he says very few words and refuses to hold his own cup. I have done everything the Doctor has told me to do. He does Physical Therapy, Speech Therapy and now the doctor sent us to a neurologist to be rechecked for any neurological problems. He was tested at birth for things and we were told all was clear now we are going through it again. Ian's pediatrician feels that things that didn't show on the first tests may show now. So we are waiting for results. I guess I'm just frustrated with people saying things about him not walking yet. Some don't know what he's been through but some are relatives and are always saying well so and so is doing this and that. I just wish for once they would think before they speak.

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4 Comments

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Katelyn - posted on 02/24/2009

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i totally know how you feel! i feel like i go thru it daily! my daughter was also born early and staying in the hospital for a month. shes 19 months and shes totally amazing!! i wish people could just see how happy and loving she is, instead of realizing that she doesnt, crawl, walk or pull herself up! i know soo many people that had babies the same year and the year after and their kids are sooooo much further along, it hurts to see them look at your child differently! esp. when she has 3 and starting soon 5 hours of therapy a week, i know she'll get there when the timing is right for her but still its hard to not let other people get you down!

Sheila - posted on 02/23/2009

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By the way if you want to talk more about it, you can chat with me or email me if you need someone to talk too. I understand it is so hard especially for a first time mom like us not to have someone of the same case to to talk to. Smile always!

Sheila - posted on 02/23/2009

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HI! This is sheila. I understand how you're feeling. My son Jigi was born 28 weeks On July 31, 2007. Hes on therapy now. Physical and occupational therapy. Hes also referred to a Neurologist and soon will have his MRI to know the cause of his delay since hes very premature. He didnt learn to crawl and until now he doesnt know hoe to sit without support. He cant even stand and walk yet. But hes walking with the help of his walker. He can move around and stand with the walker but hes on a tip toe. The only problem with him according to the therapists is his balance. He can baby talk and can produce sounds can say mom and sometimes can pronounce his name Jigi. Please don't get frustrated with what other people say cause they dont really understand and feel what were going through. We do not compare our children to to other babies who was born in full term. They're preterm and is taking a lot of care and special attention and they're really have lots of delays and that is expected. Sometimes, I cant avoid comparing but when I look at my son with the pain and sufferings he had been through in the hospital that stayed for 3 months in the nicu, I m still thankful and happy with what I see in him and I know until now hes fighting for his life and as a mom I am here to support him and take care of him til he grow up. Smile and look at your son's development. Only their smiles and stares and gigles that makes our day complete and satisfied.

Lisa - posted on 02/23/2009

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First of all, I'm SO sorry you are going through this without any support! I know how stressful it is as a mommy being worried your child isn't doing things at a "normal" pace and having everyone remind you that he isn't daily. My son was born at almost 35 weeks after a very difficult pregnancy in which my labor was stopped at 31 weeks and he still came early. He has always been delayed a little also...he didn't sit up on his own until 11 months, crawled at 12 months, and didn't walk until 14 1/2 months. He still isn't talking much (we just found out recently though he may have hearing loss and he is scheduled to be retested so this may be the cause of his speech problems). You aren't in it alone! Just keep reminding yourself that he is a true MIRACLE and he'll do things in his own time! If you ever need to chat or just vent feel free to message me! ♥ Lisa