13 year old son diagnosed with leukemia...?

Sam - posted on 08/29/2011 ( 139 moms have responded )

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Found out today that my 13 year old son has leukemia and will need to undergo several treatments of chemo and such. He is so depressed he just cried for like an hour when we got the news and just slept the whole car ride home and just has been curled up on the couch all night. His older sister is 17 and she is so scared because she is so protective of him and these two are so inseparable! I don’t know what to do my husband is being a ass and has just basically been fighting with me since he got home and I told him. I just don’t know what to do or what I would do if I lost my boy. I know he is a fighter he was born three months premature and they didn’t even think he would live so I know he has fight in him just don’t know.

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Sam - posted on 10/19/2011

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I called 911 and they took him to the hospital but the cops had to tazer him. And now he doesn't even wanna see me or his sister or girlfriend!

♫ Shawnn ♪♫♫ - posted on 10/19/2011

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Get him in to the hospital counselors, Sam. Sounds like you're not only dealing with the leukemia, but also teenage angst, etc. You are not a bad mom! Your son just has a lot to deal with, and his coping mechanism may be at teh breaking point

Sam - posted on 10/19/2011

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Idk if what i did was tough love or what but my son just lost it yesterday went nuts went after his gf his sister me and then just started cutting on himself =/.

♫ Shawnn ♪♫♫ - posted on 10/19/2011

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Sam, you ARE NOT a bad mom! Stop that! You are a human being, and you can only do so much. The kids have to help!

Still praying...

Sam - posted on 10/14/2011

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Oh i know just waiting for him and his sister to get home he made himself go to school today and wouldn't listen to me!

Evelyn - posted on 10/14/2011

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This is a time to really look to God. Turn your attention to the Lord and continue to pray. You are in my prayers.

♫ Shawnn ♪♫♫ - posted on 10/14/2011

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Meds will do that, Sam. My hubby is disabled, on strong narcotics for pain management, and it messes with your head. Try to get him to talk to you about what he's thinking. He may just need to verbalize his frustration with the fact that he's got this BIG medical issue, and he feels helpless to do anything other than what the docs tell him. Remember, he's a teen on top of all of this, and 13 year olds have a hard time with emotions at this point as well

Sam - posted on 10/13/2011

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I love my son dearly and haven't been angry with him in so long but tonight i do not know what is with him being verbally mean/abusive to me and his sister and pregnant girlfriend. Not sure what his problem is!

♫ Shawnn ♪♫♫ - posted on 10/13/2011

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Bless his heart, he probably does. Still thinking about you guys. Give him a hug for me

♫ Shawnn ♪♫♫ - posted on 10/13/2011

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Sam, go back to the "tempting" foods/drinks. Remind him that if he doesn't stay hydrated, they'll put him right back in the hospital.

Um...how about getting him to suck on a popsicle? It's fluid, even if it's frozen...

I'm glad he's home, though. That makes it easier for you, at least a little.

Sam - posted on 10/13/2011

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Just got home he is curled up on the couch watching a movie but he won't eat or drink anything and his doctors told him he has to has to stay hydrated.

♫ Shawnn ♪♫♫ - posted on 10/12/2011

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Sam that is so wonderful! Keeping up the positive thoughts and prayers from Wyoming

Sam - posted on 10/11/2011

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They brought him out of the coma tonight and he is doing really well going to monitor him tonight and tomorrow and then let him go home if he is alright.

Fiona - posted on 10/11/2011

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Dr Elstein travels the US also giving talks on all medical and wellness health. Hope you get through all this OK.

♫ Shawnn ♪♫♫ - posted on 10/11/2011

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Good girl! Like I said, he needs positive input, not negative. it's established that they both love him, now they need to work together!

Fiona - posted on 10/10/2011

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There is so much nowadays that can be done, however if you live in the Sydney area there is a wonderful doctor who is really doing some cutting edge stuff 0 Dr Michael Elstein just google him. You will be alright.

Sam - posted on 10/10/2011

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Thanks hun i sortta went off on them because it is so stupid. There fighting over him its pathetic IMHO.

♫ Shawnn ♪♫♫ - posted on 10/10/2011

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You may need to sit down with both of them (separately) and explain that their strife does NOT help him. And then, (this is going to be hard) put your foot down. If they cannot get along, neither will be able to visit while the other is there. They need to put aside their bickering and see the bigger picture here. Both are old enough to understand that the more negative the "vibe" is, the less likely he is to respond to treatment. Only positive thinking allowed around J. If necessary, have the family counselor sit down with them to explain it. That way, you aren't seen as the "bad guy".

Sam - posted on 10/07/2011

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Yes i am a christian and i have been praying just really want my daughter to be able to calm down and his gf because both are fighting and bickering and arguing over this whole thing about who loves him the most

♫ Shawnn ♪♫♫ - posted on 10/07/2011

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Oh, honey, I'm so sorry. The toughest thing in the world is to not be able to help your baby, I know!

I've got you all on various prayer groups that I participate in, and we are all praying for the doctor's guidance, to find the best, most effective treatment for your boy.

Are there any support groups in your area? The hospital should have those resources to provide for you. Make sure you're taking advantage of the counseling that they offer...especially if he's at a Children's hospital. The resources are so wonderful, and they care for the entire family, not just the patient in the bed.

