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8 month old recently diagnosed

Jody - posted on 04/11/2012 ( 2 moms have responded )

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Hello ladies, I am a 20 year old recently single mother to an 8 month old named Karsten. I was married and recently began the divorce process for our emotional and physical safety. Anyways, my son has always been high needs and was recently diagnosed with sensory processing disorder. He is in PT and starts OT tomorrow, as well as early intervention. He also sees a speech/feeding therapist monthly due to his oral aversiveness. He was born at 36 weeks, and has struggled medically throughout his life. He was in the NICU for 5 days with brady events, apnea, etc. The hospital didn't take too good of care, and I am sure that is partially at fault for his issues. Anyways, he has severe reflux and food allergies, trouble sleeping, is aged around a 4 month old developmentally, and is overall very difficult. I am learning more about this disorder and am coping with it the best that I can, and am okay with the fact that he may not be the "perfect" kid. He is perfect for me, though :) Does anybody else have experience with a diagnosis this young? Thank you!

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Jody - posted on 04/12/2012

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He is a modulation-type; meaning that he is both avoiding and seeking, depending on the day/his mood. That is why his became so obvious. His delays came first, and his therapist thought that an OT should look at him and did an eval on him, diagnosing spd. I will have to talk to his OT about vision therapy, and he will be in speech as he gets older, but right now it is mainly teaching him how to cope and self soothe, as well as his gross motor skills instead of the more fine details. Thank you.

Erin - posted on 04/12/2012

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Hi Jody. Unfortunately, I have never even heard of such an early diagnosis until now. When he was diagnosed, did they mention that he is a sensory avoider as opposed to a seeker? I ask because the two can look very different, and you did mention that he has and oral aversion. It does sound like you are on the right track with the therapies. Another therapy that seems to be increasingly more common is vision therapy. My son recently started because his eyes weren't working together properly so he was having difficulty with focusing on visual details. My son is 6 and was diagnosed around age 3, but we started to suspect around 18-24 months. I wish you luck.

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