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Overcoming SPD and/or raising a child with SPD?

Amy - posted on 05/07/2011 ( 4 moms have responded )

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My 6 yr old daughter, Nellie, has SPD. She has been in OT and PT off an on since the age of 2 yrs old. She has improved quite a bit over the years with therapy. She too has speech and language difficulties as well and is receiving ST. None of my family or friends/co-workers have children with disablilites and is at times difficult to explain. When I talk to others, its not putting a label on but letting others know about her and her uniqueness when necessary. What tools or routines do you do for you child or yourself to cope with the different areas of SPD? (visual/perception, tactile, taste, smell, emotional behavior, vestibular, proprioceptive, auditory). We use the brushing method (with joint compression), visual cues, the handwriting without tears, chewlrey, and a wrist sweatband.

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Michelle - posted on 07/20/2011

My son is 4 and just recently being diagnpose as SPD and i am also currently getting him tested to see if he has ASD. I also am having problems with my family who are in denial that my son has any problems. I just wanted to know if there are any tools/ sensory toys that any of you recommend, my son falls into the under-sensitive catagory.

Schyla - posted on 06/27/2011

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My biggest issue is my Mother! she tells me she acts JUST like you did there is nothing wrong with her. I tell her Mother dear She's a square peg in a round world it's not bad and it's not WRONG it simply requires more work, and if I can help my child fit into this world better then I did then I'll do it no matter what it takes. and I tell her that The fact the Miss Bit acts just like I did dose NOT mean there is nothing going on what it means is that 22 years ago people didn't no that this existed and I was simply labeled a bad kid because no one knew what was going on. As far as explaining it to other people I tell them that her brain and her body do not synic together and this causes her to act out because she dose not understand why her brain says do this and her body dose this and that. they don't need to know more then that. I use the out of Sync child a lot I've had both my mother and mother in law read it with me marking the things that apply to Miss Bit and I gave the book to her Head Start teacher last year to read and I'll be doing the same with Kindergarten this year.

Amy - posted on 06/17/2011

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Thanks Stephanie. When I try to explain it the best way I know how, most just don't get it for they think that its typical child behavior. How frustrating especially when I'm not around others like her or parents that have the same problem.

Stephanie - posted on 06/06/2011

we havent really started any treatment officially yet... but as far as explaining it to others, there is a fantastic explanation of what it feels like on this site: sensory-processing-disorder.com