I know its really, really hard, and this seems like such a petty thing to do, but if you can find ONE thing to be thankful for each day...even something as simple as good weather, or the fact that traffic wasn't too bad today...it does help lift your spirits. My boy wasn't dealing with leukemia, but with failing kidneys, and the hardest part was keeping MY outlook positive. I found that, if i took a walk around the medical campus once a day (twice if necessary) just to reflect on the things that I was thankful for, I was more at peace, and better able to help my son. And, honestly one day it was that I was thankful for the cute little squirrel that let me watch him play for a couple of minutes! God is present, He is watching, and He will be there for you. Give it all to Him. Just sit down, and say a quick little prayer "Lord, I know that this is Your will, and I will do my best to follow that. Please be with my son and family. I GIVE IT UP TO YOU: And then truly try to give it to God. It's hard, but when you can do that, you feel the peace, and the love, and the support of everyone.

I don't know if you're religious or not. I'm not, actually...I believe in God, and that He has a plan, but I'm not a church goer. I do know, however, that if you give it up to Him, He will take care of you. My boy (just days after I did that) started improving, and is almost medically cleared. Again, that wasn't leukemia, and I KNOW that you are fighting a harder fight, but we are here for you! Hopefully, you feel the love and the prayers and the support!

Sam - posted on 10/07/2011

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Not doing well they took him off of his pain killers and he jumped to a 10 on the pain scale and so they put him into a medically induced coma till they figure out what to do! And no i am not ok.

♫ Shawnn ♪♫♫ - posted on 10/07/2011

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Sam, how are things going? You doing ok?

Erika - posted on 10/07/2011

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I am sooo sorry that you are going through this. I have never experienced this but I believe in the power of prayer. So that is what I will make a priority is to pray daily for you all of you. Get counseling. I don't care if your husband is in denial, angry or whatever. Your main concern is getting those children and yourself through this. He is a grown man. Please keep us posted as you can and if there is anything I can do please let me know.
peace be unto you,
Erika

♫ Shawnn ♪♫♫ - posted on 10/03/2011

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Glad to hear the Chemo is going well, Sam. Hopefully they'll get a solution for the night terrors! :-) still praying for you, hon!

♫ Shawnn ♪♫♫ - posted on 09/30/2011

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I wonder if the night terrors are connected to his meds? I hope they find some solution! Are his treatments going well?

Sam - posted on 09/29/2011

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Thanks sorry i haven't updated in awhile he has started to have night terrors so he has been in the hospital for the past few nights.

Shannan - posted on 09/29/2011

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momma, tell him to be strong, and that he can use his mind power to overcome it. I know that so many kids are diagnosed with leukemia and they survive and live their life so just believe and tell him that he is one of them. be positive and tell your husband to be positive, dont fight he needs to know that you are ok. his sister needs to know that you are going to be strong and love him thru it..love and positive even thru the pain will bring him thru it..dont forget to pray and believe when you pray that he is listening above..believe...Love, shannan

Sam - posted on 09/20/2011

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I know and my daughter has offered more then a few times to take care of him so we can have alone time and go out and such and i know she is capable just worry if something were to happen to him i am not sure if she could handle it!

♫ Shawnn ♪♫♫ - posted on 09/20/2011

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Stress is understandable. However, you HAVE to take time for you, and for you and hubby. First, if you get too overwhelmed, your health suffers, and if you get sick, you may not be able to be around your son. Ok, so that's worst case, but still...Make sure you are getting rest (I know, what are you supposed to do, knock yourself out?), and some alone time with your hubby. You both need to be strong, and the only way to do that is together.

Sam - posted on 09/20/2011

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I guess ok hubby and i have just been so stressed and its been crazy i really haven't had time to think about myself and i guess i should but more worried about my kid! Actually been feeling under the weather lately.

♫ Shawnn ♪♫♫ - posted on 09/20/2011

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Well, I hope school went ok, Sam. How are YOU?

Sam - posted on 09/15/2011

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Yeah i was surprised, My son went to school today he was adamant about it which i guess i am ok with since he and his big sister go to the same school just not sure what to do since i actually have some me time lol

♫ Shawnn ♪♫♫ - posted on 09/15/2011

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Sounds like it was a nice evening, Sam! I'm glad sis didn't shed anyone's blood over the pregnancy thing...

Sam - posted on 09/14/2011

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Went better then i thought it would tonight and husband and i got some alone time while his girlfriend him and sister hung out and watched some movies.

♫ Shawnn ♪♫♫ - posted on 09/14/2011

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Ooh, probably a good idea, Sam! Drama is not what's needed now! And, if she helps get his mind off of things, that's good. Next thing you need to do is stop, take a deep breath, give yourself a hug, and have a good evening

Sam - posted on 09/14/2011

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Thanks hun his girlfriend is coming over later i am half tempted to make my daughter go to a friends so she doesn't rheem her or anything cause its not what is needed and my son might just lose it he doesn't need stress.

♫ Shawnn ♪♫♫ - posted on 09/14/2011

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um, not right offhand, but maybe ask his doctor if they have something they can prescribe. There should be something. I know that most cancer patients I've known have had to have something for the pain of the treatments...

Again, still praying :)

Sam - posted on 09/14/2011

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Were back home and he is asleep finally he was in a lot of pain on the ride home and there isn't anything i can really give him to stop it as nothing works. Any ideas on what i could give him for aches and pains?

Sam - posted on 09/14/2011

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Oh she is she is. He did alright he puked a lot and was extreamly weak and had to spend the night in the hospital.

♫ Shawnn ♪♫♫ - posted on 09/14/2011

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Not that it's a laughing matter, but I have a mental pic of big sis being MUCH worse than mom on the pregnancy thing...Best of luck with the treatment today. How did he do after his last one?

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