Reina - posted on 08/23/2010 ( 1 mom has responded )
My son Matthew was born on April 14, 2010-weighing in at 1 pound 12 oz. He has beat so many odds that come with being nearly 4 months premature. However, his lungs are so damaged from needing a vent for most of his life so far, and then he had to have surgery on the Right diaphragm due to paralysis after another surgery for his PDA. Recently he was diagnosed and has been being treated for Pulmonary Hypertension, due to being pushed too fast when he wasn't ready to breathe more on his own. The doctors are going to take him off of the vent and put him on a nose oxygen mask (C-pap) and they will be so happy if he can tolerate this and keep his CO2 levels down. But, if he cannot, then they will give him a trach and connect a vent. If he doesn't need the vent, and requires a C-pap for a long time, which he will need support for a few years, he will still get a trach hooked up to oxygen. Has anyone here ever had a baby with a trach on a breathing machine temporarily? Long term? Can you PLEASE tell me about it. Me and my husband are first time parents.