Can a SPD child get SSI/SSDI?

Katrina - posted on 04/21/2011 ( 7 moms have responded )

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My 22 month old son has been diagnosed with SPD and I am grateful to finally have answers after months of crying at pedi office, EI finally brought it up. I do it all on my own as DH works 80 hours a week and NOONE will watch him because they are scared he will hurt himself or someone else. they will take my other two but not him, my mom can watch him for maybe an hour or two but only at my house were its gated off and I have everything child proofed. He throws himself on the floor, slams his head against the walls, has broken his crib a dozen times slamming up against it, he hits and pushes constantly. Its so hard as you ladies know, but my thing is I have tried to leave him in daycare before one day a week to see how he did and I got a call within an hour so I have no idea how I will be able to go back to work as planned when he turns 2. I know we would meet the income guidlines but I didnt know if SPD was concidered a disability or not?

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Rebecca - posted on 06/16/2011

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Stuff an old duvet cover with packing peanuts and foam. Teach your son to do "belly flops" and "back flops" on it. Do it everyday, for hours if necessary. Also, "squishy hugs" where you bear hug him and try to squish him. The deep pressure from these will help relieve some of his need to bang into things, which is his current answer for the need. If he can walk and can grasp the play concept, play "push your hands on the wall" . Tell him the wall is falling and you have to hold it hold. Have him push the wall up with all his strength, singing (to the tune of "if you're happy and you know it) : Push your hands on the wall, on the wall....Push your hands on the wall, on the wall....Push your hand on the wall and do not let it fall....push your hands on the wall on the wall.
On the SSI front, get sign documents about his disorder. Get one from his doctor. Document the damage he does. Get a affidavit from daycare about why he can not be there. Be prepared to fight.
If all else fails, you may be able to find a stay at home mom in your area who has a child with SPD and is willing to babysit for you. I don't know where you live, nut I am in SoMd and I have babysat for SPD kids in the past and will probably do so again in the future.

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Jennie - posted on 04/15/2013

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I just received this diagnosis last week, but it was from an occupational therapist. I have one child in Head Start and a nurse that comes by the home once a month to check on him and his development and previous he had to be 50% delayed which last yr he wasn't but now he is in 3 categories. My husband is unable to work because he has to be home with him while I work. This post has been great because I really wasn't sure how to go about getting help or if it is even possible to get SSI disability even for a short time. Do they eventually grow out of it or is it a lifelong challenge.

Schyla - posted on 06/28/2011

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it's a battle we tried to apply for my now 5 year old when she was first diagnosed she requires 24 hour supervision however we were denied but we did find a child care center that was willing to take her on CONSISTENCY! it took us about a month of crying and throwing huge fits and then another month of just crying. YOU have to inform the daycare of whats going on and you need to find one that will be willing to deal with it. She started head start this year and there too the teacher was informed of what was going on with her. go ahead and apply we're still fighting it 3 years later and now she's excited to start kindergarten next year. Routine routine routine! call your local info hotline for help that's how I found the center we used.

Melissa - posted on 06/15/2011

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My daughter got approved in December ofr SSI.....and that was with just her global delays...she was diagnosed with SPD, ADHD, and anxiety in February....so I would apply. You can always appeal it if they deny you the 1st time.

Stephanie - posted on 06/06/2011

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definitely look into it!! in the meantime, try to find ways to help him! We got a mini trampoline and it has done wonders for calming my son down! Or maybe heavy work - let him drag a basket of laundry or something around for a while! Hang in there!!!

Laura - posted on 04/22/2011

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Why not? He'll have to go to therapy and you'll need some stuff around the house to help him cope. If you do meet the requirements then go for it.

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